This is topic My New Year's Gift to Lyme Awareness and the Lyme Community... in forum Medical Questions at LymeNet Flash.


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Posted by LymeLearned (Member # 20565) on :
 
Honestly, WITHOUT all of you, and the other Lyme Organaizations, I'd have gone into a coma and died of kidney failure, as NONE of my regular docs were willing to do anything but crisis care and then palliative care (what is done in a hospice-symptom relief only for cases where there is no known cure for an ailment.

When I left the hospital, ONLY my LLMD was willing to give me abx beyond the crisis, and in an attempt to "take a break" due to yeast (BIG MISTAKE), I got dangerously ill with *another* kidney infection. Again, ONLY my LLMD was willing to give abx to pull me out of the infection.

Thank God for ILADS, CALDA and LYME NET.

You all LED me to HIM and HE's SAVING me!
THANK YOU * THANK YOU * THANK YOU!!!

I made this video to show the SEVEN FACTS that could have saved me...

http://www.youtube.com/watch?v=4ALgOikmjCw
 
Posted by Lymetoo (Member # 743) on :
 
That was AWESOME!!!!!

I will send it out immediately!
 
Posted by LymeLearned (Member # 20565) on :
 
Thank you! SO MANY don't have/take the time to read, so I'm trying to give them a quick peek into what it took me so long to learn from so many sources.

Thank you so much for your help. Let's stop the spread if we can, and lead others to treatment when it's too late for prevention. We all know that only our knowledge has saved us, and the others who led us to it, have collectively saved our lives.
 
Posted by TerryK (Member # 8552) on :
 
Well done!!
 
Posted by joalo (Member # 12752) on :
 
Well done! This is going out to everyone on my contact list. Thank you so much!! [kiss]
 
Posted by asummers (Member # 18068) on :
 
Well done, you should be very proud!
 
Posted by sixgoofykids (Member # 11141) on :
 
Excellent!! It's on my facebook page. [Smile]
 
Posted by joahsark (Member # 20598) on :
 
Wonderful! thanks so much, already gone out to my list.
 
Posted by Lymetoo (Member # 743) on :
 
up
 
Posted by Paula 007 (Member # 8002) on :
 
Wow! Thank you so much. You have no idea just how many this may reach. And it is hard to reach people. Video is well-done, though. Scary, but Lyme is scary. After 15 years, I'm damn scared of it. We knew I had been bit. I had the bull's-eye rash. Doctors misdiagnosed for 8 long years. Someone may avoid this because of your work on this video. Thank you again.
 
Posted by Lymetoo (Member # 743) on :
 
up
 
Posted by Rumigirl (Member # 15091) on :
 
OMG, this is FABULOUS!!! Thank you, thank you, thank you. I'm sure that it will help a lot of people over time.
 
Posted by just jan (Member # 16285) on :
 
Thank you so much for this wonderful work!
Blessings,
Just Jan
 
Posted by Stacyb (Member # 13084) on :
 
Awesome!
Sent it to everyone I know!
You did a great job!
 
Posted by farraday (Member # 21494) on :
 
Me too. Thanks a million!
 
Posted by LymeLearned (Member # 20565) on :
 
I can't tell you all how GREAT it feels to know this has made the mark. I'm so glad you like it.


I just kept thinking over the months since becoming SO ill after being bitten, how unfair that mainstream media doesn't tell us what we need to know.

You guys are awesome! I can't believe it hit over 500 views today! WoW!!!
 
Posted by liesandmorelies (Member # 15323) on :
 
BRAVO....BRAVO!!!!!!!! =)

I am posting this on my Facebook!!!!!!
 
Posted by Tincup (Member # 5829) on :
 
Up for others... and thanks for your hard work LL.

[Big Grin]
 
Posted by sutherngrl (Member # 16270) on :
 
Good job!
 
Posted by Lymetoo (Member # 743) on :
 
up again!
 
Posted by seekhelp (Member # 15067) on :
 
Excellent work. I'm very impressed.
 
Posted by Healing in Santa Cruz (Member # 7798) on :
 
Wonderful video. I also have it on my facebook page and am also sending it to many friends and family. Thanks for taking the time and energy to create it. In Gratefulness Joyce
 
Posted by Tincup (Member # 5829) on :
 
FYI-

You got a big thumbs up from some influential folks in the Lyme community for your work on this. Heard it through the grapevine.

[Big Grin]
 
Posted by Amanda (Member # 14107) on :
 
This is so well done!

Have you thought about sending it to your local news station?
 
Posted by Elaine G (Member # 20735) on :
 
Excellent and easy to understand. It really gets the message out.

Sending it out to my contact list.

Thank you for doing this.
 
Posted by springshowers (Member # 19863) on :
 
Hi .. Thanks for that great video. well done!!

looking at all those who are posting it on your facebook.

is there a facebook lyme group?

I am curious?

Thanks
 
Posted by LymeLearned (Member # 20565) on :
 
Sort of....WE're a bit fragmented, but add me as Ticked Literally, and it'll link you into a lot of wonderful and helpful Lymies, some with pages.

I SO WISH we could conglomerate! God help them if we moved as ONE!
 
Posted by LymeLearned (Member # 20565) on :
 
Tincup....that is SO cool! You MADE MY DAY by telling me this!!!

It's been a long, hard road, and I'm terrified of not pulling through. An uplift like this goes a long way!

You and this entire group are amazing and wonderful. Never doubt my appreciation!

[group hug] [group hug] [group hug] [woohoo] [group hug] [group hug] [group hug]
 
Posted by Robin123 (Member # 9197) on :
 
Hey, congrats, LymeLearned - I recently saw it -

Wanted to let you know that some folks at CALDA are impressed too and put a link for it on our CaliforniaLyme discussion!

Keep fighting - it's a marathon, not a sprint -
 
Posted by Cass A (Member # 11134) on :
 
Very Well Done!

Best,

Cass A
 
Posted by Pinelady (Member # 18524) on :
 
OMGoodness. I love Enya. She was our fall asleep lullaby when my daughter was a baby. We listened to her every nite after our stories. Thanks.
 


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