So yesterday my daughter and I went to see her LLMD for an appt. She was diagnosed in Nov. 2009 with Lyme, Bartonella and Rocky Mountain Spotted Fever. We have been going for appts every 4-6 weeks.
Currently she is taking Zithromax, Cipro, Minocycline and Zoloft. The dr. told us that her Bartonella test came back negative, it has been coming up positive since Nov. Her white blood count is finally normally, which it hasn't been since the beginning of Oct. 2009. Also her sed rate is normal, which hasn't been since Oct. 2009.
Her symptoms have been getting slightly better. The dr. thinks she may be going into remission with the lyme and that she has kicked the bart.
Of course we are so happy, I'm just worried about being so optimistic to only get my hopes crushed. Could this really be gone?
What does everyone think...am I getting my hopes up for nothing?
Posted by tls122269 (Member # 23200) on :
Anyone have any thoughts or opinions?
Posted by lymers (Member # 21512) on :
How old is your daugher?
Lymers
Posted by tls122269 (Member # 23200) on :
She just turned 18.
Posted by cactus (Member # 7347) on :
Great news that her symptoms are improving!
Sounds like she is making positive progress.
For now, I would just follow your LLMD's advice and keep doing what you're doing... Sounds like she's in good hands.
Posted by Pinelady (Member # 18524) on :
Great News!
Posted by Lymetoo (Member # 743) on :
Just don't let her stop abx too soon. She should be symptom free for at least 2 months before stopping them.
Sounds like great progress!!
Posted by lymers (Member # 21512) on :
Her age is probably in her favor for getting well. The younger, the better when the goal is cure.
Lymers
Posted by WildCondor (Member # 434) on :
Listen to Lymetoo!
Posted by Keebler (Member # 12673) on :
- Glad she is making progress. Don't stop too soon, though. You might also back up with things like Olive Leaf Extract &/or Allicin protocols as a transition later on. ------
CONTROVERSY CONTINUES TO FUEL THE "LYME WAR" - 2007
" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."
-
Posted by tls122269 (Member # 23200) on :
I was looking thru some of my old posts and saw this one. We were so excited to think our daughter was going into remission. That was back in march 2009.
I should have listened to all your posts. We weaned her off her meds and sent her off to college (6 hours from home). Well apparently she went wild and so did the Lyme. By the time of her last exam she looked like the walking dead.
Why do 18 year olds think they know everything? She didn't sleep, ate like crap, partied too much and stressed herself out. So it seems we are kinda back to square one. Back to the dr we went and back on all the meds and a few more than before.
Zithromax, mino, zoloft, tindamax pulse. Needless to say she had to take a leave of absence this semester and we are trying to get her back on the right track. She has been much better with taking her meds, but she is still trying to be like all her friends. She will go out and stay out hanging with her friends and then she is just out of commission for 3 days.
Why doesn't she get it? Why can't she take care of herself? I go out of my mind worrying and she just keeps pushing it to the limit. I don't know how to let go and let her fall on her face. It is making me crazy.
On a positive note we went to the llmd yesterday and she said she seems to be making slow improvement, but at least improvement.
She said something I didn't quite understand. When she first got the western blot she had 3 IgM bands and no IgG...now she has 3 IgM and 4 IgG bands and the dr said that is good. Can someone explain?
As always thanks for listening.
Posted by BoxerMom (Member # 25251) on :
More bands = more antibody production. Her immune system is fighting.
I think many Lyme patients discontinue treatment too early out of their own optimism. And the doctor's optimism!
Relapse is common in this illness. I'm so sorry.
As for 18-year-olds, they still have the perspective that a GREAT life is ahead of them, whether they take responsibility to create it or not. (Speaking of optimism...)
I could not have imagined my 20 year battle with Lyme at the age of 18. It would have been inconceivable to me.
Keep her on meds well past her resolution of symptoms. If she is going to continue her "lifestyle," she needs to be rid of these infections. As a young person, that may be enough. (As in she may not require constant vigilance and lifestyle modification.)