My left hand looks even better, I just don't have a before picture. And it was on my feet and my feet is repigmenting. Perhaps it was bacterial and abx are killing whatever and allowing my pigment to come back.. Any thoughts..
They call this Vitiligo, but vitiligo has no cure....
[ 09-14-2010, 10:22 AM: Message edited by: lymetwister ]
Posted by nefferdun (Member # 20157) on :
It is very typical of bartonella. I had it too and thought I was aging rapidly but with bart treatment it has almost gone away.
What abx are you using?
Are your dates correct because it appears to be getting worse, not better.
Bart can cause loss of pigmentation as well as dark spots. I am confused to what you think is better. I can now see loss of pigmentation on the picture from June but the dark pigmentation is not recovery, in my opinion.
I edited this twice because, first when I noticed the dates and then when I realized maybe it was not a mistake and you thought the dark was improvement. Do you have any unusual swelling (that does not dent) or other signs of bart?
Posted by kitty9309 (Member # 19945) on :
Addison's Disease can cause unusual dark pigmentation.
Posted by Paul Mall (Member # 27581) on :
I have a bit of this discoloration on my forehead
wow wouldnt that be great if my lyme treatment get's rid of that too.
Paul
Posted by minerva (Member # 20410) on :
low MSH from neuortoxicty will create loss of pigment. so, hopefully this is a sign that your MSH is increasing which means pitutary function is better which means the whole cascade of HPA hormones may be better. so much more then cosmetic. read mold warriors for more info. i would love to see this happen for me. it could also mean endorphins could be more available as well. hope you are feeling better as well.
Posted by Marnie (Member # 773) on :
IgG *anti-melanocyte antibodies* purified from patients with active vitiligo induce HLA-DR and intercellular adhesion molecule-1 expression and an increase in interleukin-8 release by melanocytes.
It is reasonable to speculate that abnormal expressions of HLA-DR and intercellular adhesion molecule-1 on melanocytes by
IgG anti-melanocyte antibodies
would present vitiligo antigens and allow the antigen-specific immune effector cell attack that results in melanocytotoxicity. PMID: 11121127
Our observations indicate that melanocytes are never completely absent in the depigmented epidermis and that these melanocytes
can recover their functionality in vivo and in vitro under an
appropriate stimulus.
Although the etiology of vitiligo is as yet unknown, several hypotheses have been proposed for the loss of functioning melanocytes in the skin lesions,
including presence of autoantibodies against various tissues,
cytotoxic T cells,
autodestruction of the melanocytes by intermediates of melanogenesis pathway,
oxidative stress,
and the neural hypothesis .
Numerous reports exist to document an association of vitiligo with the other autoimmune disorders.
The picture taken 8-24-2010 is much worse than the picture taken 6-13-2010. I sure don't see improvment. I had the light and dark spots all over my arms with some on my face. It is gone now and my skin tone is nearly even. It was bartonella, not lyme, treatment that got rid of it.
There are other conditions and diseases that cause this but we are already infected with tick born diseases so we take that perspective first.
Posted by lymetwister (Member # 19590) on :
Nefferdun, the picture taken 8/24 is much BETTER than the one taken 6/13. I had lost all of my pigmentation on the 6/13 photo. The 8/24 photo looks like age spots, but it is my natural pigment coming back.
If it fills 100% back in, you will see the difference. Again, the 6/13 photo show my hand white 100% as I had lost all the pigment from the watch to the top of my hand.
Posted by kday (Member # 22234) on :
"They call this Vitiligo, but vitiligo has no cure...."
They say that about a lot of things, don't they? Don't believe everything you hear. We are fed a lot of crap.
Posted by blinkie (Member # 14470) on :
This is the most amazing thing I've ever seen. I had no idea this could happen!
What abx are you taking? Have you showed a regular PCP? Assuming you have one? I'd love to see a duck get a slap in the face!
Posted by nefferdun (Member # 20157) on :
Are you a dark skinned person and your fingers have lost all the color in them but your arms and body is the same as the dark pigment you think is returning to your hands- with no spotting anywhere else?
How do you feel otherwise?
Posted by lymetwister (Member # 19590) on :
I am medium skinned person. I lost the pigment over a 10 year span from the time I was 30 to 40.
My hands turned 100% white from the wrist forward. You can see my natural color in front of the watch band (left hand corner).
I am off abx right now as I can't tolerate anything. But I was on IV Z-max and IV Rocephin for 4 mos.
People that have this condition try experimental treatments and sometimes they get a little pigment back, but not a single person has been able to get back any pigment in the hands. That is a amazing.
Posted by Remember to Smile (Member # 25481) on :
Update from lymetwister requested! Smile
Posted by blinkie (Member # 14470) on :
hear! hear! where are you lymetwister?
Posted by lymetwister (Member # 19590) on :
Here is the new progress on my Right hand Blinkie. My Left is about the same. Getting more on the feet too.
Posted by blinkie (Member # 14470) on :
wowsers! that is fantastic! Have you should a GP this? I'd like to hear them hit the floor with a thud!
Posted by Hambone (Member # 29535) on :
WOW! That is incredible!
Are you taking anything again? You said last time you weren't taking anything because you couldn't tolerate it.
Posted by lymetwister (Member # 19590) on :
Salt/C, Mepron, Bactrim, and IV Rocephin.... Not sure whats bringing back the pigment, but it started when I was on IV Z-max and Mepron combo. I agree, it is quite amazing since they say Vitiligo has no cure and even those trying special creams (experimental) never see repigmentation in the hands.
Gary
Posted by Remember to Smile (Member # 25481) on :
Thx, Gary! You must be thrilled.
Do you sense it's a bartonelliosis symptom, or just one of the many symptoms of one of the many nasty synergistic co-infections?
Wishing you, and all readers, the very best of health & happiness. Smile
Posted by Hambone (Member # 29535) on :
Gary....are you still seeing improvement?
I just noticed today that the small white patch on my wrist that I've had for years is about 75% better. I came straight here to find this post
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![[Smile]](smile.gif)