The last one I went to said there is no way it was lyme related. She was awful so I found the best pulmonologist in NYC and saw him yesterday. LLMD thinks Babesia but I wanted to run other tests just to rule other things out (we can't attribute EVERYTHING to lyme and co, right?)
He said that since I have neurological involvement and have nerve damage in my arms and legs, it is possible to have internal nerve damage in or near my lungs as well. And he seemed to understand about Lyme. What a relief! He didn't make me feel like a hypochondriac.
Anyway, My question is, if I have nerve damage in my lungs, that means that I may have to live with this breathing issue for years, right? Because by the time I get into remission (could be years) and by the time my nerves regenerate (years)....
I don't know if I can handle it. I also wonder how would they figure out if I have nerve damage/involvement in my lungs.
I see him again next week for some more testing and I will ask him.
I hope this post makes sense.
Posted by kidsgotlyme (Member # 23691) on :
It's so refreshing to hear that someone is getting help from an outside MD. Sorry that you are going through this though.