This is topic Does anyone know anyone who has cleared bad case of Bart?? in forum Medical Questions at LymeNet Flash.


To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/103698

Posted by NMN (Member # 11007) on :
 
I would like to hear if anyone who has had a long term chronic treatment resistant case of bart who has actually managed to clear it?? Dr S has some great work but has very little answers on treatment. I do not trust him due to the kinda of profiteering he has been doing with his consults.

I heard the book has few answers too. Very discouraged.

** edited to remove doctor's name, please see terms of use **

[ 02-03-2011, 10:35 AM: Message edited by: sixgoofykids ]
 
Posted by sixgoofykids (Member # 11141) on :
 
I had bartonella and am now well. Hang in there.
 
Posted by NMN (Member # 11007) on :
 
Hi six, Nice you are still knocking around. I believe levaquin was a wonder drug for you. It was for me too but now it does not work anymore. Its becoming more and more resistant and its quite worrying.
 
Posted by NMN (Member # 11007) on :
 
I believe you may be somewhat of an anomaly I fear.
 
Posted by TF (Member # 14183) on :
 
I had lyme, babesiosis and bartonella. I went undiagnosed for 10 years. I got rid of all 3. In March, it will be 6 years since I completed my treatment and I am still symptom-free.

Also, I have at least 4 friends who had the same 3 and they all got well. At least 2 of these people had been sick with "fibromyalgia" for well over 10 years. One qualified for Social Security Disability benefits because of it.

I sent them to doctors who follow the Burrascano protocol. That's what got us all well.
 
Posted by Lymeorsomething (Member # 16359) on :
 
NMN, have you tried something in the same family...like Factive, Cipro, etc.?
 
Posted by VB (Member # 16824) on :
 
I just started taking Factive, and in 2 wks will be on both Factive and Rifampin at the same time. Not sure how it will work, but maybe you could try something like this?
 
Posted by Hambone (Member # 29535) on :
 
quote:
Originally posted by TF:
I had lyme, babesiosis and bartonella. I went undiagnosed for 10 years. I got rid of all 3. In March, it will be 6 years since I completed my treatment and I am still symptom-free.

Also, I have at least 4 friends who had the same 3 and they all got well. At least 2 of these people had been sick with "fibromyalgia" for well over 10 years. One qualified for Social Security Disability benefits because of it.

I sent them to doctors who follow the Burrascano protocol. That's what got us all well.

That is so awesome. Is you story written somewhere? I'd love to read it [Smile]
 
Posted by seekhelp (Member # 15067) on :
 
TF beat Bartonella with one month of Levaquin. [Smile] Probably an anomoly too based on feedback here. She has said she was not symptomatic for coinfections I believe too. Sounds much different than many here!
 
Posted by Lymeorsomething (Member # 16359) on :
 
Levaquin worked well for me too apart from the tendon issues. Can it be pulsed?
 
Posted by NMN (Member # 11007) on :
 
I am pretty sure metals are holding me back. I am prioritizing them aswell as biofilms going forward.

I have to turn a corner this year.
 
Posted by ticksickfamily (Member # 22786) on :
 
I'm currently taking Boluoke, Nattokinase and Rechts Regulat to treat biofilms. Rechts Regulat seem the most powerful for me at the moment.
 
Posted by NMN (Member # 11007) on :
 
I am going with serrapeptase and I am thinking about adding oral EDTA one day a week to the end of my 3 day a week round of ALA and DMSA for metals.

EDTA is so poorly obsorbed that I will take 500mg tabs which should translate into about 50mg absorbtion.
 
Posted by TF (Member # 14183) on :
 
I beat bartonella with one month of Levaquin followed by nearly a year of Bactrim DS.

One of my friends took just Bactrim.
 
Posted by sixgoofykids (Member # 11141) on :
 
I took 3 months of Levaquin and one month of Rifampin. I didn't fully get rid of bartonella until about 9 months after I got rid of Lyme.
 
Posted by karenl (Member # 17753) on :
 
Get tested (bloodtest available) if you have cpn as it shows the same symptoms as bart (cpnhelp.org)
 
Posted by seekhelp (Member # 15067) on :
 
TF, thanks for the reminder about Bactrim. I forgot it also hits Bartonella.
 


Powered by UBB.classic™ 6.7.3