Really blunt question, don't know the answer to. Don't know how many people do that are on
treatment. On 3 gr. iv rocephin, zithromax iv (3x week) and 200 doxy. Feels like my heart
is vibrating (on a beta blocker) and mind wise I haven't felt myself since November, but some
days its really bad. Living in a fog, nothing lifts it, feels like walking dead. Take xanax
when I have to some days don't need it at all, but the strong willed person is out and doesn't
feel like she's coming back. How do you believe you are stronger than this and get yourself
back? Hormones play a role, treatment, the disease itself, trying to do what I do everyday,
but a day like this doesn't seem possible. How do you cope and convince yourself its a symptom
and not believe you're not strong - I've gotten through this as we all have, but... Better health to all.
Posted by DJP (Member # 5893) on :
You are strong and you will be back! It took me about 5 years, but I think I finally beat this disease. Keep pushing, you will get through. You know these are symptoms and you will get through them! Hang in there! I can remember talking with someone and as I stood there listening I was thinking that I'm dying..I'm dying right in front of their eyes and they don't even know it.... Have you been treated for depression. I'm a pretty optimistic and strong person, but I had to take depression meds for a while. My LLMD convinced me it was a good ideas so my body could focus on healing the Lyme. It did make a difference. I don't know your story, but I had Lyme while my 2 1/2 year old and 14 mos old children had it as well. Talk about hell, but you know what, I always heard stories worse than mine. Do what you have to do for yourself, if you need to feel bad for yourself, that is okay, do it. Everything about this disease sucks! When you feel good, then do what you can! It will get better, again and again.... I wish you the best...
Posted by lyme in Putnam (Member # 11561) on :
Thank you DJP. I thought feeling like this was over and then bam, back with a vengeance. I hope you continue on the road up. Thanks for the ear.
Posted by DJP (Member # 5893) on :
I know, it goes like that! You feel better and get a taste of life and then bam you are back down again. It's a rough cycle and I hope it gets better soon. Keep up the fight! We are all pulling for you. Deb
Posted by Starfall1969 (Member # 17353) on :
I'm right there with ya.
Been treating for a little over a year, started feeling better, LLMD took me off one of my meds because I was showing such significant improvement.
Started feeling like myself again, started exercising again, even had my old libido coming back (never thought I'd see that girl again!).
Then out of the blue, BAM! I felt like I was on my deathbed. So bad yesterday I felt like going to the ER.
Called LLMD for advice, and he restarted rifampin.
I feel so defeated. Thoughht I was finally on an upswing and didn't expect to be this far down ever again.
Just not willling to give up. I have too many things I want to do. I graduate from seminary in May, and I want to be there, not in bed with a freakin' lyme flare.