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Posted by sickpuppy (Member # 23846) on :
 
I'd like to try lymph drainage massage but naturally I'd like to go to someone who knows what they're doing and who understands lyme.


Any practitioner recommendations based on good experiences?

SW CT or NYC or anywhere in between would work.

thanks
 
Posted by sixgoofykids (Member # 11141) on :
 
These have been good for me. Be sure to drink lots of water and be prepared to be wiped out afterward.
 
Posted by psr1 (Member # 22957) on :
 
There is a woman in NYC who is great. She also comes to my town one day a week and a friend gifted me an hour with her. It was wonderful. PM me and I will give you her name & contact info.
 
Posted by map1131 (Member # 2022) on :
 
Oh, I so need a good therapists. Esp. today. I've got to find me someone soon.

I've learned over the years that great body work is not easy to find. I can't help you with NYC.

Thanks for reminding me to move this to the top of my list of things to do....find a great lymph drainage therapists.

Pam
 
Posted by canefan17 (Member # 22149) on :
 
They work great...

But I've also got a mini-trampoline at home. Bounce on it for 5-10 minutes every day.

It's great. I've really seen the swelling in my lymph nodes come down dramatically.
 
Posted by gwb (Member # 7273) on :
 
I've been getting them everyday at the clinic. Absolutely awesome. But the person needs to have specialized training in this. You can't get this from someone in one of those mall booths or massage parlors. It's got to be from someone who's been trained in lymph drainage massage.

This clinic where I'm going in KS has a top notch massage therapist who really knows how to do it. It's amazing how much of a difference it's made for me.

Gary
 
Posted by canefan17 (Member # 22149) on :
 
And it's actually amazing at how "weak" the actual message is. Feels like nothing is being done lol

Then you stand up afterwards and whoa momma.

It definitely got the blood/toxins flowin.
 
Posted by sickpuppy (Member # 23846) on :
 
How often do you go?
I ask since it seems like a bit of a rough ride.
 
Posted by canefan17 (Member # 22149) on :
 
I go once every 2 weeks and do the rest on my own.

I do min-trampoline and dry brushing.

Both help with blood circulation and lymphatic movement.

It's way too expensive to see a therapist more than twice a month imo.

I try to time it around big herxes too. No reason to go pay her 100 bucks if Ii don't have much drainage.
 
Posted by sickpuppy (Member # 23846) on :
 
canefan17, could you describe it so I'll know if it's being done right/if I have the right therapist?
Above it says it's a very light touch.
Thanks for the above info about timing.
 
Posted by canefan17 (Member # 22149) on :
 
It's light touch, repetitive, almost a pulsing action.

They should be massage everything towards the gut (to be excreted)
 
Posted by sickpuppy (Member # 23846) on :
 
So they work exclusively in the gut area?
 
Posted by gwb (Member # 7273) on :
 
The clinic gives a full body massage. The massage is firm in some areas and soft in other areas. She uses different techniques depending on what the doctor wants her to focus on.

The first day I had it it was pretty firm and she went deep into my muscles. When it was over I was dizzy and kind of out of it. That happens because of all toxins moving around.

She's focused a lot on my stomach too since that's where I have a lot of pain. My abdominal pain is much reduced now and my whole body just feels so much more relaxed and calm.

I've had about five massages since I've been here but when we get back home I plan to get two a month.

I highly recommend them to everyone, but get someone who knows what they're doing and knows about lymph drainage, etc.

A good alternative doctor or chiropractor sometimes has them on staff or can refer you to a good one.

Gary
 
Posted by canefan17 (Member # 22149) on :
 
sick,

No... they work the entire body... but get the blood/toxins flowing towards the GUT.
 
Posted by sickpuppy (Member # 23846) on :
 
Thanks. And I found someone online I think.
Too bad cause I just had a 3 day herx last weekend.
Well I can rest assured, there will be more, ha!
 
Posted by sixgoofykids (Member # 11141) on :
 
The guy I go to is actually a therapist at Massage Envy .... it's a chain of massage stores and happened to have someone with a lot of training - he also does cranio sacral and myofascial release.
 
Posted by LizaLu (Member # 21483) on :
 
A just received my 1st Lymph Drainage massage. Good experience, felt little, light movements during the massage, and then i felt dizzy afterwards but not anymore than any other day.

Suggestion---A way to get insurance to cover these treatments (if possible) is to go to your Primary Care provider, and ask for a referral to a specialist in your network.

My referral took me to a Lymphadema Specialist, at my network hospital, and its considered outpatient treatment and covered by insurance.

I know i got a specialist too whom knows whats up, since they work with cancer patients whom experience swelling of their lymph nodes. However, no knowledge of Lyme, but after explaining the chronic disease, i would consider my therapist Lyme Friendly/Aware.

Liza
 
Posted by purplemom (Member # 21064) on :
 
I get lymphatic massage treatments as part of my physical therapy and it is covered under my insurance. I am in PT with a diagnosis of myofascial pain. My therapist does myofascial release and lymphatic drainage, both have been very helpful.
 
Posted by map1131 (Member # 2022) on :
 
Lizalu, thanks for the info on trying to get insurance to pay for body work. I've been paying for my own body work for over 10 yrs.

That's ridiculous that IF I had cancer insurance would pay for therapy, but since it's not...I have to fight.

Lymph drainage by a good therapists is worth it. I used to do one hour weekly for 2 months, two weeks for maybe 4 mths and then monthly for years.

I've lost my therapists. I really need to resume with or without insurance.

Pam
 
Posted by Skyler (Member # 11549) on :
 
The only person I know who can do this is in Florida.
I HIGHLY RECOMMEND IT!!!!!!!!!!!!!!!!
IT makes you feel like a whole new person! You will glow after. You literally feel SO much healthier after this kind of massage.

It is one of the best things I have done for my health!
 
Posted by map1131 (Member # 2022) on :
 
Lizalu, thank you, thank you. I asked my PCP for a lymphadema therapists. He gave me a business card and they called and referred me.

I had to see the chiro first before insurance will pay for my PT. But the great part was....I've been waiting for a chiro that fits my needs. So this is a win win for me.

My first appt yesterday with lymphadema and she did cranal-sacral combo reiki on me. Oh, did I ever need that.

Finally after 10 yrs of paying for massage, cranal, lymph drainage out of my pocket...I've got my insurance company giving up some money for my treatments.

I'm bringing this up for others. Lymphadema is a physical therapists that works with chronic ill people with cancer etc to improve their health during the toxic cancer treatments.

Pam
 


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