i have been still very sick for the past 10 yrs- on and off many treatment cycles, with not much help, tested positive for babesiosis as well few years ago.. is it common to have lyme and be very ill 10 years after? at this point i am lucky if i have 1 good day a week......
Posted by lou (Member # 81) on :
I have been sick since 1996, but the bad symptoms did not come on until 1999.
My current treatment is keeping me at a functional plateau, not fixing, not curing.
So, if you are still very ill, then maybe rethink your treatment plan/doctor. One good day a week is not enough.
Did you get treated for babesia? Is bartonella in the picture?
Posted by Lymetoo (Member # 743) on :
Make sure you get the right doctor and get adequately treated for coinfections. Were you tested for bart??
Untreated babesia will keep you ill for sure.
Posted by gwb (Member # 7273) on :
quote:Originally posted by big lenny: i have been still very sick for the past 10 yrs- on and off many treatment cycles, with not much help, tested positive for babesiosis as well few years ago.. is it common to have lyme and be very ill 10 years after? at this point i am lucky if i have 1 good day a week......
What protocol were you on, abx? LLMD treat you? Have you tried, or considered, the natural route?
I was where you were over a year ago. Doing so much better now, but am not cured by any means. I used to be lucky to work one day a week, now I can work four to five days a week and fly across the country to visit family, etc. That was not possible over a year ago.
PM me if you want to know how I got better after suffering with this disease for over ten years and treated with abx for five years with zero improvement. All I have to show for it is a messed up gut that's slowly mending with various remedies I take.
Hoping and praying you get on the path to healing very soon.
Gary
Posted by glm1111 (Member # 16556) on :
PLEASE check into treating for parasites by doing a search on here under parasites. Plenty of info. Parasites/worms can play a HUGE role in Lyme disease and keep you from getting well.