I have had Lyme/Babesia for almost 5 years and am currently on Bicillin and seeing a homeopath who is giving me supplements. I lost a lot of weight due to stomach problems and am fairly weak.
Anyway, when I do a lot of physical stuff like on the weekend I get to a point that my body actually shuts down. I am wondering if this happens to anyone els.
What I mean is that all of a sudden I will get very cold and my whole body will start to hurt. Then I will feel nausea and headachey and every part of my body hurts.
This is frustrating because I used to go nonstop and I'm having trouble accepting that I can't do the things I want to do.
Does this happen to anyone else and what do you do about it?
Posted by unsure445 (Member # 15962) on :
Yes, this happens to me too. Usually in the evening. I describe it as I want to be "turned off". Its like I don't want to be awake because its just an all over discomfort.
Fortunately it happens later in the day than it used to and less frequently.
Not much you can do about it. Usually I finish what I need to do with my kids and then go to sleep. Its not a good feeling.
I guess it our bodies way of telling us we overdid it. I hope it improves for you soon.
Posted by wendihk (Member # 20554) on :
Does anyone know what is happening to my system that makes me feel cold? It's really weird, no matter what I put on or do I am chilled to the bone.
I am also 5'9" and about 115 lbs. Can it just be that my body runs out of fuel and starts burning ketones?
Posted by canefan17 (Member # 22149) on :
Your body becoming cold is part of the fight or flight response given off by the Adrenals.
It's why we get goosebumps too when we get cold. and the hairs on your body will stick straight up!!
Goosebumps and body chills are a direct result of the Adrenals responding to too much stress. Sending more oxygen to the body/muscles in an attempt to cool you off.
So no coincidence that ater a long weekend or a heavy workout... your body temp would drop and start to "shutdown."
Don't do moer than what your body/adrenals can handle.
Make sure you are supporting your adrenals too.
If you wanna know if your workouts are too strenuous... Know what your avg body temp is...
then hr or 2 after a workout check your body temp... if it's unusually lower than normal it means your body can't handle that workout.
After a workout your body temp should actually increase if you are healthy.
Posted by map1131 (Member # 2022) on :
Sounds like your sick body is screaming for help. Maybe it's screaming STOP?
We don't do a very good job listening to our powerful machines and it's needs and wants. We just think we have to keep going at the rate we did before our body was so ill.
I can't explain the cold part of your shut down.
Pam
Posted by wendihk (Member # 20554) on :
I have noticed that since I have been so sick and lost a lot of weight my body temperature has been low as well. I have read that quite a few people on here also have low body temperature.
What can I do to help my adrenals? My homeopath had the infectious disease doctor run bloodwork for my thyroid and everything came back normal.
It is frustrating that I feel so weak and icky and most of my bloodwork has always come back normal. I mean, how is this possible?
The only thing that always shows up is that I am anemic.
Posted by canefan17 (Member # 22149) on :
wendihk,
You can't go by thyroid blood tests.
It's what's happening at the cellular level that we don't see.
For example, Lyme Disease, heavy metals, etc these things can bind to hormones IN THE BLOOD and render them useless.
So what you see on thyroid blood tests is not always what your body is getting. Sure it's what's in the blood... but that's irrelevant when dealing with Lyme.
Go off of symptoms and be willing to do something about it.
There's a lot of good information here if you SEARCH adrenals or thyroid.
Work on your adrenals first. Maybe get a cortisol saliva test.
^^^ amazing website... will help you determine what your issue is.
Posted by Keebler (Member # 12673) on :
- Echoing canefan:
ADRENAL support pretty much screams out here. Huge issue with lyme and sounds like a huge matter for you to investigate. And, LISTEN TO YOUR BODY. Stop. It is screaming for rest. Pacing is important.
Topic: NATURAL SLEEP - Links to articles & supplements -
Posted by wendihk (Member # 20554) on :
One quick question. I just was online reading about adrenal fatigue and everything I read said that people with this tend to be overweight. Everything else seems spot on. How come I'm underweight?
Posted by sutherngrl (Member # 16270) on :
From what I've read ppl with adrenal fatigue in general, loose weight or can't gain weight.
Posted by lymebytes (Member # 11830) on :
Yes. I actually can be hit w/a feeling of "fever" though and if I take my temp, I don't have a fever. I feel utterly weak, tremory, nauseated and fogged with episodes like this. I can only say I feel like I am knocking on deaths door...then it will suddenly disappear. I am always surprised I survived it, it is that bad.
I have also lost weight. Weight loss has happened twice for me, in the beginning w/severe stomach issues. I had Bartonella and H.pylori. When I overcame both, I gained weight way beyond what I wanted.
Then I was bitten by a cat and reinfected w/Bart and next came H.pylori - I lost 30lbs. the last year, I am just now getting it all under control again.
Get tested for H.pylori, it can make everything much worse. There are specific abx and PPI's to treat H.pylori and thankfully stomach issues resolve within a few weeks. For some reason w/me Bart and H.pylori go together and then weight loss followed.
I recently posted about this "co-infection" my LLMd says can be brutal.
Posted by Keebler (Member # 12673) on :
- Adrenal fatigue can cause severe deviations at both ends of the scale. Typically, those with Addison's are severely underweight.
However, if lyme is involved one can also have Addision's and be either very underweight or very overweight. As with other symptoms, lyme patients' symptoms vary greatly. One common factor those is a major dysfunction of one or more systems/organs/functions of the body.
That dysfunction can take a wild wild and be all over the map at various points in time. ---
Posted by Keebler (Member # 12673) on :
- Remember that lyme really messes up the HPA axis (Hypothalamus/pituitary/adrenal network). The pituitary has much to do with weight/growth. Mess up any part of the endocrine system and other parts suffer, too.
For those with weight gain (but also those with weight loss), this book is specific to lyme and other chronic stealth infections. The author discusses the endocrine connection and effects of STRESS on a person with such infections.
You can read customer reviews and look inside the book at this link to its page at Amazon.
. . . It seems likely that these bacterial species could serve as biological indicators of a developing overweight condition.
Of even greater interest, and the subject of future research, is the possibility that oral bacteria may participate in the pathology that leads to obesity. . . .
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Posted by wendihk (Member # 20554) on :
My stomach problems are actually mainly Gerd and gastroparesis due to a partially paralyzed vagus nerve. This is all attributed to the Lyme/Babesia.
I have had every gastric test imaginable and this is what we've come up with.
However, I do believe now that I suffer from the Adrenal Fatigue but a lot of the symptoms are the same as for Lyme.
This is so confusing....
Posted by Keebler (Member # 12673) on :
- Wendi,
You may have mentioned earlier and I may have missed it. I'm assuming with stomach problems that you are already on a gluten-free diet? If not, that can make a huge difference not only in stomach pain, function but also with full body pain, fatigue and brain fog. It's amazing.
And that is why most LLMDs strongly suggest that their patients are gluten-free, it makes that much difference. Oh, it would cure lyme but, for many, healing in nearly impossible in the presence of gluten.
Also you mentioned that your homeoopath is giving you supplement. If only homeopathic, you may not be getting what you need. If your homeopath is also a ND or L.Ac., then they'd be trained with herbs and other nutritional supplement as well. But, if just a homeopath, you may not have the full "menu" of options.
You mentioned your body "shutting down" - well, there are also considerations of the heart and blood pressure - and the mitochondria which can be severely damaged by lyme.
Mitochondria are the tiny little "batteries" inside our cells that give us energy. With mitochondrial dysfunction (common to lyme), all bets are off. It can be very dangerous - and damaging - to push a tired body too hard.
Much more here about all that - and what can help:
Nutritional Supplements in Disseminated Lyme Disease
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Posted by canefan17 (Member # 22149) on :
wendi,
Cortisol saliva test (get it from community pharmacy(don't need s cript)
Cost 120 bucks or so.... you'll know quickly whether you have adrenal fatigue or not.
I'd say 99% of people with Lyme do. It's inevitable.
All the stress placed upon the body... your adrenals eventually give-way.
And unless you support and/or defeat Lyme... then you will continue to be confused between symptoms of Lyme and symptoms of endocrine (that rhymed <<<< so did that lol)
Posted by Keebler (Member # 12673) on :
- This book, by an ILADS member LLMD, holds great information about treatments options and support measures, including discussion about ADRENAL matters:
You said you're seeing an Infectious Disease doctor?? Ooops! Unless you have hit the jackpot (VERY unlikely), they DO NOT know Lyme and co-infections well, nor do they understand all the ramifications of these diseases well.
Please read all the info at the top of the Medical Questions about Lyme Literate doctors, ILADS, etc. You need a Lyme Literate doctor. I doubt that is what you are seeing.
And, it sounds like you are doing way too much, given that you are now ill, and need to accommodate that. Rest is essential.