I've had it in my feet every day for over a year now. Sometimes I can't have my feet touch the bed it's so painful. The only thing that has helped ME is a hot bath and it's only temporary.
I'm debating as to whether I should go to an LL neurologist. Any recommendations for one in CT or NY?
Has anyone had this resolve with abx? Have you done IVIG for it? Does neurontin work to mask the pain? Are there any effective natural remedies?
Posted by sammy (Member # 13952) on :
Have you tried B12 shots or Metanx (this is an RX B12, B6, folic acid tablet)?
Neuropathy is my worst symptom. I take Metanx, am on antibiotics and treating with Hyperbaric oxygen therapy. I'm hoping that my body will be able to repair itself once the infectious load of Lyme and Co is under control.
Posted by MorningSong (Member # 19989) on :
May want to also ask your doctor about Alpha Lipoic Acid. Pubmed and other medical journals show it helps with diabetic Neuropathy so maybe it can help with Lyme as well.
Was researching it earlier today because my LLMD is starting me on it and I was researching its benefits.
Posted by hshbmom (Member # 9478) on :
Have you considered IV immunoglobulins?
IVIG
Posted by kissygoose (Member # 21314) on :
Haven't seen the LLMD yet but my PCP put me on Lyrica and elavil for peripheral neuropathy.
I have it real bad in both my hands and my feet.
Posted by Tracy9 (Member # 7521) on :
I see an LLD neurologist in CT and I tested positive for small fiber neuropathy. You are describing the symptoms of it. Lyme and Bart cause it. I am being treated with IVIG. Infrared sauna also helps immensely.
If you have SFN you need to find out because it is degenerative and you will only get worse if you aren't treated. The only way to diagnose is a punch skin biopsy. I think a lot of people with Lyme have it and don't know it.
Posted by lpkayak (Member # 5230) on :
mine went away with tx and time
Posted by farraday (Member # 21494) on :
Mine appeared suddenly while in the hospital on serious IV meds. That was in 2003 and I still have it. But it is slowly improving. At first I had to sleep without any sheet or blanket on my feet....it was like pins and needles!
My pain doc sent me to the lymphedema therapist (see my post on it) and that helped some. I take B12 shots, alpha lipoic acid, milk thistle. I try to move my feet as much as possible. My husband also has it. He uses a heated foot bath with epson salts.
I wear big fuzzy bed socks to protect my feet from the sheets.
Posted by Starch (Member # 16205) on :
acupuncture has helped me. Definitely takes the edge off but doesn't completely get rid of it.
Posted by Pinelady (Member # 18524) on :
Epsom salt soaks helped me a lot.
Posted by Tracy9 (Member # 7521) on :