LymeNet Flash: Longest you have been on Flagyl?

This is topic Longest you have been on Flagyl? in forum Medical Questions at LymeNet Flash.

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Posted by lymekuda (Member # 23972) on :

Just wondering about the length/dose that people have been on flagyl and what kind of side effects can come to arise long term? Cancer or any other major side effects?

Posted by Lymetoo (Member # 743) on :

Watch for peripheral (sp) neuropathy.... pain and tingling in the extremities.

Cancer... not likely.

I took it off and on for 4 yrs.

the BIG side effect for me was DEPRESSION... keep an eye on that!

Posted by WildCondor (Member # 434) on :

Yes, Lymetoo is correct, FLagyl can cause tingling/numbness in some cases, so do not assume that is a herx and notify your doctor.

I was on Flagyl for 2 months straight and then on a pulse of 4 days on 3 days off for many months.

Make sure you get your liver enzymes checked.

Flagyl, for me was one of the best meds I ever did and it was key in getting me well again. Make sure you take the full dose, and do not under treat. [Smile]

Posted by lymekuda (Member # 23972) on :

Thanks guys,

I have been on Flagyl before and was concerned about the future risk of Cancer, I have found some studies where Lab mice developed Cancer for long term high dose...

Thank you for your input!

P.S. I can handle the tingling/numbness as I already have/had it all the time anyway...

Posted by Beachinit (Member # 21040) on :

I consistently get neuropathic symptoms at 1500 mg total flagyl dose. So I now take 250 mg 3x / day
for 2 days only. I would like to work it into
my antibiotic rotation as often as possible as flagyl (and bactrim) gave me my brain and memory function back big time. I am pursuing Babs,Bart,and Bb so I can not squeeze in the flagyl as often as I would like. Currently taking zith 250 mg daily, bactim ds 2X/day every day. Artemisinin fri,sat,sun. Doxy 200 mg 2X/day
monday thru thursday. There do not seem to be enough days in the week right now.

Beachinit.

Posted by randibear (Member # 11290) on :

it seems doctors prescribe different amounts. my doc said 250 twice a day for two weeks, then off two weeks.

Posted by Lymetoo (Member # 743) on :

lymekuda... but you don't want that neuropathy to become PERMANENT. So let your dr know if it gets worse.

Posted by lymekuda (Member # 23972) on :

Can it really cause permanent damage to your nerves? Thanks everyone for the replies!

Posted by Jasmin (Member # 19959) on :

I was on it the last 2 months and have been doing so well, I'm looking to stay on it the next 2

months. I am concerned about my liver, but I had my liver enzymes tested and am trying to keep up

with my liver support supplements. (Why am I the one who has to fill 500 capsules for the family?)

I have had nothing but good with flagyl, except for the two really bad herxes and the depression the first few days I started it.

The depression was weird... after two doses it hit me just like post partum depression... and I

didn't know it was a side effect so I googled it and searched this forum.

My favorite quote from my search, "It's just the flagyl talking."

Posted by lymekuda (Member # 23972) on :

Hey Jasmin,

I was on flagyl for 8 - 10 months no problems with my liver! Do make sure to get your blood work done regularly!

Take care, hope you are well soon!

Andy

Posted by Jasmin (Member # 19959) on :

Good to see I'm not the only one who has been on it more than a month!

Posted by Haley (Member # 22008) on :

I think permanent neuropathy is the biggest concern.

I have only taken it for 2 weeks I had the tingling and the spaced out feeling. I also found it to be hard on the gut - loose stools.

I know that I need to do it again. I may try IV flagyl or Tindamax.

Posted by migs (Member # 16496) on :

quote:
Originally posted by Beachinit:
I consistently get neuropathic symptoms at 1500 mg total flagyl dose. So I now take 250 mg 3x / day
for 2 days only. I would like to work it into
my antibiotic rotation as often as possible as flagyl (and bactrim) gave me my brain and memory function back big time. I am pursuing Babs,Bart,and Bb so I can not squeeze in the flagyl as often as I would like. Currently taking zith 250 mg daily, bactim ds 2X/day every day. Artemisinin fri,sat,sun. Doxy 200 mg 2X/day
monday thru thursday. There do not seem to be enough days in the week right now.

Beachinit.

Flagyl and Tinidazole definitely give me my brain back too (along with yeast infections). I get a heavy head and mildly retarded until I add one of them.

I've been on and off Tini/Flagyl for almost two years...mostly at 1500mgs/day. I don't want to get cancer either but just can't function without the stuff.

Posted by lymekuda (Member # 23972) on :

Hey Migs,

WOW I am not the only one from Victoria BC! Do you see Dr. R in Seattle?

How are you doing with the Lyme and how long have you had it now?

Have you tried VSL #3 for yeast? http://shop.vsl3.com/shared/StoreFront/default.asp?CS=vsl3&StoreType=BtoC&Count1=981426417&Count2=898566842

Take care,

Andy

Posted by lymekuda (Member # 23972) on :

This is actually the SUP that cured me of a full year of yeast! I am talking bad yeast, all the gross symptoms accompanied by vomiting/thrush etc... It is called Phytostan and I am sure you could buy it for any health food store!

http://www.smartbomb.com/itphy15.html?utm_source=mercent&utm_medium=shopcompare&utm_content=itphy15&utm_campaign=mbsdb&mr:referralID=97a6492b-5b90-11df-a218-0026b9571fcb

In my opinion the stuff is amazing for yeast!

Posted by Karen Mc (Member # 23354) on :

Wow, I have been on Flagyl (went off for a round of Coartem) but will be starting back on it.

I didnt put it together but I was having severe tingling and numbness in legs and fingers.

It has gotten better but I will keep an eye on it once starting back on Flagyl to see if it increases.

I too was more concerned with possible liver damage.

Posted by migs (Member # 16496) on :

quote:
Originally posted by lymekuda:
Hey Migs,

WOW I am not the only one from Victoria BC! Do you see Dr. R in Seattle?

How are you doing with the Lyme and how long have you had it now?

Have you tried VSL #3 for yeast? http://shop.vsl3.com/shared/StoreFront/default.asp?CS=vsl3&StoreType=BtoC&Count1=981426417&Count2=898566842

Take care,

Andy

Hey Andy. If you're the Andy from Sooke (or Metchosin maybe?) I talked to you on the phone a while ago. Been going almost 2 years now, Dr. R had been helpful but his philosophy of being 80% and never curing doesn't work for me. I will be cured. I have been my own LLMD for a while and seeing Dr. J in DC next.

Posted by lymekuda (Member # 23972) on :

Hey Migs,

Sorry Lyme memory is jogging me at the moment! Yes I am the Andy from sooke... OHHH is this Miguel?

You feel that way about Dr. R? What happened to make you think that way? Did he just stop treatment to soon for you?

Good luck with Dr. J... What is it that you feel that he will do different for you?

Thanks,

Andy

Posted by Rumigirl (Member # 15091) on :

I know someone who got PERMANENT neuropathy from Flagyl, and it's VERY painful many years later, so be careful. He's on around the clock narcotics for the pain now.

The cyst busters are essential, I think, but you have to be vigilant.

Posted by BoxerMom (Member # 25251) on :

migs - I tried to PM you, but your mailbox is full.

Posted by lymekuda (Member # 23972) on :

Thanks Rum girl, that is good to know! I don't think I will be taking flagyl anymore, the grapefruit seed extract seems to be working well!