I was just thinking, I wonder how many people that use to be on LymeNet have actually gotten better and don't come on here anymore and how many are "no longer with us". There's really no way to know....
Posted by nefferdun (Member # 20157) on :
Hopefully a whole lot! I know when I felt well, which actually has happened, I was rarely on here. I was living my life.
Just have to add I really appreciate those of you who do come back to encourage the rest of us. When I am well, If I am ever well, I will try to be as thoughtful.
Posted by Keebler (Member # 12673) on :
- I think it's a splendid thought. Not morbid at all. People out there, living life. It happens. What a grand wish for everyone.
Laura, though, I sense the morbid feeling from this is that you might feel abandoned or afraid you'll miss out on the key to success. There is a vast amount of research and a great number of books for those wanting to learn more.
Here's one place to here from those who are out living their lives after battling lyme + co. ------------------
SUCCESS STORIES -
Posted by sparkle7 (Member # 10397) on :
I think the morbid part meant that people were dead... Is that correct?
I don't know. Maybe people just get sick of trying to get well & make the best of it. It would be interesting to know what percentage really do get well & no longer need the support of Lymenet.
Posted by Lymetoo (Member # 743) on :
And then there are those who are well and are still here! Posted by Haley (Member # 22008) on :
I think in some cases people stay away from the internet because it can be depressing when people are only posting the negative stuff that is going on.
I have learned a lot from this website. I have made a few good friends here also but I also have had times when I think that I should take some time away and focus on other things.
Posted by Pinelady (Member # 18524) on :
Morbid is a truck load of heads--reported by news today---confiscated to make sure it was going to research....URGGG.
But then I hope it was going to someone doing Alzheimers/Lyme research...Which would be great!!!!
I am a lot better but still here hoping to pay it forward in some small way.
And be a part of history in the making...
I would like to believe we all do what we can with what we have.
Posted by 2roads (Member # 4409) on :
Yea, CVS is collecting a dollar for Lou Gehrig's Disease at checkout.
I wanted to say "LG is a symptom, but Lyme is the main cause...why don't you collect a dollar for lyme disease instead. Posted by laura j (Member # 14257) on :
sparkle, yes that's what I meant sad to say. Hoping those no longer on here are doing well and not the other thing.
Posted by sparkle7 (Member # 10397) on :
It's kind of weird to see people come & go from here. Some are "old timers", some stay around to get what they need & leave. some visit on & off.
I do think alot of people get better. It's nice to see people stick around a bit to help those just being diagnosed. I've gotten to feel some of the people here are my friends.
I've learned alot from the people who post here. I like to share what I can. I've been ill for about 15 years. It wasn't always a Lyme diagnosis. 8 years prior, I had CFS. I was able to get completely well from having CFS.
I'm doing OK but I'm not cured. I'm not 100% sure that I have Lyme. I've made alot of progress recently with artemesia. Hopefully, one day I will be well. We just have to try to do the best we can on a day to day basis.
It's nice to know there are people here who understand & share their experiences. It's OK if people go off & forget about Lymenet. I don't think most people leave due to death. There are a few deaths that I hear about from Lyme but mostly people learn to live with the illness or get somewhat better.
Some do get completely better, too.
Posted by TerryK (Member # 8552) on :
It won't tell you which ones were members here but they are trying to document lyme patients who have died.
Suicide is a big risk for lyme patients. We've had a few die that we know of that were members here but I've no doubt that many who don't post anymore are out living their lives.
Terry
Posted by Shannon500 (Member # 26531) on :
I used to post a lot on Lymenet, but haven't posted anything in a long time. For privacy reasons, I started a new account.
I've been thinking about Lymenet lately. I remember the questions people posted wondering if people ever got better.
So I just wanted to let you know I am doing much better. I still have some problems, but I am well enough that I'd rather be
thinking about other things than Lyme disease. Low dose naltrexone is what allowed me the luxury of taking a break from
researching. LDN the only thing I'm taking right now, besides probiotics. I was on high doses of antibiotics for a year, as well
as some other types of drugs so who knows how much they set the stage for the LDN to work, or if it would have worked by
itself from the start. I believe the vast majority of the population is infected, whether they have any symptoms or not. A physical
injury started my Lyme symptoms. If I could do it all over again, I would have started immediately with craniosacral therapy and
LDN, and I think that would have prevented the Lyme from taking hold.
Posted by MariaA (Member # 9128) on :
Congratulations! please post a story in Success Stories if you feel like it's appropriate!
Posted by Shannon500 (Member # 26531) on :
quote:Originally posted by MariaA: Congratulations! please post a story in Success Stories if you feel like it's appropriate!
Would 80% be considered a success? I do plan on working on the remaining 20% once I get the motivation again.
Posted by littlebit27 (Member # 24477) on :
Suicide is sad and horrible, but I agree a big risk for Lyme patients. And sad to say I can understand. I would never do it because of my girls-I know it would devestate them and I wouldn't ever do that to them.
Hopefully most are just out living their lives. I think some just leave because they are tired about hearing about Lyme and everything else ALL the time.
Posted by lymeHerx001 (Member # 6215) on :
Im doing better but Im not %100, prob never be.
My approach was off all anti biotics, sterele diet and 1 hour of exercise each day!
Posted by Tracy9 (Member # 7521) on :
Just a reminder to everyone that we have Lyme Chat live every night...and that we have had many desperate people turn to Chat as a supportive environment and place to find others in a similar situation, to talk to, live, and have found it comforting.
It technically starts at 8 pm, but lately the trend has been people have been coming in very late. It keeps going until about 3 or 4 am, Eastern time. You will find it busiest around 1 am, generally.
And there is also a direct link which hopefully someone will come along and post, as I can't find it on this computer. You do need to set up a user name and password first if you don't have one, which you can do by emailing [email protected].
All are welcome! Except Matt.
Posted by the3030club (Member # 21898) on :
Most of the people who don't post on here anymore are well, not dead.
Posted by Consuelachacha (Member # 26538) on :
I was diagnosed with Lyme June 1. In third week of Doxy. Scared to death the more I read. I have been dx with Bi-Polar, Lupus, Fibromyalgia, Chronic Fatigue, IBS, Diverticulosis, Spastic Colon......I cannot even remember them all. Now Lyme, late state. CAN I get better? Am I going to die? I feel like I am going crazy. Cannot remember, cannot think, confused, stiff neck, always nausea, achy joints, HEADACHES. If I find a LLMD what are they going to do to me?
Posted by Remember to Smile (Member # 25481) on :
quote:Originally posted by Tracy9: Chat live every night... place to find others in a similar situation, to talk to, live [snip]
All are welcome! Except Matt.
Today, i am thankful i am not Matt. I pray for Matt, 'though. Smile
Posted by sparkle7 (Member # 10397) on :
Consuelachacha - every journey begins with the first step. Just take it one step at a time. It's not easy but I think you will be able to get through it.
Many of us find different ways to get well. Some use the antibiotics & others prefer herbs & more natural treatments. Some combine the two.
![[Cool]](cool.gif)
![[rant]](graemlins/rant.gif)
![[woohoo]](graemlins/woohoo.gif)
![[tsk]](graemlins/tsk.gif)
![[Eek!]](eek.gif)
![[Wink]](wink.gif)