I have zero medical experience so i have no clue what this could be but thought someone here might relate or have an idea
For the last three days i have pelvic pain in my right hip bone area- just above the hip bone and it sometimes radiates to the back or side. I can touch the top of my pelvic bone on that right side and it is tender. I get bladder pain/ or what might be lower pelvic pain along with this-almost like my monthly "time" kind of feeling.
My first thought was appendicitis but it doesnt fit the bladder and bone pain part. Anyone else with something similar or anyone with an idea what this might be?
Oh and i forgot to add- i had an ultrasound of my abdomen about 3 or 4 months ago to check my gall bladder and kidneys and it came back fine- i imagine if my appendix was inflamed at that time they would have seen it but is it possible that any of these organs could be in trouble 4 months later without any signs having showed up before?
Posted by Lymetoo (Member # 743) on :
I'm confused as to where the pain is.. but was thinking GB myself. You said ABOVE the hip??? Not sure how that relates to "pelvic pain?"
What meds are you on for Lyme?
Posted by cantgiveupyet (Member # 8165) on :
I agree with lymetoo could be IC...
sounds a lot like what I started out with especially the pain near the hip.
I also would suggest going to your GYN and having them do cultures to rule out yeast and other infections that could cause symptoms.
Also , sounds like it could possibly be the pelvic floor muscles as well. Especially the pain over the pelvic bone. Your pelvis could be out of alignment causing these pains.
Here is a good site that lists some common symptoms
I'm going to see a urogynecologist who hopefully does know this!
Posted by lyn8 (Member # 24356) on :
I have had exactly the same, no findings.
Posted by cantgiveupyet (Member # 8165) on :
Faith- I would suggest contacting the two sites that lymetoo mentioned and ask if there is a Dr In your area- often the average gyn even a Urogyn doesnt know how to evaluate the pelvic floor muscles or know about IC.
Posted by greengirl (Member # 25316) on :
OK, so I have these symptoms, too, on the left side. What's the word on whether this is something separate from or related to lyme?
Posted by cantgiveupyet (Member # 8165) on :
greengirl- i havent gotten many answers to this..some LLMD feel that the pelvic symptoms are Bart related others say lyme loves the bladder.
Mainstream Medicine has other theories..some are valid.. such as the pelvis going out of alignment after a fall or other injury.. and then causing the pain and symptoms. For me my muscles are so tight that they pull the pelvis out of alignment.
do you have any other pelvic symptoms?
Posted by Remember to Smile (Member # 25481) on :
Think ENDOMETRIOSIS! The Endometriosis Assn is a caring, giving international non-profit educational, research and support org. If you contact them, they'll send info for free. And you may wish to join. (414) 355-2200.
Endometriosis is strongly linked to Fibromyalgia, and Fibromyalgia is strongly linked to Endometriosis. Fibro is aka LD Complex. All are linked to Candida issues.
I'll share some of my personal experience in hopes you (or your sister, daughter, etc.) may not suffer similarly. NOTE I'm not a medical professional, just writing to give you other ideas.
I had, and sometimes still have (as recently as yesterday!) pains similar to those described (even though I lost my R ovary and R fallopian tube in surgery last year). I call it my endo spot. Let me go back:
Summer 1989 contracted Lyme. Big EM rash and later positive blood work. Only got one wk of abx but had "sleeping sickness" for 3 months. So, walking Lymie...
Summer 1995 - STRESS! Water damage and mold. (Mold problems can aggravate LD complex symptoms.)
Soon after, outrageous pain in "lower R quadrant." I get emergency appendectomy I didn't need. Pain was SO intense, surgeon cut me open before blood work came back showing no infection. So, NOT appendicitis. Endometriosis had deformed my appendix. Post-op, I COULD NOT WALK UPRIGHT FOR NEARLY A YEAR.
Those who know endometriosis understand that one should NOT do surgery with a scalpel 'cause it spreads endo. Interestingly enough, the Lyme Bb hides out in scar tissue. Hmmmm...
Tx by an acupuncturist got me walking again. He started me on a Candida control diet, saying it was the only way to make swift progress. Hmmmm... LD patients must control Candida, too.
By 1997 I had crippling upper body arthritis and couldn't even hold a spoon to feed myself. Was dx with Fibro. No abx.
Horrible knee trouble, shoulder pains, poor sleep, declining strength, blah blah blah (untreated Lymie). Eventually sent to orthopaedic surgeons. I finally gave in to cortisone injections in my knees, then shoulders, elbow, wrists. I just hurt so much and couldn't function well. ILADS urges NO steroids for LD sufferers, but I knew not.
2007 arthroscopic knee surgery
Summer 2008 - Ambulance to ER with severe abdominal pain. Fibroids? My period began in a restroom in the ER. Sent home.
2009 arthroscopic wrist surgery
Summer 2009 - WOW! The Endo is back worse than ever! SCREAMING and writhing in the ER with lower R quadrant/pelvic pain. Gallstones and ovarian cancer were considered. Required Rx opiates for weeks. Experienced gyn surgeons did laproscopic removal of endometrial adhesions on my abdominal wall, uretur, and bowel.
2010 - Clearly disabled by the Lyme Disease Complex and trying to get treated by a LLMD.
There are gyn LLMDs. Consider posting a request for a LLMD gyn in your area? Also, the Endometriosis Assn will provide names of gyns in your state who are members of their Assn. Very few are.
And note to the guys: Males have been diagnosed with endometriosis.
My deepest apologies to anyone who can't sleep well after reading this post! Smile
Posted by Remember to Smile (Member # 25481) on :
Tutu, et al. I'm so sorry I didn't look at the IC site before I posted. I didn't know what "IC" stood for and was stuck in my own yeast/lyme/endo/fibro paradiem.
LYME DISEASE PATIENTS UNITE! Isn't IC just LD Complex, too?
The following is cut & pasted from the Interstitial Cystic Association (ICA) website. Read, connect the dots, and FORM A GROUP PEOPLE. (That's singular. Just ONE group, please.) ************************** Overlapping Conditions
Research has shown that allergies, irritable bowel syndrome, and sensitive skin are the three most common overlapping conditions in the IC population. However, there are many other overlapping conditions that affect people with IC.
* Individuals with allergies, migraine headaches, endometriosis, irritable bowel syndrome, asthma, or sensitive skin may have a greater chance of developing IC. And, some studies have reported that IC patients are as much as 100 times more likely than the general population to have irritable bowel syndrome.
* Vulvodynia, a syndrome marked by various painful vulvovaginal symptoms, is the fourth most common IC related condition. It is thought that a common defect in the bladder and vaginal tissues may contribute to both conditions.
* Individuals already suffering from IC may also have a greater chance of having fibromyalgia or chronic fatigue syndrome.
* IC patients have been shown to be 30 times more likely than the general population to have systemic lupus erythematosus.
* More recent research has revealed that IC may also be connected with other chronic conditions, such as panic attacks and pelvic floor dysfunction.
Learn more about these and other overlapping conditions.
Revised February 25, 2010 ************************** Posted by Need Lots of Help (Member # 18603) on :
Also think, OVARIAN CYSTS!!!
I get them often. Whether it is a symptoms of lyme or what, but I get these cysts all the time. Plus, my uterus was Retroverted, and falling.
I have had the cysts removed several times, then I finally had a hysterectomy and a bladder lift. Just giving you other ideas!
Posted by Lymetoo (Member # 743) on :
greengirl.. I didn't have bart, so I blame my IC on Lyme.
no worries, "Smile"! ( I also blame lyme for my endo .. former endo )
Posted by steve1906 (Member # 16206) on :
I've had the same right side hip area since I got Lyme three years ago. I've had all the test...I mean all the test and all they ever told me was the pain is comming from my spin????
Roy
Posted by Lonni7Lyme (Member # 25363) on :
hey everyone, thanks so much for the responses- as usual i got tied up and finally got back on here to see the posts
You know ALL of those things have run through my mind- cysts- i get them off and on so that is a strong possibility- so is pelvic floor problems, endo or IC
It's all so mind boggling but thank you for the info Cantgiveupyet and website remember to smile-
I will let you all know if i find out anything from my gyn- i DO have candida issues so that might explain it too--- Gee it could be ANYTHING under the sun! lol!
That's what is so lovely about these "internal" issues- you can't visibly SEE what's going on so you have do this detective work and then hit different doctors till you find a "match".
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( I also blame lyme for my endo .. former endo )