I know they are in the same drug family. Anyone have dizziness with ceftin and not have a problem with rocephin?
Also has anyone experienced dizziness with rocephin? Can you manage it with gravol, "antinauseant/dizzy". What other side effects have you experience with rocephin? Did you find it a hard drug to tolerate?
This is a big under taking to get this treatment, being from Canada. It is very expensive and I will be traveling down to the states to get my meds and PICC as well as the initial trial with IM injections for 3 weeks.
Thank you everyone for replying. You are all such a big help through this horrible journey called Lyme lol.
Kuda
Posted by marine2783 (Member # 24982) on :
I just got off IV Rocephin and now on IV Doxy. Im also taking oral Ceftin. I havent had any problems with either of them. Rocehin is very safe and most people are fine. But everyone is diiferent and I can't really say your not going to get dizzy. Everyone reacts differently.
Posted by lymekuda (Member # 23972) on :
Thank you Marine! Have you noticed significant benefit from IV Rocephin? Were you on a cyst buster also? If so which one? Why the switch to IV Doxy?
Posted by marine2783 (Member # 24982) on :
I personally haven't noticed anything with the Rocephin. I just started the treatment a few weeks ago and it was my first time treating the lyme.
I have late stage nero lyme so its going to take some time for me. But I did notice a little differnce on the oral doxy when I added that to my treatment.
So I told the LLMD Im responding better to the Doxy so we made the switch thinking it worked better for me or my lyme strain or whatever.
I don't know to much about the cyst busters. Haven't taken those but thinking maybe I should be.I just do what the LLMD thinks is best and still waiting to to feel better!
Posted by lymekuda (Member # 23972) on :
Thank you again Marine,
I have late stage nuro Lyme as well. Was first diagnosed with MS, became very ill on the immune suppressant MS drugs.
Was bit when I was 10 years old, I am now 25. So I think it is going to take some time just like yourself.
My fav drug so far is 6000mg of oral Amoxicillin.
Probably going to go on Tindimax once on rocephin for a bit.
Best of luck to you and thanks again!
Kuda
Posted by annier1071 (Member # 28977) on :
I have chronic neuro lyme also and just diagnosed..taking oral omnicef now for 3 weeks and natural thyroid meds and nutrient till insurance covers iv rocephin too..seems that is the drug they all start with..supposedly it can cross the blood brain barrier? I am getting the chest port instead of picc line per doc..since treatment will be long term..they will not have tokeep changing picc lines then..new to all this too...
Posted by sfcharm (Member # 9392) on :
I was on Rocephin IV for one year and found it to be a very tolerant easy antibiotic. It was the easiest of any I treated with as far as side effects.
I was on bicillin shots, mepron,azith,biaxin,amoxicillin,flagyl,rifampin,ketek. I'm sure I missed a few.
I took orals for one full year and got 70% better. The rocephin followed for one year and I got to almost 90%.
I always thought IV was the easiest way to go. There was always the worry of a blood clot in the groshong cath that I had, but it all worked out.
Posted by lymekuda (Member # 23972) on :
Hi Ann,
Well I just finished 2 years of oral antibiotics. Living in Canada this whole process is even more difficult than you have it down there. We don't even have a LLMD or anyone that even knows how to treat it, so I go down to Seattle for treatment.
Yes it does cross the blood brain barrier. Orals have a very difficult time getting in too the brain. I have reached a standstill with my doc, so this is the next step he recommends. My doc wants me to do a PICC for the reason of easy removal. He wants me on 6 months to a year, but baring any complications he wants it to be taken out easy.
Sorry that you had to join the Lyme club Ann .
Hey SF,
Thank you for the positive comment about Rocephin!!! Looking forward to take the drug! :S lol.
Congrats on 90%, are you still treating? Do you think you will get to 100%? How long have you had Lyme for and is it nuro Lyme?
Glad to hear it all worked out for you!!!
Take care,
Kuda
Posted by we'll win (Member # 11112) on :
Have had Lyme Disease for almost twenty years, and neuroligal Lyme for about 15 years. I have been on many therapies and have a medaport in my chest (which needs to come out- I haven't used it for a long time).
I thought Rocephin was the best therapy I have ever been on. I have been on both intravenous Rocephin and intramuscular Rocephin (shots- you know where. I gave them to myself).
Then insurance would only pay for generic Rocephin (Cephtriaxone). At first it was fine. But then I hit a batch which seemed to be much less effective and made me feel worse. After several more batches of the less effective/making me feel worse, I stopped taking it and switched to other therapies.
But to me, Rocephin (brand name) will always be the best antibiotic I have ever been on.
Please note, when first starting Rocephin, or an effective generic, it takes a few weeks to kick in. Then when it does. You will feel miserable because there is now a great war going on inside your brain and body. The spirochetes are dying. The resulting toxins, and the spirochetes fighting back, will make you feel horrible. BUT, your brain, and ultimately your health will be improving.
I want to end on a positive note. All the comments have been great. I think the best thing to know is that we in the Lyme Community (no, I don't think any of us wanted to be here, but now we support one another) know what it's like and give you our full encouragement, support, friendship, and love, and laughter. Hey you gotta laugh through this stuff.
Keep smiling. We understand and care.
We'll Win
Posted by JOLA (Member # 23498) on :
Kuda,
I live in Surrey and I go down to Seattle as well.
However I can give you the name of a GREAT LND in Richmond.
He recently got licensed and can now prescribe ABX. He originally diagnosed me 2 years ago.
![[Frown]](frown.gif)
.