I've posted before..my son (20) has lyme badly, only mentally, no physical. Anyway seeing new doc and my son is currently on doxy IV (400mg) daily for about 2 months now and doc just added Amantadine 2x daily on last visit. My son is no better but still laughing, even more so now. Doc thinks its the new med, laughing possibly a herx. Anyone ever take Amantadine? I believe its supposed to open up the cells so the doxy works better. Shouldn't I see ANY signs that the doxy is working, my son doesn't seem to be getting any better at all. Not going to lie, losing hope. He's only gotten worse since diagnosed back in Dec. '09. I wish he would at least start talking then at least we'd know how he feels. OK, nothing really else to say...same. thanks for listening
Posted by bcb1200 (Member # 25745) on :
Amantadine raises cellular PH so make Macrolide drugs, specifically Biaxin and Zithromax, work better. It has no impact with doxy and doesn't do anything specifically to lyme (it is actually an antiviral used for flu.) All it does is make the Biaxin work better.
Dr B's guidelines state you should use Amantadine or Plaquenil when using Biaxin of Zith.
I took it for 12 weeks with 1000mg of Biaxin. It makes you feel a bit sleepy the first 3-4 days, but then is fine.
Posted by frikfrak (Member # 26844) on :
Hi,
thanks...my son though is only on Doxy, nothing else. I assume the doc knows what he's doing..go again in 11 days. Maybe the doc will add Biaxin or Zithromax then, we'll see.
Posted by 2roads (Member # 4409) on :
Being from NJ and being more mental then physical, I would favor bart over lyme.
Perhaps adding Levaquin or Rifampin might get him on his way.
Hugs
Posted by nefferdun (Member # 20157) on :
It also helps with muscle spasms - is given to people with parkinson's disease.
I started taking it along with zithro and bactrim ds. I am herxing more so I guess it is doing something.
If you have seen no improvement in nearly a year, maybe it is time to switch doctors and get a new protocol.
I don't know why the LLMD would not try something different. Not all LLMD's are equal, that is for sure. If you go to the seeking a doctor forum you can get some great recommendations with input from patients. Your son needs to see the best and if you find out he is already in the hands of one of the best, then you know you are doing everything you can.
Posted by tick battler (Member # 21113) on :
I agree - time to get a second opinion. My husband went to 5 LLMD's before we found a good one who would diagnose coinfections.
I also agree it sounds more like bart if the symptoms are mostly psych...Dr. B says something about this in his guidelines I think.
Doxy will not hit bart in many cases. I agree that a trial of Levaquin would be a good idea.
tickbattler
Posted by hoot (Member # 19281) on :
I work at a doctor's office that does biomedical treatments for kids with autism. Many times when the kids are giggly, waking at night, having rashes, etc. they are yeasty. Maybe you need to do a good antifungal treatment. There are many herb blends you can buy that help with that. Ask the doc and make sure you can combine the herbs with the meds he is on.
Posted by nefferdun (Member # 20157) on :
Dr. B says when neurological symptoms outweigh the physcal symptoms, suspect bartonella. Your son sounds like classic bart.
Look at his skin for changes like pea size brown spots, loss of pigementation, tiny blood blisters,spider veins, "stretch marks" or any other odd changes. Does he have any unusual swelling anywhere on his body? It appears to be edema but it will not leave a dent when you press it. Check his chin bones for lumps. Feel for nodules in his outer thighs and arms.
We have to be proactive. You can't rely on any doctor to know your son better than you do. A year with no change is not good.