My llmd put me on mino 200 mg daily, I started with 100 mg first to see how I do. Has anyone been on this drug for lyme and what was your experience. I have heard it can cause alot of dizziness which is my main symptom to begin with. I will be pulsiing flagyl in every other week. Any success with this drug?
thanks Diana
Posted by Jane2904 (Member # 15917) on :
Daughter started with Mino in the beginning. She started with 50mg and worked up to 100mg.
She was never able to take more than 50mg twice a day. I would say it did help.
Good luck, I hope it works for you.
Posted by bcb1200 (Member # 25745) on :
I'm on 400mg per day. First week was tough with dizziness and increased tinnitus. But turbot got better.
Posted by tdtid (Member # 10276) on :
I too had good luck with this med overall. I believe it is one that crosses the brain barrier which makes it a good choice.
It's all about "finding the right drug for the right bug". Good luck and keep us posted.
Posted by penguingirl (Member # 28688) on :
I hope it works well for you - I could not tolerate it - 20 x to bathrooom daily and not even on the full dose (like 200 mg)
Posted by pepperspeck (Member # 18837) on :
My daughter was put and this and I was nervous because she has vestibular damage and vertigo. However, it was this medication, IMO, that helped with cognitive symptoms and a decrease in vertigo overall. Was not the end-all to her symptoms but it was important in her road to recovery. I believe it is better at crossing the blood brain barrier than some other meds.
Posted by Mariski (Member # 24942) on :
Minocycline worked very well for me. I was having terrible headaches due to swelling in my brain and, while the doxy helped at first, I really felt much better when I switched to mino. Reportedly it crosses the blood brain barrier better than doxy. I also added in a cyst buster shortly after I went on mino, and that really helped as well, which is consistent with Eva Sapi's research.
Posted by Starfall (Member # 26795) on :
I just read these posts, trying to find some help or comfort or somethng.
My LLMD started me on Mino and Rifampin last week. Over the weekend, I developed the worst migraine-like headache I have ever had.
I had pain in one temple, pain in that eye socket, watery eye, runny nose, horrible ringing in both ears, dizziness and nausea.
It got so bad by the end of the weekend that I couldn't eat anything and could barely get out of bed.
THis morning I'm up and around but feel on the verge of collapse.
Called my LLMD, and he's not in today. SO I have to wait another day to get any kindo f advice on how to proceed.
I am NOT taking any abx today! I refuse!
Posted by kelmo (Member # 8797) on :
My daughter had to ramp up from ONE 50mg per WEEK!
She was able to get up to 200mg/daily for about two years.
It really helped her.
Posted by chootik (Member # 11221) on :
Hi Diana
I did the same, if you take 50mg and increase by 50mg every 7 days your body will probably adjust.
I had terrible dizziness too at first.
Mariski- What cyst buster did you use? I'm not familiar with Eva Sapi... who is she? I'll google her.
Chootik
Posted by ktkdommer (Member # 29020) on :
I started full dose right away as I didn't know any better and have done fine. Three months now.
Posted by Starfall (Member # 26795) on :
I just restarted my Mino, half a dose today (100mg), and already I am having ringing in my ears and dizziness and somewhat feeling like a headache in my temple.
I wonder if I should try doing the half dose every other day for this week to see if I can tolerate it, then ramp up from there.
Sometimes I wonder what's making me more sick--the lyme and co or the meds....
Posted by IckyTicky (Member # 21466) on :
It doesn't cause me to get dizzy. I do notice my ears ringing off and on but nothing too bad.
Im on 200 mg 2X day
Posted by Mathias (Member # 5298) on :
I has a good experience with Minocycline. It made me herx quite a bit though. 200 mg/d maximum dosage. Watch out for sun exposure.
Posted by melindacf (Member # 5412) on :
I had what they call "staining" with it, so I had to discontinue and go on doxy. It looked like black small bruises on my skin, lots of them. I'm not sure why or if it hurts anything, but my doc stopped it and they eventually went away. FYI
![[Frown]](frown.gif)
SO I have to wait another day to get any kindo f advice on how to proceed.