LymeNet Flash: Test Results & Symptoms

This is topic Test Results & Symptoms in forum Medical Questions at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/91067

Posted by momintexas (Member # 23391) on :

My son has been on amox for 90 days. We took him off last week to give him a break for a few days. He has been a completely different kid since taking him off.

He is happy again, his anxiety is gone and he's not constantly saying he's tired. The only symptoms that remain are ringing in the ears and he still sees small flashing lights that he calls fireflies.

We had blood tests done a week ago as the Dr suspected Bartonella. The Dr called yesterday to say he only tested positive for Band 41 and his CD57 was 66. Everything else came back negative.

We still are on the search for a LLMD that will treat a child, with not much luck. We are lucky he was even able to get the tests done, but that particular Dr cannot treat a child.

I'd really like to know what others peoples thoughts are on this. He seems SO much better now than what he was. What do we do with those kinds of results? [confused]

Posted by canefan17 (Member # 22149) on :

90 days hardly seems like enough treatment.

I would continue searching for an LLMD. If you don't find one that will... I would consider buying the book "The Lyme Solution by Dr. S" and finding a physician that will prescribe you abx's and take monthly blood work (basic panels).

That's just my opinion. You may have to treat it on your own for awhile.

Posted by Lymetoo (Member # 743) on :

How long after his tick bite did he receive treatment?

Posted by momintexas (Member # 23391) on :

We never saw a tick bite. His diagnosis was based on clinical symptoms.

The test results that we just got back just seem so inconclusive to me. I don't understand the CD57 test nor what it means even though I did google it and the Dr briefly explained it to me.

His symptoms started in 2005, a couple of months after our camping trip. I was bit on that trip and had the bullseye rash, but was repeatedly told "Lyme doesn't exist in Texas."

Posted by Lymetoo (Member # 743) on :

HA.. Lyme doesn't exist in Texas. What a laugh.

Well, he may just be feeling better because he's not herxing. The Lyme could come back full force.

I wouldn't decide ANYTHING by the results of the CD57.

I'll PM you.

Wish others would weigh in here!!

Posted by gwb (Member # 7273) on :

Thank God lyme doesn't exist here in OK either. [shake]

Posted by street129 (Member # 23472) on :

lyme doesnt exist in new york city either... silly rabbit..

Posted by seekhelp (Member # 15067) on :

It certainly doesn't exist here. A few of my friends told me.

Posted by kidsgotlyme (Member # 23691) on :

No Lyme in Tenessee either.....what a joke!!

Posted by jkmom (Member # 14004) on :

I am the mother of a 12 year old girl with Lyme in TX. We were also told "no Lyme in TX". She had a bullseye rash in 2004.

She was dx'ed with strep throat early on, even though she wasn't complaining about her throat and they didn't do a test. But she did get some abx of some type off and on there for a while. Not 90 days though.

She continued to not feel well but was able to manage and go to school and everything. Until 2007 when her headache was unable to be controlled by migraine treatment. Now, she is still housebound and mostly on the couch.

So from that perspective, I would advise you to do whatever you can to get your son to an LLMD and let them tell you he doesn't need to be treated before stopping.

We had to travel out of state so if that is possible for you, I can PM you some names. Most of them do phone consultations between visits so that helps with the cost.

Also, when my daughter started with an LLMD, she took ammoxicillin first. That made her worse for the whole month that she was on it. When she got off from it and on to something else, she was better. But she was a long way from being done.