LymeNet Flash: I forget I had lyme!

This is topic I forget I had lyme! in forum Medical Questions at LymeNet Flash.

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Posted by beths (Member # 18864) on :

5 months off abx, after 4 long years. The past few weeks I have been feeling like the old me- I have energy, I feel good! I even upped my hours at work.

The only downside is I'm hitting menopause, and my hair is thinning, but I try to keep it in perspective. 3 years ago I would have gone bald for a normal life!

I never thought I would be well...or even able to get off the sofa, my POTS was so bad.

Keep hope, follow your doctor's recommendations, know your body...and hang in there.

Thanks to those of you who e-mailed me during my real sick time and gave me hope...actually, many of those people aren't on the board anymore.

I promise to lurk in, and give encouragement to those still sick.

[ 12-14-2010, 10:04 AM: Message edited by: beths ]

Posted by jlp38 (Member # 27221) on :

Congratulations!!!!!!!!!!!!!! Can't wait for the day when I forget how this feels!

Posted by sutherngrl (Member # 16270) on :

That is super news.

I hope you continue on your road of wellness.

Keep us posted and encouraged

Posted by penguingirl (Member # 28688) on :

This is great- so happy for you!

Thanks for giving us hope and encouragement.

Posted by iamgreek (Member # 29517) on :

So Happy ! Gives us all hope [Smile]

Posted by Hambone (Member # 29535) on :

This just made my day! You just don't even know.

May I ask, what was your treatment protocol?

I have POTS, too [Frown]

Thank you for sharing this great news.

Posted by Keebler (Member # 12673) on :

-
Beths,

thanks so much for the good news after four dedicated years. Enjoy life, now.
-

Posted by Tammy N. (Member # 26835) on :

So great to hear news like this. Keep on going!! And enjoy your renewed life!

Posted by Lymetoo (Member # 743) on :

YEA!!!!! [Smile]

That is so wonderful!

Posted by Al (Member # 9420) on :

Thank's for the update;
My warm wish's for a happy life

Al

Posted by annier1071 (Member # 28977) on :

I only wish that I had the strength to last four years with this!! God bless you and much health always.....Whats POTS? New here sorry

Posted by Haley (Member # 22008) on :

Thanks Beths. Incredible news. Do you have any words of wisdom for those of us still in the battle field? Was there anything specific that helped you turn a corner?

Have fun!

Posted by deerose (Member # 27484) on :

Wonderful!

Thank you for sharing hope.

Posted by canefan17 (Member # 22149) on :

I can always determine how my treatment is going based on my hair. lol

When I start worrying about my HAIR falling out (only symptom) - I MUST be doing better : )

When I say/think things like, "I don't care HOW I look... I just want to feel better." - Clearly I'm not doing well.

That's my spin on it lol

[ 12-14-2010, 12:08 AM: Message edited by: canefan17 ]

Posted by lyme in Putnam (Member # 11561) on :

[Smile]

Congratulations and always good health.

Posted by beths (Member # 18864) on :

Thanks everyone.

Words of wisdom...keep plugging thru. Not every symptom is lyme...my shortness of breath initially was, but then it was from GERD from abx. Once I controlled the GERD, after I controlled the babs and bart, my shortness of breath went away. You have to sort of tease out what's what

My treatment protocol was every abx known to mankind!

I lost 25 lbs in the beginning, couldn't eat, had horrible dizziness, stomach pain, tremors, palpitations, tachycardia from the POTS. I just wanted it all to end. But my husband and children needed me, so I tried to focus on 1 thing I could do.

In the beginning I though..ok, I have teens, I can still listen and talk to them, because I couldn't do anything else. Several months later, ok, I can drive now-I can get them from school. Baby steps

Thanks for your well wishes....hugs to all

Posted by kellyjk4 (Member # 19731) on :

I'm so happy for you beths!

Thanks for coming back here and posting - those of us still struggling really need people like you.

So glad you have your life back!

Posted by onbam (Member # 23758) on :

That's amazing. You're probably the 5th or 6th to make a recovery this month, at least.

Posted by Dawn in VA (Member # 9693) on :

Yeah!!! Keep on keepin' on!

Posted by Remember to Smile (Member # 25481) on :

Hooray, beths! Happy New Year! Thanks for posting.

Plz continue to lurk now and then, and keep us heading down the happy, healthy trail.

quote:
Originally posted by canefan17:
I can always determine how my treatment is going based on my hair.

I just realized this.

I'd always been blessed with pretty hair, but then it became very blah, dull, lifeless for several years before my big LD crash. Had nothing to do with shampoo type or daily habits.

Now in treatment with a very good LLMD. In the last two months, my hair looks vibrant again (when I shower! lol!).

My renewed "shiny coat" came along with excellent within-normal-limits routine blood work (NOT co-infection levels). For decades prior, I hadn't had a routine blood screening come thru without a couple factors testing out of whack.

Posted by CherylSue (Member # 13077) on :

God bless you, Beths. Thanks for sharing.

Happy future for you and your family!

CherylSue

Posted by triathletelymie (Member # 26456) on :

Thanks SO much for sharing! [Smile]

'Gives us folks still deep in the trenches much needed HOPE!!!

Congrats!!!!!