I've noticed a lot of people seem to get much better when they take Flagyl.
I've been in treatment since May of last year and I don't feel I'm showing enough improvement.
Getting better slowly is not my goal; I want to be better as quickly as possible, especially now that we know my son is infected also.
Should I be asking my LLMD to put me on Flagyl?
Posted by WildCondor (Member # 434) on :
Flagyl rules. I would highly recommend it be added into everyone's protocol at some point. It works on the cysts and is a powerful component to overall treatment. People whine and complain about the side effects and the herxing but the whole point is to get well. Take the full dose and combine it with the other antibiotics and you have yourself a winning combination.
Posted by Cass A (Member # 11134) on :
WOW!
I had a terrifying reaction to Flagyl before I had Lyme. I got global transient amnesia--suddenly, I became conscious and I didn't know who I was, where I was, or what I was doing.
I happened to be at work at the time, sitting on a high stool on a concrete floor.
I could have fallen over and bashed my brains out.
I have no idea how long I was out before I became conscious.
Personally, I would take the talk of "side effects" seriously.
If you want to try it, perhaps "ramping up" would be an option?
Best,
Cass A
Posted by AnnaL (Member # 18464) on :
I took 1000mg Flagyl per day for 11 months with zero problems. Just goes to show that everyone reacts differently.
Posted by randibear (Member # 11290) on :
i thought you were supposed to pulse flagyl.
hey there's a wonderful site called "askapatient.com". really neat stuff with people putting their side effects and all.
it's the first place i go.
Posted by AnnaL (Member # 18464) on :
Tosho--
I did the first 10 months straight, 500mg in the AM and again in the PM. The last month I switched to five days on and two days off.
Then I was switched to other meds to prevent possible abx resistance.
Posted by nspiker (Member # 22824) on :
If you're afraid of side effects, try tindamax. It may cost you a little more money. I've only been taking it for about six weeks, but had no problems. In fact, feeling a little better.
Posted by beths (Member # 18864) on :
Anyone know if tindimax is as effective as flagyl? I take tini-not sure why! I saw LymeMD said it was a better cyst buster
Posted by AnnaL (Member # 18464) on :
I have heard from many sources that Tindamax is superior to Flagyl (but just slightly) as a cyst-buster. It is more expensive, unfortunately.
My husband had stomach pain from Flagyl, so was switched to Tindamax. He was on it for 7 months, first pulsing 5 days on, 2 days off, and then in the last couple of months, two weeks on/two weeks off.
Since it's been 7 (close to 8) months, he was switched to other meds to avoid developing abx tolerance.
He did just fine on Tindamax...no problems. I did just fine on Flagyl...no problems.
But he couldn't do Flagyl, and I couldn't do Tindamax. Everyone is so different.
Now we're both on Plaquenil, Diflucan, and grapefruit seed extract to cover our cyst-busting bases. (Yes, I have seen both sides of the Plaquenil/cyst debate, which is why I'm taking the Diflucan and GSE as well.)
Posted by JOLA (Member # 23498) on :
I just picked up new protocol
mino 100/2xday
flagyl 500/3x per day
still mepron for one more month
diflucan 4 x week
does the flagyl seem heavy to you?
Posted by JOLA (Member # 23498) on :