LymeNet Flash: Proof that Chronic Lyme exists

This is topic Proof that Chronic Lyme exists in forum Medical Questions at LymeNet Flash.

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Posted by gwb (Member # 7273) on :

But, will it make a difference in IDSA guidelines????

http://www.hindawi.com/journals/ipid/2010/876450.html

Gary

Posted by sickpuppy (Member # 23846) on :

Great as well as depressing article. Thanks Gary.
Not sure one article is gonna change the IDSA guidelines.
What's it gonna take? How many people have to get CLD?
Maybe it'll take special, powerful, famous people getting it--lots of them.

Posted by MorningSong (Member # 19989) on :

Thanks Gary. I am glad these type of articles of making it into Infectious Disease Journals.

Recently insurance denied IV coverage stating that there were no published articles in journals regarding successful treatment of Chronic Lyme Disease.

It was interesting that 4 NIH trials found chronic lyme disease existed. Thank you for sharing. Printed for future reference.

Posted by littlebit27 (Member # 24477) on :

I would love to say this will work but I honestly don't believe it will.

I've told my mom, who is an RN, about the NIH studies and she still doesn't believe in CLD. She worked at NIH for a while and really believes in what they do and their trials and such. Yet, she still doesn't believe I have Lyme Disease.

Definitely a good article though, and the more that come out the better!

Posted by massman (Member # 18116) on :

Thanks Gary.

Good article. Unfortunately very true.

Posted by Lymetoo (Member # 743) on :

Thanks, Gary. It's like hitting your head on a brick wall, isn't it?

Posted by littlebit27 (Member # 24477) on :

quote:
Originally posted by Lymetoo:
Thanks, Gary. It's like hitting your head on a brick wall, isn't it?

Yes, that's the feeling I get when I try to talk to my mother, lol. I think it might be LESS painful to bang my head against the wall!

Posted by sickpuppy (Member # 23846) on :

I just don't even know how you can deny that CLD exists. I herxed my brains out on mepron and zith last week. Why would that happen if there was nothing to kill? I didn't feel that way before and I don't feel that way now. Was it psychogenic [Roll Eyes]

(sarcasm)? You just can't make this stuff up. If you gave mepron and zith to someone who wasn't infected they would not herx for 8 days. What the $^&% !

So you might debate the effectiveness of this treatment or that treatment but this should not lead to a denial that CLD exists. It should prompt more research for a cure.

I just wish that the jerks making these outrageous statements, which fly in the face of research AND real life experience, would get SO sick like we are. [cussing]

Posted by sickpuppy (Member # 23846) on :

...darn IT!!! [rant]

GOSH!

Posted by littlebit27 (Member # 24477) on :

sickpuppy-I hate to think it or say it but I think if they were to experience this maybe they would then "get it." It's sad, truly sad.

Posted by Marrit (Member # 25454) on :

Wow! Daniel Cameron was the doctor who treated Pam Weintraub's son, David,(pp 338-339, "Cure Unknown").
He is taking on a huge responsibility by confronting the big boys at the IDSA.