Sorry just had to show my frustration with this disease!!!!!!!!!!!!!!!!!
Well the last 3 months my feet hav e been feeling cold/swollen on and off. It is a horrible feeling as if my shoes are to small and my feet are being squished. The cold feeling is superficial as when I touch them they are actually warm.
I have also had the electric feeling in my spine for the last three months on and off. I can't remember what its called, when i put my chin to my chest it feels like I am being electrocuted in my legs and up my back.
Fallowing those two symptoms I have been slowly losing my ability to walk and my legs are becoming stiff...
I have an array of others symptoms and have been in treatment for about 15 months now. Positive IGM on 5 bands. Original diagnosis MS. These symptoms got worse when I started amox/doxy 2 and a half months ago.
Can anyone else relate, am I ever going to get better???
Posted by lymers (Member # 21512) on :
You may be herxing. I, too, had the electric feeling in my spine when I'd put my chin to my chest. This sensation went away with treatment and hasn't come back. It's been over 1 1/2 years now without this symptom for me. Still in treatment, though.
Lymers
Posted by lymebytes (Member # 11830) on :
Hi, It is more than frustrating, it is insane.
Herxing is awful and really everyone of us is different on how long it can go on. Lyme Disease treatment is a marathon not a sprint as one of my LLMd's say. Make sure you have been tested for co-infections and will be or are treating those as well.
It will take time, but everyone is different.
Check out the link at the bottom of this post and here are some links that may interest you: