So, I have been off abx now for about almost 5 weeks. Initially, I felt somewhat better which confused me. I thought, "maybe it's just the side effects of the meds making me sick."
Can you say denial?
However in past week I have begun to decline rapidly. My assumption is that the Lyme and co-inf are coming out from hiding.
But, the thing is I never really felt better on abx either, so makes me wonder if this will ever go away.
Oddly, this is the first time I really felt scared (except when I first found out and did research).
I think I have been in denial that I am as sick as I am.
I guess I don't really have a question, I just needed an outlet - an outlet with people who can empathize and understand.
I did switch LLMDs which is why I am on hiatus from treatment right now. I have an MRI of brain and PET of brain this week. Then we will go see LLMD and find out new treatment plan.
Thanks for "listening."
My best to all.
Posted by BackinStOlaf (Member # 23725) on :
How long were you on abx?
yes, I am scared all the time too
*hugs*
Posted by mmcmann (Member # 21872) on :
thank you. i was on for abx 9 mos.
Posted by lyme in Putnam (Member # 11561) on :
I know what scared is. I hate to say one day at a time, but I just take whatever gets me through the day till something comes through. Feel better.
Posted by janet thomas (Member # 7122) on :
OK, I'll go out on a limb. IMHO, I think Babs needs to be treated first and, at present, there is no effective tx. Very soon, however, tafenoquine will be available. I hope this fulfills my expectations.
I think once Babs is eradicated then Lyme will be easy. No comment on Bart at this time.