Went to my Endo doctor yesterday to have an ultra sound of my thyroid. The doctor said my thyroid was just a blob of scar tissue. Said it was dead, all eaten up by my immune systom.
Well that sucks!! I must of had a bunch of lyme bateria or something else in my thyroid and my immune systom destoyed my thyroid at the same time as attacking the lyme or what ever was there. I will never believe that your immune systom makes a mistake and attacks an organ that's healthy.
I am SOOO drug sensitive that even with a thyroid that can't function anymore I can only take a small amount of thyroid meds to get a normal TSH. I am really sick of all this!!
Kathy
Posted by Pinelady (Member # 18524) on :
Hashimotos' disease destroys thyroid. It takes a while to build up thyroid levels where they should be.
If you get norm levels on small amount it is possible to have ectopic thyroid. But most cases are what some are calling malabsorbtion.
Meaning the hormone is there the cells just can't use them. Like what I believe happens in Lyme and other stealth organisms.
It can get better with Lyme treatment. But you have to keep an eye on it-esp. if you have nodules. Don't let them tell you hashi's don't have nodules...US for baseline.
Some doc's look for the virus' that are known to be associated with it and may treat them also.
Posted by 2roads (Member # 4409) on :
So sorry Aiden, my sister has a thyroid problem and I really feel for her too.
She has Hashimotos and they keep raising her meds and told her that her thyroid was gone.
I don't understand much about this Pinelady. What is this virus you mention? What else can you say about Hashimotos. I think this disease is effecting her liver as well. I want her to go see an Endocrinologist, but she puts it odd. Just sees her GP.
I wanted my sis on homeopathic things hoping to avoid the thyroid destruction but maybe it's too late.
Maybe a homeopathic approach can help you?
Hugs
Posted by cactus (Member # 7347) on :
So sorry. I have Hashimoto's too, and getting the right level of thyroid treatment has been a trial.
My LLMD feels it's not unusual for patients with chronic infections to develop this - not just Lyme, but lots of chronic infections, viral included.
Pinelady, I'd love to hear more of your thoughts on this as well. Would be interested in knowing which viruses are associated with this, too...
Kathy, at least you have one more piece of the puzzle, so you can get on the road to feeling better. Finding out about Hashimoto's was the beginning of my turning the corner. (There's my attempt at a positive outlook on this!)
Posted by D Bergy (Member # 9984) on :
Since Parvovirus is common and often associated with dogs, it would be the first thing I would go after. It may be a different strain, but who knows where this stuff comes from?
Dan
Posted by aiden424 (Member # 7633) on :
I have Hashimotos, a goiter, hypo thyroid, and now a dead thyroid gland. I think a virus makes much more sense as to the cause of my thyroid problems because my throid never got any better on antibiotic. Actually it got much worse.
Kathy
Posted by Pinelady (Member # 18524) on :
Herpes is highly associated with thyroid disease. But there is not too many virus' that aren't to some degree.
Posted by aiden424 (Member # 7633) on :
Thanks for the great info! Yes I have been tested several times for the anti-body test and was positive everytime. No doctor around here will prescribe Armour. It's amazing how little doctors know about everything. Kathy
Posted by aiden424 (Member # 7633) on :
I'm on synthroid. I have a really hard time getting regulated on it. I am so sensitive to most meds it's hard to take anything.
I think it would be even harder to regulate armour for me. I think it comes from pig thyroids, and since like people their thyroids may very from pig to pig I wonder if there would be slight diferences in each batch.
That would be a nightmare for me since I'm so drug sensitive.
Kathy
Posted by farraday (Member # 21494) on :
My thyroid was completely removed years ago. I was told that I had an autoimmune disease that destroyed it. Ha!
I, too, was on high doses of Synthroid/Cytomel for years. My LLMD had his own pharmacist "compound" the natural stuff for me and I am so very much better with it. I think there is a major problem for all of us with absorption.
Posted by aiden424 (Member # 7633) on :
quote:Originally posted by farraday: My thyroid was completely removed years ago. I was told that I had an autoimmune disease that destroyed it. Ha!
I, too, was on high doses of Synthroid/Cytomel for years. My LLMD had his own pharmacist "compound" the natural stuff for me and I am so very much better with it. I think there is a major problem for all of us with absorption.
My Endo said he wouldn't remove my thyroid. I am not on a high dose Synthroid, just the opposite, I only take 75mcg a day. With no functioning thyroid I should have to be on a much higher dose.
I can only take small amounts of all meds to get to a theraputic dose for me. I was on Heperin for awhlile and only had to take 3000 units twice a day. I think 10000 units twice a day is normal. If I took anymore my blood got to thin. I have factor 5 leiden and a high fibrigen count so my blood is normally thick.
Kathy
Posted by jlp38 (Member # 27221) on :
Dan -- parvovirus b19 is in fact a different disease than that found in dogs. It is a human-only disease, also called 5th disease or slapped cheek syndrome.
My understanding is that the parvo you hear of from dogs is a completely different creature than the one humans have and they dont' cross over.
I'm not sure how parvo b19 plays in, but it was the trigger for my rheumatoid arthritis. I have no idea how/when I got the lyme, but I guess maybe the lyme is what made me unable to recover from parvo. Of course my parvo tests show that I'm immune, not currently infected. But I can't help but wonder if it's still lurking there hidign somehow.
Posted by Consuelachacha (Member # 26538) on :
Interesting-
I just got out of the hospital and my Doctor wanted to try increasing MY thyroid med.
I was on Levoxyl since I do not know when.
I am now on Armour (generic Thyroid) 60 mg.
She wants to try this for 2 weeks to see if I feel any better. So far I feel no difference whatsoever.
I didn't get the stats on my thyroid levels from the hospital. This is just a shot in the dark to attempt to see if I feel better. ????
Posted by Pinelady (Member # 18524) on :
I would give it 2 weeks of shock and another 2 weeks to settle down before I decided.