I saw this one too, Bugg. Interesting that Wormy took it on. Hope to be able to see the whole text when it's published.
Posted by Razzle (Member # 30398) on :
Interesting that they are including bands 31 & 34 in the study but nobody can get those bands tested at standard labs...
Posted by Sammi (Member # 110) on :
Razzle, great observation about bands 31 and 34!!
Posted by beths (Member # 18864) on :
Dr Aucott from hopkins, came out and said how the test misses at least 60% of the time. I'm hoping tides are turning. Maybe "Wormy" realizes more info is coming out about "chronic lyme" and doesn't want to be embarressed by being on the wrong side of the research
Posted by Bugg (Member # 8095) on :
I think it's a good thing that all of these latest research studies (this one, the one by Steere, and the one comparing CFS spinal fluid to that of Post Lyme Syndrome patients)are showing that we ARE NOT NORMAL after treatment. There is clear evidence that we post-treatment people are still ill. In the face of this evidence, no one can say that we are merely malingering. While it is disheartening and scary to learn that we are "not normal" it also gives me hope that we can use these studies to help prove to disability carriers that we are still very ill (despite treatment)....
If anyone has access to the full text of this Wormser study, I would love to see it. I'm not sure what his theory is about causation as I can't read the full text. As we all know, Dr. Steere thinks there's an autoimmune component to post-lyme syndrome patients which keeps them ill.
From the research, thus far, it looks like PLS patients are making proteins that other healthy patients are not....not sure why that is....
Posted by t9im (Member # 25489) on :
Problem with this is it sounds bias from the start. Notice they don't plan on trying to culture LB.
They are trying to find the agent creating the continuing imune response.
Maybe I'm too pessimistic on these guys. /
Posted by Sophie1234 (Member # 26412) on :
The article noted below is entitled: "Under-the-radar tick diseases spreading accross the US; Doctors report sharp rise in potentially deadly, non-lyme infections".
I'm so sorry this isn't blue, but this article quotes Dr. Wormser talking about the "coinfected patient" being so much sicker, and he states "Babesiosis" is "new" to all of us, it "snuck up on us".
Please, please read if you get a chance. I found it facinating that all of the sudden he "gets" how sick tick born illness makes people.
Oops, nevermind the "blue" part. Seems you can click it from here.
Posted by Wolfed Out (Member # 23727) on :
What? That statements not in the article...
I know we all have a lot of repressed anger built up about how this disease has been handled, but we gotta look at today. The person most criticized for ignoring Lyme disease and co-infections is listed in this article as accepting the truth.
That to me shows the possibility for brighter and better things to come...
Let's keep moving forward.
Posted by onbam (Member # 23758) on :
I got it through a library, and it is indeed in the article. Same old, same old from the Baker's dozen, unfortunately.
Posted by TerryK (Member # 8552) on :
I agree with onbam.
Wormser continues to design studies to show that Chronic Lyme disease is NOT on-going infection but instead a damaged and dysregulated immune system. He and his IDSA buddies have made it clear that they want Chronic Lyme Disease patients to be re-classified as Post Lyme Disease and treatment with long term antibiotics to be denied.
There are many studies that he has been involved with that show his line of thinking.
This looks like it is the full text of the original study