I got sick a year ago, started some treatment, had a bad doc, moved on to another, then another...doing tons of research now that I'm out of denial, etc. Fighting for my life. I came across Burrascano protocol and read a little of his story... so, sounds like he really developed a cure? has anyone used his protocol and experienced full recovery? do we need this protocol to be cured? cuz right now, I don't got $50,000 to pay for 6 months of IV AB...robbing a bank sure does sound appealing, though.. look out Wells Fargo..
Posted by LymeMom Kellye (Member # 24807) on :
Hi Supergirl, Sent you a Private Message.
Posted by bcb1200 (Member # 25745) on :
TF swears by Burrascano. It cured her.
Posted by Kirk (Member # 24483) on :
I would like to know myself. I am coming to the end of my rope with this and I would jump at any real cure.
Posted by Keebler (Member # 12673) on :
- There is no cure for the lyme but, yes, many have seen good solid remissions with variations of this protocol. It needs to be adjusted for each person, as no two patients are exactly alike.
However, not everyone who has taken this approach has achieved remission.
There are just so many variables. So many. Self-care also comes into it but, in addition to lyme, there are often many other infections that need to be addressed as well.
Liver support is also a vital key to success. And- there are other methods to consider. Rife machine is a good example.
Somehow, all infections in all stages, shapes, forms, cycles - need to be adequately addressed. Support of the body is essential, too. Finding what works - that we can afford - is a horrible task. We just do the best we can with what we have to work with.
I can understand that money is a huge issue. Be sure to be in touch with your local lyme support group for the rare name of a doctor who takes insurance.
You might also ask others in the group to share experiences with other protocols - or with the rife machine. Many have seen a turn-a-round with rife and support methods. -
Posted by 'Kete-tracker (Member # 17189) on :
There's no known true cure for disseminated Lyme (later stages), yet, though most all can get it into 'remission' & off antibiotics. But all 3 LLMDs/NDs I know pretty much follow the "Dr. B's guidelines", incl. the 1 who was treating me. I followed his supplement & diet recommends, as wel as an exercise program that "ramped up" once I got my strength back. (SO important)
Wasn't a short recovery... many months on "orals"... but I really haven't had a relapse since a minor one the 1st year out (off abx).
Posted by kimmie (Member # 25547) on :
I too try to follow his protocal, he is brilliant and it makes sense to me. You dont have to have 50k for 6 months of IV if you find an LLMD who will give you an Rx for the meds.
The drugs are not cheap; however, rocephin can be obtained for about $700/month. I called one LLMD, they charge $1300/week. To me, that is taking advantage of desperate patients who will do anything to get better.
Let me know if I can help
Posted by supergirl (Member # 26936) on :
Kimmie: would you be willing to share more about how much it costs to do IV drugs. I wanna do Rocephin. That would help me a bunch..to understand the cost. Yes, the first LLMD I met with I felt the whole time was in it to make a lot of money not because he cares.. awful experience. To take advantage of people who are this sick is unbelievable. Everything inside of me screams that I need IV drugs and now. Trying to convince my pcp to do a course of Rocephin for me - but I guess it has to be combined with other drugs to be effective. ey.. Started working with Dr. P in CA, but what he's telling me just doesn't jive. I've seen him twice - he did not suggest IV AB - I did, and he closed off saying the benefits do not outweigh the risks..I don't buy it esp the more I read on the board. I should have been given IV AB right from the get go. ONe day... one day... there will be a standardized treatment for lyme... and all of our hardship will be part of the journey that brings healing to many people.. I wish it was here for us all now.. but, I am a fighter...whatever you call it.. I'm determined to get "supergirl" back.. I worked hard for a long time to find her in the first place and I'll be darned if this stupid little bug and a bad healthcare system is gonna take me away from myself.