This is topic Who here is on LDN and what are your experiences? in forum Medical Questions at LymeNet Flash.


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Posted by bcb1200 (Member # 25745) on :
 
I'm starting 4.5 mg tonite. I heard I should start slowly but only have 4.5 capsuls from Gideon's.
 
Posted by dmc (Member # 5102) on :
 
I couldn't take it while doing abxs...herx or reaction but thought I was dying 1 hr. after taking it. Heart, palps, difficulty breathing,sweating, didn't just happen once but everytime.

Note: Prior to Lyme treatment I took LDN for 2 yrs without any troubles for my supposed MS. Just horrid when on abxs.

Do a search here. SEARCH button is above under the "post a poll".

search for LDN or low dose naltrexone. There are lots of comments.
 
Posted by keltyl (Member # 14050) on :
 
4.5 is quite alot to start. I started, and am still on 2 mg. Next time I go, I'm ready to have them up it.

I had sleep problems at first, in fact last year I quit b/c of it. Now I think it helps a little.

Hard to say if it helps otherwise, I'm on and off so many things.
 
Posted by bcb1200 (Member # 25745) on :
 
I've read wonderful things about LDN stimulating the immune system. But I have heard I'm supposed to start 1.5, 3.0 and then 4.5.
 
Posted by DeniseNM (Member # 11182) on :
 
Can you open the capsule and pour most of it out? Everything I've read says to start low and go slow. I started on 1/2 of one capsule for a week or two, then upped. Can tolerate 3 mg now, no problems, i actually think it helps me sleep.
 
Posted by FunkOdyssey (Member # 15855) on :
 
I worked up to 4.5mg by starting with 0.5mg and increasing the dose by 0.5mg weekly. I was able to avoid any serious sleep disturbances or strong herx reactions this way (I had such extreme crazy herxing when I tried to start at 4.5mg I had to stop taking it).
 
Posted by bcb1200 (Member # 25745) on :
 
How did you do this? Did you open the 4.5 mg capsuls and dump some out?
 
Posted by psr1 (Member # 22957) on :
 
That is what I did: open the capsules and put half in water and stir. I am taking 3 mg and it helps a great deal, but I had to start with tiny amounts and work up to the full capsule
 
Posted by FunkOdyssey (Member # 15855) on :
 
I made my own LDN solution from 50mg tablets with 50ml water, so 1ml water = 1mg naltrexone. Then you can administer whatever dose you'd like with a measuring dropper.
 
Posted by bcb1200 (Member # 25745) on :
 
Am I supposed to always dissolve in water? I was just taking the 4.5 mg capsule.
 
Posted by keltyl (Member # 14050) on :
 
No! You are just supossed to take the capsule.
 


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