I have an appt. with a parasitologist. My daughter and I have been suffering with L and Bab, Bart for years. After taking ivermectin for an infection I started to have bruising and horrific itching and white patches on my arms. My daughter has tiny little scratches that are itching her. Any ides, so I am prepared and researched for this nightmare.
Thank you so much,
Posted by momlyme (Member # 27775) on :
I would be interested to see what a parasitologist has to say... I did not know this was even a specialty!
Please post what they suggest/prescribe.
We saw a ND who put my son on Detoxosode...
Before that we had treated with a wormwood, black walnut and clove mix...
And I have some Parastroy I ordered before he saw the ND...
How does the parasitologist test?
Posted by emla999/Lyme (Member # 12606) on :
I don't know much about parasite infections but it appears as though undiagnosed parasite infections can cause every symptom under the sun. So, it's a good thing that you are looking into this.
Here is some info about parasites that some of you might be interested in.
For some people, blood antibody testing through a lab such as Quest may be a better option at detecting parasite infections than stool testing. A couple of examples of the antibody tests available for various parasites are:
[ 01-20-2011, 10:32 PM: Message edited by: emla999/Lyme ]
Posted by glm1111 (Member # 16556) on :
Emla,
Thanks for posting all of those links. Some very helpful information. We ALL need to be aware of the role parasites/worms can play in Lyme disease,
Gael
Posted by Lauralyme (Member # 15021) on :
Ditto to Emla Thanks for posting those links very interesting books
Posted by karenl (Member # 17753) on :
Ask him about morgellons and trichinella. I have heard on this board that there is a very good parasite doctor in New York - he does only parasites. I would like his name.
Posted by karenl (Member # 17753) on :
The article mentions
Dr. ..... maybe he is the parasite doctor. Does anyone know him? Please pm.
Posted by seekhelp (Member # 15067) on :
Has anyone ever sent a specimen into the Parasitology Center Inc? If so, what type? Were the results meaningful? Is this a reputable lab?
Posted by chaps (Member # 25286) on :
I had a comprehensive stool analysis test done at the Parasitology Center Inc.
Send me a PM if you want to more--perhaps this already tells you what you need to know.
Posted by emla999/Lyme (Member # 12606) on :
I have just recently become interested in parasite infections so I haven't used the services of Parasitology Center Inc.
And for what it's worth, based upon what I have read, testing for parasites will not always guarantee a positive test result even if you are infected with some type of parasite.
Posted by emla999/Lyme (Member # 12606) on :
This is a rather interesting article about humans & their pets parasite correlation.
I have Lyme and Morgellon's. Ironically, the Morgellon's come about after being on IM Clafaron for the Lyme, day 20 of 28 days of treatment.
It freaked me out. I had no idea why my body was covered in itchy, burning lesions. I even experienced the bio-film after showering. A waxy film covers parts of the body (my legs) and sent my brain spiraling from the pain and pressure.
The lesions change, much like the Lyme, but they never stop itching.
I've never been treated so awful and degraded by the doctors I saw -- Infectious Disease docs, Psychiatrist, Rheumatologist, and my PCP.
My PCP sent me to a Psych hospital because he believed I was self-harming my body. It was embarrassing going in amongst patients that wanted to know why I had sores all over my face and body. I told them I wasn't contagious but I don't think they believed me, how could they?
The Psychiatrist was very nice and didn't show doubt. He cared more about my self-being and general acceptance than being judgmental. I had to cover my lesions at all times.
No one believe me when I told them I felt like I had bee stings all over my body. My husband detested my scratching and thought it had to be mental. My family and friends were onboard with him. Not a one of them apologized when I was diagnosed with Morgellon's but I finally felt validated. So little is known about Morgellon's and not enough factual material is available.
I have treated with Stromectol, Albenza, Biltricide, IV Vancomycin, oral Bactrim and DOXY. Less lesions but still coming.
Posted by glm1111 (Member # 16556) on :
ladyjenie, Antiparasitic herbs and salt/c helped me a lot in getting rid of the lesions and parasites. Check out
EVERYTHING pictured here is what came pouring out of me after 6 months of antiparasitic herbs and salt/c/ You might have the Filarial Worm co-infection.
Sorry, you were mistreated, I was also. These doctors should be ashamed of themselves.
Gael
Posted by dyna3495 (Member # 24126) on :
The only thing that will change any abusive destructive policy is liability.
Posted by ladyjenie (Member # 21098) on :
Gael, can you tell me which herbs you used and was most beneficial?
I read about the Salt-C protocol some time ago and didn't think I should try it because I'm having trouble balancing fluid/potassium/swelling in my legs, possibly from the Fentanyl pain patch I wear. My cardiologist just did another Echo of my heart since Lyme can affect the heart. Will know results soon.
I spoke to a lady in Louisiana who was a patient of Dr. F's and she had had the many things pass that you had. She mentioned 'pink salt' and said it does not affect the holding of fluid like regular table salt. She even told me where to get it but I can't locate my notes.
I have a new PCP (since my other didn't believe I had Lyme or Morgellon's) and he is familiar with Morgellon's. He's treating me with IV Vancomycin and oral Bactrim and DOXY. He has stopped the IV Vancomycin and will change the orals in 2 weeks. I think he is going in the right direction but I'm fearing the Morgellon's will return and worsen when I stop treatment.
Did you have the bio-film form on any part of your body? It's the strangest stuff I've ever seen in my years of life.
Posted by onbam (Member # 23758) on :
DOn't know much about it, but that almost sounds like MOrgellons, a disease that's being covered up to an even greater extent than chronic Lyme.
Posted by Pinelady (Member # 18524) on :
Agree onbam. Things like this happen in Africa---not here.
Some African countries are begging for DDT back.
They have outlawed our good killing stuffs, and left us to the bugs with crap that don't work unless you put enough on so it is more toxic than DDT....Go figure....
I use/used Humaworm, Hulda Clark, Hanna Kroeger and am currently using Parastroy. I liked them all, but the Parastroy suggests to stay on them for 6 mos, which is a very good idea. I like the Parastroy the best.
I actually think you should stay on antiparasitic herbs until symptom free and then do a maintenance dose as Hulda Clark suggests. I also us Real Salt (sea salt) which is very clean.
Sea salt is not the same as Table Salt which contains silicon dioxide and is devoid of all minerals. You can check out the folks at lymestrategies.
These are the people doing salt/c and abx and other alternatives. I really think that this is the Filarial Worm co-infection.
Willy Burgdorfer found Adult Filarial Worms in the ticks he dissected, and another researcher (Eva Sapi) from New England says she is finding them in about 40% of the ticks she dissected.
Morgellons is a name that was given to this malady, and most if not all of the people infected have Lyme. I have had Lyme for over 30+ yrs and have been treated and dx since 1999 first with abx.
This co-infection didn't appear until 2005 when I started the herbs and salt/c. Mind boggling. Parasites are very difficult to get rid of, so don't get discouraged.
You have to just be VERY persistent. Also go to Lymebusters messages and check them out.
Gael
Posted by ladyjenie (Member # 21098) on :
Thanks, Gael, I will check out both places you mentioned.
Lesions still coming up. They even form where the IV needle is inserted (once it is removed). Scary???
Went to the HUMA-WORM website but don't know which to buy and which is best for Morgellon's. Suggestions?
I know I have to treat parasites for some time and take supplements to jump-start my immune system after stopping the Enbrel injections I've been on for years.
Posted by emla999/Lyme (Member # 12606) on :
I am bumping this post up for those interested in parasites.
Posted by Keebler (Member # 12673) on :
- Specific testing methods and labs are mentioned in the comments. Most tests are just worthless. --------------
Intestinal Parasites May Be Causing Your Energy Slump
- by Leo Galland, M.D. (Practicing physician, author and leader in integrated medicine.)
January 6, 2011
==============================
EMLA (emla999/Lyme ) just posted this at another thread:
Based upon personal experience and based upon what I have read and heard from others, parasite testing via labs is HIGHLY inaccurate. There seems to be a very high number of false negatives when it comes to parasite testing.
Bellow is a list labs that appear to better at detecting parasite infections than are most other labs.
Some doctors such as Dr. K and Dr. Simon Yu say that they have better results at detecting parasites using forms of energy testing such as EAV or ART. -
Posted by lightparfait (Member # 22022) on :
I agree. I had negetive lab tests,but very positive ART testing. When doing the protocols and provoking them, they visually appeared! Cannot be denied and I could identify the visual ones!
From personal experience I know parasites are always involved with lyme...it is a mix of many things that are out of balance.
Dr. K is speaking on this in NYC on Feb 12th at 7pm. open to the NYC lyme community. My LLMD is going and told me abaout it, to understand the parasite issue and to learn about and understand ART testing to add and complement traditional LLMD protocols.
Posted by ladyjenie (Member # 21098) on :
lightparfait, kuddos to your LLMD for attending this meeting on parasites. I don't know what ART testing is but very interested as my Morgellon's is severe at this time. I have read about the Salt-C treatment but too lazy to try it.
Texas is so behind in treating lyme and looks like it's not going to change.
I have invited my PCP to a Morgellon's conference in Austin, TX on April 2nd, 2011. He doesn't think he can make it but I wish he would reconsider. Nothing like being involved and able to ask questions and take notes.