I am very new here- (first post) and wondering if anyone can shed some light on experiences with WBs coming back negative after an initial and first positive response?? The time interval was 2 weeks between tests with no Antibiotic or other treatments? I have heard of the contrary negative WBs after long periods/then a pos WB but never this way. I have much to learn... I thank you all for making this forum possible!!
Posted by momofthree (Member # 19490) on :
I can't answer about false positive but I can say that mine and my kids' blood tests, cbc and cmp, used to change dramatically each week. Because our counts use to jump all around I guess I wouldn't worry if a blood test came different for lyme. I have a friend whose daughter tested neg. on wb 4 times before she had a positive and she had lyme really badly.
I would check your symptoms with a llmd. Hope this helps.
Posted by lymegal23 (Member # 28573) on :
Well the fact that your test came back positive at all pretty much answers it. I'd have to say thats positive. any kind of positive on a lyme test points to lyme because alot of people dont even test positive. at all. so if someones testing positive thats a HUGE red flag
from what I've learned on these boards. There really are not false positives with lyme. Especially if someone is symptomatic. Its false negatives you have to worry about
What are your symptoms? Can you list them for us please
You should definatly make an appointment with an LLMD.
Posted by clueless (Member # 30019) on :
Brief recap......Here are a few:
Numbness-tingling- rt hand/arm radiculopathy arm progression: rigidity, loss of finer motor coordination/movement
chronic fatigue
depression/anxiety/irritability (very)
joint pain/shoulder- granola crunchy-articulation
agoraphobia (even though he won't admit it ;-)))
hip pain/joints, etc...
Also have other implications as my husband was dx with MS- active lesions on last MRI. Lots of stuff to sift thru- starting 6 weeks of Roc IV tomorrow-2 grams 2weeks, upping to 3 grams weeks 3/4 then 4 grams weeks 5/6... Including Delursan ans Plaquenil orally.
Thanks for all your responses!
Onbam-thanks!!! will reconnect when i can get my head around this
Posted by Lymetoo (Member # 743) on :
Probably just a fluke. Get a test through Igenex Lab.
www.igenex.com -- Test #188 and 189
Posted by clueless (Member # 30019) on :
Thanks!
Only problem is that Igenex Lab does not have existing facilities in France. We seem to have found another "reliable" one....
Posted by clueless (Member # 30019) on :
momofthree,
you are talking about CBC- complete Blood Counts changing from week to week?? wow? how the h_ _ _ did u deal with that? did you also have any of the same stuff with the WB?
Thanks people!!
Posted by clueless (Member # 30019) on :
momofthree,
you are talking about CBC- complete Blood Counts changing from week to week?? wow? how the h_ _ _ did u deal with that? did you also have any of the same stuff with the WB?