And yes, I did do a search this time. It sounds like people respect this LLMD, but I'd just like to make sure. Thanks.
Posted by cactus (Member # 7347) on :
I've always heard great things about that doc. For lots of years.
Posted by LymeXtu (Member # 24590) on :
I just know the wait is LONG I have been on his list for a couple of months and we are still 3-4 months out.
His office told me he only sees one NEW patient a day and follows up with other patients the rest of the day.
Also spends time in home state ( I think it is South Carolina ) so something like 10 days in D.C. then 4 days in South Carolina.
I believe his family is still in South Carolina.
Posted by Sleepusalottus (Member # 26340) on :
I have heard great things about him as well, but yes, long waiting list. I've been told he's very personable, takes time to truly listen to you, and has a great staff.
Posted by mmcmann (Member # 21872) on :
A friend just went to him a few weeks ago and loved him. She had been waiting awhile though.
Posted by Dawn in VA (Member # 9693) on :
A+!
Posted by TF (Member # 14183) on :
Here is an old post that explains his treatment protocol:
(link removed)
He has developed his own pulsing meds protocol and this post also explains his rationale.
A Dr. Puhli is doing the explaining.
(edited by sunnydays to remove more specific info which is unique to this doctor. Also deleted link because the link gives a LOT of info about treatment specifics that we try not to post on Lymenet. If you would like this info, just do a search on Lymenet with doctor's initials and state. I didn't edit the content of the link, but I'm removing the link from this thread.)
[ 06-10-2010, 03:52 PM: Message edited by: sunnydays ]
Posted by seekhelp (Member # 15067) on :
Seeing that thread reminded me of Coltman. I'm guessing he was really a doctor or medical professional.
Posted by Dawn in VA (Member # 9693) on :
Actually, he does not put everyone on IV. But yes, he is a big proponent of it.
Posted by migs (Member # 16496) on :
He is excellent. I was impressed and glad I saw him.
No IV BTW...he put me on cycled orals of M, W, F for three weeks and one week off.
Posted by 17hens (Member # 23747) on :
This is awesome! Thanks so very much, everybody!
Posted by lymetwister (Member # 19590) on :
Be aware, he has a "CMA", Consulting Maintenance Agreement"
A friend of mine went to see him and paid the big bucks for the first visit.
She got home and had an email waiting which outlined this agreement. She wasn't told about this prior to her first visit or even at her first visit.
She had to stop seeing him b/c of thess fees.
She emailed it to me and when I saw it, my jaw dropped. I believe her first visit was close to $1000 which had nothing to do with the membership type agreement.
Here is an Excerpt from the "CMA".
[copy of CMA removed by sunnydays]
So it's clear, I'm not bashing this Dr. at all, as I hear he is great. I just can't afford this kind of money and I do understand why he charges what he does with what he has lost and been through. My only problem is that most of us are weeded out if we wanted to see him due to these huge fees.
I'm only posting this for information purposes only for those thinking of seeing this Dr.
Gary
[ 06-09-2010, 06:21 PM: Message edited by: sunnydays ]
Posted by MariaA (Member # 9128) on :
quote:Originally posted by seekhelp: Seeing that thread reminded me of Coltman. I'm guessing he was really a doctor or medical professional.
Hey, I talked to Coltman on PM a couple of months ago and he was doing pretty well.
Posted by MariaA (Member # 9128) on :
quote:Originally posted by seekhelp: Seeing that thread reminded me of Coltman. I'm guessing he was really a doctor or medical professional.
Hey, I talked to Coltman on PM a 2-3 months ago and he was doing pretty well.
Posted by sutherngrl (Member # 16270) on :
In other words, only the rich can see this doctor.
You are looking at ------- a year out of pocket just for the CMA. Plus office visits that probably are not fully covered by insurance. Plus IVs per month that could be as much as $3000 to $5000 a month. Thats an approximate cost of ---- per year. Am I understanding that right?
There must be a lot of rich ppl with LD!
(edited to remove exact amounts by sunnydays)
[ 06-09-2010, 06:23 PM: Message edited by: sunnydays ]
Posted by sapphire101 (Member # 6638) on :
Hmmm, I just saw this Dr's PA and she spent 4 hours with me and at the end he came in for about 10 minutes which I wasn't expecting. The visit was ---- and I will have a phone consult in a couple weeks for ----.
I don't think we signed anything like the above mentioned. I loved his PA and Dr J was very nice.
Sapphire
[ 06-10-2010, 03:53 PM: Message edited by: sunnydays ]
Posted by seekhelp (Member # 15067) on :
Was Mandy rich in UOS? Posted by sutherngrl (Member # 16270) on :
Seek, I don't know, but maybe she came from a rich family!
Sapphire, are you doing IV's? Sounds like just the IV ppl are having to sign.
Who knows this may be a nasty rumor. It does sound a little over the top!
Posted by sutherngrl (Member # 16270) on :
Sapphire, Just saw how much your phone consult is........geeesh!
Posted by WildCondor (Member # 434) on :
Wow, this is very discouraging! The complaints are piling in about the pulse therapy too and patients are leaving by the busload.
Posted by migs (Member # 16496) on :
I am on the West Coast. Have been to Seattle LLMDs and was going to try Dr. S in San Fran but he was way more epensive and you have to pay 100% up front just to book it.
Not to mention the Seattle LLMD and LLND I saw and phoned are every 8 weeks. The LLND being "in person only" every 8 weeks and she gets mad if you don't buy all her herbs and natural products.
Dr. J was cheaper and I can phone appt for only ---- after 3 months.
Not sure if the treatment is working yet...too soon to tell. I was impressed with his clinic and himself though.
[ 06-10-2010, 03:54 PM: Message edited by: sunnydays ]
Posted by sapphire101 (Member # 6638) on :
Sutherngrl,that is the plan since I've already been on them. The problem is my liver enzymes were sky high but are coming down some. I'm having seizures just like Mandy in UOS. I had 6 yesterday and heading in that direction today.
They won't give me rocephin till my liver calms way down. They have me on seizure meds but so far they are not working. We've been in contact with Kim (PA) for the last couple of days. We don't know what to do. I can't stand this much longer.
My body is freezing up still just like Mandy. I need abx. That stopped it when I was in the hospital. At least, Dr. j's office will get back to you the same day.
A 30 min phone consult is ---- with the PA, I do know that much.
I was impressed with the whole visit.
Sapphire
[ 06-10-2010, 03:54 PM: Message edited by: sunnydays ]
Posted by sutherngrl (Member # 16270) on :
This was actually my second choice on a LLMD.
My step daughter lives in DC, so it would be doable to have a place to stay. But I don't think I could afford his fees. $350 for a phone consult!!!! I don't even pay half that much for a regular office visit. Thats just insane!
Glad I'm not in a situation to have to use him. I love my LLMD and he is making me better with low doses; and he also works at keeping cost down in every way that he can.
Posted by lymetwister (Member # 19590) on :
I do believe that CMA fee is for those doing IV's as mentioned. The girl I know that went there was on IV's so this may be true.
I did cut and paste that excerpt from his contract. I have a copy of it and it is authentic.
Gary
Posted by sunnydays (Member # 25310) on :
Hi all,
I deleted the CMA and some other details because it is considered too much detail. The mods try not to allow excessive details about how a Lyme-treating physician operates to be posted publicly.
Things that specific would be more appropriately shared via private message.
Thanks for understanding!
-sunnydays, Lymenet mod
Posted by seekhelp (Member # 15067) on :
49 posts and a moderator? You have friends in high places? Posted by gatorade girl (Member # 24896) on :
You can pm me if you have any questions.
Posted by sunnydays (Member # 25310) on :
Edited again to take out remaining costs listed. Getting complaints about so much detail being listed.
If you would like the costs for this doctor, call his office or PM some of the people above.
Thanks,
sunnydays
Posted by sunnydays (Member # 25310) on :
Moving to Seeking a Doctor, upon request of other members.
![[Smile]](smile.gif)
I'm guessing he was really a doctor or medical professional.