But wait a minute---CFS is most often Lyme and other undiagnosed TBI's!! Of course, viruses, etc., too, maybe, but look at TBI's first.
He's a very good dr, but not esp an LLMD. Somewhat, but not really. He's not a CFS dr esp either, although he may have dealt with it.
Posted by Abxnomore (Member # 18936) on :
Agree with Rumigirl. He's a well known doctor in the integrative circles of NY and if he suspects Lyme he refers patients to Dr. B in upstate NY.
However, if your friend has CFS you should help her get to a LLMD. Most CFS is caused by lyme or co-infections and a variety of viruses. Also, heavy metal toxicity, candida overgrowth and a host of bodily systems that are out of whack.
He's very expensive and her money would be better used exploring lyme and co-infections first with a good LLMD that is a member of ILADS and follows Dr. B's guidelines.
Posted by Annelet (Member # 13503) on :
Abxnomore....could you please PM me with the details of Dr B in upstate NY?
Posted by Abxnomore (Member # 18936) on :
P.M. sent.
Posted by Bugg (Member # 8095) on :
Thanks to everyone!!!
Posted by kday (Member # 22234) on :
quote:Originally posted by Rumigirl: But wait a minute---CFS is most often Lyme and other undiagnosed TBI's!! Of course, viruses, etc., too, maybe, but look at TBI's first.
While I do have both, I find the "most often" statement inaccurate.
However, I am a believer it's common to have a both.
Posted by sutherngrl (Member # 16270) on :
Kday, I would say that Chronic Fatigue is just a symptom of something. Lyme would be a good example or possibly a virus. There has to be a cause for CFS.
Posted by wiserforit2 (Member # 18286) on :
Dr. G is the doctor who originally diagnosed me with Lyme and Co's five years ago after a string of ducks couldn't figure out what was wrong with me.
He is a gentle and caring practitioner who is knowledgeable, but did refer me to two other LLMDs closer to where I lived. He's been a "quarterback" for me for years, when I've needed advice -- although he didn't treat me directly. I see him once or twice a year.
In speaking with him recently, he discussed Bryon White's protocol along with Zhang and Cowden protocols for patients who have difficulty with abx. He is also aware of Dr. K's work as well as energy medicine.
He can be a pretty amazing detective in helping to figure out what is going on. He is very expensive, but has always given me sound advice, diagnosis and referral. I wouldn't describe him strictly as an LLMD, however, nor do I think he would bill himself that way either.
Good luck!
Posted by wiserforit2 (Member # 18286) on :
Dr. G is the doctor who originally diagnosed with Lyme and Co's five years ago after a string of ducks couldn't figure out what was wrong with me.
He is a gentle and caring practitioner who is knowledgeable, but did refer me to two other LLMDs closer to where I lived. He's been a "quarterback" for me for years, when I've needed advice -- although he didn't treat me directly. I see him once or twice a year.
In speaking with him recently, he discussed Bryon White's protocol along with Zhang and Cowden protocols for patients who have difficulty with abx. He is also aware of Dr. K's work as well as energy medicine.
He can be a pretty amazing detective in helping to figure out what is going on. He is very expensive, but has always given me sound advice, diagnosis and referral. I wouldn't describe him strictly as an LLMD, however, nor do I think he would bill himself that way either.
Good luck!
Posted by jl123 (Member # 15594) on :
I saw him in 08. I came in severely ill. digestion, inflammation, heart palps, breathing, CFS, brain fog. He diagnosed me with babs and lyme. Put me on cryptolepis, enula and art. Through the treatment I literally was bed ridden and had prostate pains and intermittent blurred vision and felt about as beat up as a human being could be. After stopping the drugs, I felt a good bit better- especially with regard to breathing. After this he said he thought I should stop drugs altogether. He then sent me to physical therapy, when I called (indeed I went 3 times) to say I literally could not do the workouts- even at the low levels they instructed to me, he referred me to a psychiatrist.
The psychiatrist- 40 years experience at columbia, told me that Dr G had called him and told him I was better off not treating it and should just try my best, and as well to try to "sweat it out", 'as lyme hates heat and oxygen'. It is worth noting that this Psychiatrist believes I am of sane mind, and believes firmly in the physical illness I have. After this my family pretty much threw there hands up and said just deal. Which I have been doing with considerable trouble these last 2.5 years. At this point I do lots of detox- something Dr G never gave me nor told me about, lots of Vit C, a clean diet- no gluten, dairy, low meat, fish, supplements, and acupuncture 3x week.
What really got me about Dr G was that he didn't ever really want to talk with me, or try to relieve my suffering beyond just the drugs he gave me, and then just gave up on me. Overall I would say he is not actually very knowledgeable about lyme, is painfully unimaginative as a thinker, and most importantly is not a kind nor a courageous man; and I don't say that about people lightly. Though I am sure he has been more than nice and helpful to many over his years.
Like most things in nyc- a city in which I was born and continue to live, that which is rare is exclusive and handled in a boutique manner. I truly wonder if all the CFS people I have seen at "alternative" docs here (maybe 8?) ever get testing for lyme, as I begged to be, let alone treated for anything. Nyc is not the place for lyme except for maybe a handful of docs who believe they are "out of the box" thinkers like Dr.G. Of course being someone who diagnoses people with lyme to me hardly qualifies as an out of the box mind; every professional here in the big city thinks they are pretty much the greatest- tough town this! j
[ 02-01-2011, 12:21 AM: Message edited by: jl123 ]
Posted by sky537 (Member # 21859) on :
I had the same experience with dr. galland... he didnt really seem to care...15 minutes then u are out of there!!! he didnt even push me to treat the lyme he said we have to test to see if u still have lyme... like lyme goes away without treatment just kept giving me supplements or a new med...
Posted by jl123 (Member # 15594) on :
Sky, my sincerest condolences to you, to have had to bear this same lack of competence, humility and humanity as I did; it really hurts, and the lack of complementary strategies (such as Detox or adrenal support) on his part seems likely to actually make many patients endure severe suffering and quite possibly make them even sicker.
I'm actually a ny state certified social worker/therapist and to my mind there's just something about him, that strikes me as clinically narcissistic. You'll always find his thoughts in major magazines, shows like the today show or even on info commercials about weight loss. Its all too much.
You should have seen the look on my face when I found out that he would no longer see me, but instead a psychiatrist. Of course I pay attention to getting psychological counseling but purely physically speaking, I wanted to cry.