How long did it take you to get to that point, and how long do you think you had Lyme for?
Posted by Pinelady (Member # 18524) on :
I got sick with the flu like symptoms and was sick for 2 weeks--fall of 07---figured it out with help
from here and other people who have had it. Been here working to help ever since. Finally getting
better. Stick with it--it can work but it is a long hard road.
Posted by BackinStOlaf (Member # 23725) on :
Pinelady: It's so weird because I never had the flu-like symptoms etc..when my first symptom of tingling started. My last cold/flu was years prior but that was during a really bad flu season.
This disease is very "interesting"
Posted by Kirk (Member # 24483) on :
I don't think I qualify as being anywhere near 'cured', but I got sick around late sept. (flu-like symptoms for about 6 weeks) started getting abx around december.
So its been 10 months and for the last 3 or 4 I've been functional (most of the time), my symptoms seem to be fading, I go to the gym and etc.
Conservatively speaking, I hope to be recovered by next spring or sooner ( I don't believe I will be suffering for life, or even for 'years' because my infection doesn't seem as bad as some and I think I caught it pretty quick). My new med combo has definitely made a difference.
I suspect infection around june or july of last year, but I'm not sure.
Posted by BackinStOlaf (Member # 23725) on :
Kirk, what is your new med combo? What are you treating?
Posted by TF (Member # 14183) on :
I think I had lyme for 10 years prior to being diagnosed.
I treated for 3 years--2 years of lousy treatment and 1 year of great treatment.
It is now over 5 years since I completed my treatment and I am still symptom-free, enjoying my life--the same life I had before lyme disease.
I had lyme, babesiosis, and bartonella.
Posted by BackinStOlaf (Member # 23725) on :
TF: if you have the time, would you mind listing what meds you were on during your 1 year of great treatment?
I know you followed Burrascano, but what combos of meds were you on and for how long?
Sorry for the request but I think it could help lots of us
thanks!!
Posted by seekhelp (Member # 15067) on :
I've read it many times: Flagyl, Amoxicillin, Levaquin, Bactrim DS and Art I believe. Not all at the same time. I remember TF said her old LLMDs did nothing more than push all the Lyme into cyst form due to poor protocols and not following Dr. B's guidelines.
Posted by Lymetoo (Member # 743) on :
42 years .. treated for 4 .. babesia and Lyme.
Took a lot of Biaxin and clindamycin/quinine. Also Ceftin, Doxy, zith and artemisnin, bactrim, minocycline...
and flagyl with anything that created cysts.
I know I'm leaving out many meds... but hey, it's been 5 1/2 yrs now!!
Posted by bcb1200 (Member # 25745) on :
I like this tread.
Gives me hope. Been treating for 8 weeks and feel MUCH better. Did 6 weeks on Doxy/Flagyl and now 2 weeks on Biaxin / Amantadine.
Only remaining symptoms (most days): -Full feeling ears -mild tinnitus -very very mild calf muscle twitching -very mild eye floaters
I will beat this!! by this time next year I will be in remission / cured.
Posted by TF (Member # 14183) on :
I have a write-up of my treatment, but won't post it on the public board. Just send me a private message if you want it.
Posted by Lou B (Member # 64) on :
To read stories about people who "are pretty much "cured" or haven't had symptoms for years", check out the Topic: Progress and Success Stories ... in the General Support forum at: http://flash.lymenet.org/ubb/ultimatebb.php/topic/3/15820