Help enlighen others and spread the word about the misdiagnoses of CFS & FMS . I know there are many here who had the dx. of CFS & FMS for years before getting a Lyme dx.
This famous doc T always pops up everywhere in relation to CFS. He is literally everywhere. In every nook and cranny every article book and "center". He must make millions and millions. Whats crazy is even in this article published in the Huffington post today Jan 29th 2011, he still makes NO mention of Lyme as a contributing factor. Wow what an ego this man posses's. He is most likely (as he did me) putting people off the idea there CFS could be Lyme related. Thats a bad thing.
what to do with so many professionals who each try as hard as they can to promote their beliefs out towards millions of people, each believing they are the "one" who knows the answer. Its kind of a problem as proven out well throughout history.
In truth there are really only a few who can truly be called genius. Few who are able to get to the root of big problems. We look all look to these few to help our world. and of course all the hard working people who are ill and work tirelessly subtly experimenting and feeling out what works for them. j
Posted by Abxnomore (Member # 18936) on :
I so agree. After all the years he has been researching CFS how could not mention Lyme?
I think I know the answer!
Posted by Robin123 (Member # 9197) on :
Abx, thx for letting us know - I just commented!
jl, you got a point - so many times I heard that this treatment would fix me. I'd try it, only to be disappointed until the next promised fix, and on and on, ad nauseum, for 25 years.
Way too much surety and not enough humility. They were all wrong. Not their fault, tho, for not knowing. They didn't know. But beware of swearing that you have THE answer. At least we have some science now for these illnesses.
Posted by PTrain (Member # 28773) on :
I was misdiagnosed with FMS six years ago. I did purchase this person's products on different occasions. Expensive and did me no good whatsoever. Certainly not "fantastic"...
These people are like potholes along our road to health. Some of them are well-meaning yet misinformed, others are opportunists looking to make fast buck.
It's no wonder that many really sick people keep hitting these potholes and eventually give up.
When we are at our worst we have to be able to sift through the scams and misinformation to find the truth. That's very difficult when even something as simple as reading for more than a few minutes causes pain and exhaustion.
No wonder many look for the magic pill. They are desperate and the scam artists take full advantage of that.
But like they say, Karma is a *****.
Posted by Abxnomore (Member # 18936) on :
Robin thanks for posting.
I hope others do the same to help these folks who are posting and are convinced they have CFS/FMS.
It's an opportunity to get the word out and help.
It's amazing after all these years Teitelbaum still has not seen the big picture. I'm sure he is aware of the controversy.....it just suits him better not to hear it.
Posted by 5vforest (Member # 29365) on :
I went down the CFS path for months and months before a keen doc tested me for Lyme.
Just one mention of Lyme on his website might have saved me a few of those months.
Posted by Abxnomore (Member # 18936) on :
I wish you post on Huffington post, and that others would too. Those folks are so convinced they have CFS and FMS. We owe it to them to enlighten them and also to spread the word about this epidemic called Lyme Disease!
Everyone please post and share your knowledge and experiences:
I always find it interesting (or is 'ironic' the word?) that everybody can see how Lyme fits into the CFS and fibromyalgia puzzle, yet only a tiny handful acknowledge the EMF/microwave exposure link...even with studies indicating that the blood-brain barrier is opened up upon exposure, and even though the Lyme epidemic parallels the cell phone/wireless boom p-e-r-f-e-c-t-l-y. Could that be why everybody here claims to have had Lyme for a lifetime, yet only claims being symptomatic for the last decade or two at most?
I don't know about everybody else here, but mid-90's was when I started spiraling downwards...right when a bunch of antennas were installed on a water tower overlooking my home. So as much as I'd like to blame this bug alone for all my health problems, I blame the wireless boom the most, and I blame it entirely for my chronic Lyme.
This doctor even likens CFS and fibromyalgia to a malfunctioning "circuit breaker" within the hypothalamus and an "energy crisis". In his own words...
...CFS/FMS acts as a "circuit breaker," with the hypothalamus decreasing its function to protect the individual in the face of what is perceived to be an overwhelming stress (just like blowing a fuse or circuit breaker in a house). This center controls sleep, hormones, temperature, blood flow, blood pressure and sweating. In addition, if your muscles do not have enough energy, they will get stuck in the shortened position and you'll be in pain (think rigor mortis). This "energy crisis" can be caused by any of a number of infections, stresses or injuries...
And that's exactly what these exposures to cell phone towers and wifi antennas are doing to all the cells in our bodies...sending overwhelming stress signals to them so that they are fighting microwaves, instead of infections...like Lyme.
So when are we going to become more vocal about this problem? I understand that Lyme is hell, but if you want to uproot an ugly weed, you need to grab it by the root...and wireless technology is the REAL problem here.
That's why antibiotics only do so much and why even LLMDs admit other bugs...viruses, candida, intestinal parasites...e-v-e-r-y-t-h-i-n-g seems to need targeting along with Lyme...and then even then, most of us remain ill.
That's just my thinking though...
Posted by seekhelp (Member # 15067) on :
I just don't know. The guessing game has no end.
Posted by Robin123 (Member # 9197) on :
Elizza, thx for posting about another piece of the puzzle - sure, this technology can affect us all.
Thinking about dates, in my case, I got bit in 1981, had full-blown fibromyalgia 18 months later.
I started treating in 2006, when we have all this technology. And I immediately felt better, and still do, even though I am surrounded by technology.
Prior to this technology, people got sick/got treated.
My impression at this point is that these infections can infect us all by themselves, but that the technology you're discussing can also weaken us.
Btw, people in my area are fighting back against smart meters installation.
Posted by Robin123 (Member # 9197) on :
Following up from abx, yes, please do post at the Huff post about cfs/fms. It is a great opportunity to educate.
I wish Teitelbaum would mention it - as 5v above mentioned, it could shorten so many people's searching!! Maybe that could be our next effort, to contact him directly.
Posted by Abxnomore (Member # 18936) on :
Robin thanks again for posting in response to the article and any others who did. It's amazing how locked in to the dx. of CFS and FMS these folks are and how they won't look outside the box. How sad.
I hope others will share their experiences to help these poor people see the light.
Robin123, you may have been bitten in 1981 and became symptomatic 18 months later, but don't forget, wireless technology was around then, too...things like FM radio, and radar, etc...all these things existed back in 1981 and are equally detrimental to human health.
In fact, I'm electrosensitive now, but to be totally honest, radio and tv antennas cause a bigger reaction than cell phone towers seem to lately...and I wouldn't even know what a wifi antenna looked like if I saw one, but I know they're out there.
So you have to at least admit that the numbers of CFS and fibromyalgia sufferers has risen during the wireless roll-out. Is that just a random fluke? I guess it's possible, but coming from someone who can literally sense the microwaves in the environment in the form of heightened seizure activity and exponential worsening of my OCD symptoms in recent years, I tend to think this whole CFS syndrome was enabled by too many microwaves, radiowaves in the environment...much more than the human body can 'make sense of' in any given minute, inevitably causing complete immune system chaos.
Posted by Robin123 (Member # 9197) on :
Elizza, interesting how you can feel the energies - I can't feel them at all - doesn't mean that they're not affecting us, however. You make good points.
Abx, I've been working on fibro sites for a while. It's a long haul. Usually only one or a couple folks are ready to really look and move on. One family went straight to Dr J!!
They are so locked into "my doctor told me I have fibro." It's a paradigm shift, alright, and not many are ready to make that shift.
All we can do is put the info out there and those who are ready will see it. I was ready!
Posted by Abxnomore (Member # 18936) on :
I think their very closed attitude to anything but CFS and FMS comes from years of not even being acknowledged as having a "real" illness. Now that they have a label and do have doctors to treat them, thou mostly inadequately, they are so blinded to any other possibilities.
They are just so happy to have the medical establishment acknowledge that they really are sick. For years they referred to CFS as the Yuppie disease or the all in your head.
Of course many of us went though that, too.
Posted by Robin123 (Member # 9197) on :
Still, it's very doctor-driven -
For example, the Chiropractic Wellness magazine came out with an issue saying fibromyalgia had no known cause.
I called up the editor-in-chief and had a talk with him about my fibro and so many other's being Lyme disease. He didn't want to listen.
So that means that all the chiropractors who get the magazine are still being told that. They have a ton of Lyme patients!
I have been educating chiropractors here in town, along with everyone else.
Posted by Abxnomore (Member # 18936) on :
You are so right and it's so sad how the information is out there but because of certain organizations it's being suppressed.
There's a therapist that has support groups to help those cope with CFS and FMS. I just noticed it. I'm going to call her. I wonder open minded she will be?
Posted by jl123 (Member # 15594) on :
"He didn't want to listen."
this is our culture, our way of life. Until its proven and in use, no wants wants to listen to someones experience because no one believes experience is real. Not even the experiences of tens of thousands. Not even the hard results of professional doctors; indeed these days you need literally millions to tip the belief into any sort of accepted truth. j