im new here, and its sad to say i have cfs, with alot of viruses, now today i found out, lyme is added one, can anyone tell me what is lyme, and how can i get a good dr that is very knowleagble about lime, ive been losing weight for the last 8 months and no dr can find the cause, i was 200 pounds, right now im like 125 pounds, i am looking real bad, i need help,my pcp dr. put me on 1 month of antibiotic but i know, she really cant help me. so if someone, anyone can help me here, with a good dr.i do appreciate it.
Posted by street129 (Member # 23472) on :
oh, its states from the bloodwork that the lyme is active and is 41band, i dont know what this means, if anyone is knowledgeable in any of this and is willing to educate me i want to understand what i have and what i can do to help myself.......thanks a bunch.
Posted by street129 (Member # 23472) on :
correction its reactive, i didnt know i had this before, it also says the name B. BURGDORFERI. what is this.is this the name of the lyme that i have, i really need help in understanding this. its alos 41band, dont know what that is, i also develope ringing in my ears, its after 3 am, and i cant sleep. i will come back to the board tomorrow. i love that i found this board for help, i need help badly..thanks guys.
Posted by carly (Member # 14810) on :
Hey Street,
I wasn't really able to read your posts fully. Like alot of others here at lymenet, I can't really track too well with the words so close together like that.
If you could hit "ENTER" twice after every one or two sentences, it would make it much easier to read and more people will respond.
I did catch that you had a reactive band 41. I had that one too. Best I can tell is it means something's going on.
For a detailed explanation that actually gives you some information, go to "MEDICAL QUESTIONS" ,
at the top of the category there is a topic called "QUICK LINKS TO POPULAR TOPICS"
Click on that. Scroll down to "WESTERN BLOT EXPLANATION"
That should give you all the info you need.
As for a doctor, did you go to "Seeking a Doctor"?
Good luck,
Carly.
Posted by JamesNYC (Member # 15793) on :
Hi Street,
Welcome to Lymenet!
I'm sorry that you may have lyme, but you've come to a place where you can get support.
First, CFS is not a disease but a "syndrome", a group of symptoms with no known cause or cure. In other words: they recognize that you're fatigued, but don't know why.
Lyme causes great fatigue and many, many people found out that it was lyme that caused their CFS.
You should see a Lyme Literate MD (LLMD) and get properly diagnosed. You can find one by posting in the Seeking a Dr discussion.
Also, the tests are very unreliable and lyme is better diagnosed from clinical symptoms.
You should also educate yourself on lyme and it's coinfections. The best book to read is Cure Unknown: Inside the Lyme Epidemic by Pam Weintraub.
You should also see the documentary Under Our Skin, it's available on DVD or on Netflix.
Also read the Burrascano treatment guidelines for further understanding of what you may have:
Anyway, I hope this helps. Please come back and ask questions when you need to. You'll find we've all gone through what you're going through.
James
Posted by zil (Member # 12048) on :
I lost a lot of weight and looked real bad, my mother said "horrific". I felt horrific for sure. I had adrenal insufficiency. I felt like I had an extremely bad hang over daily. I also ended up with a pituitary problem, sleep apnea, then the Lyme/co-infections. You may want to see an endocrinologist. I feel for you. Positive thoughts and prayers your way....I have read there are some good Dr's in your area. Someone will post about them hopefully.
Posted by street129 (Member # 23472) on :
THANK YOU ZIL. AND EVERYONE ELSE WHO RESPONDED. i saw so many drs......they can't help me. i
took so many tests.....nothing, except for lyme and the other viruses that i have