I was doing IV rocephn, but had to stop, due to horrible gallbladder symptoms and sludging. I had to stop all treatment for 6 weeks.
Now I've been doing IV doxy for 8 weeks. I have had really bad nausea, first from the rocephin and gallbladder sludge from it. Now the nausea may be from the IV Doxy. And maybe some of the nausea before was from the Doxy, too---but not all of it, as I had it even when off everything for 6 weeks. I have lost 17 #s from all this!!
I've had a ton of tests to find out what's going on. I seem to have finally gotten rid of the gallbladder sludge, after LOTS of Liver/Gallbladder Flushes and Actigall. My pancreatic enzymes and liver enzymes were extremely elevated, but then finally came down to normal. Then the lipase started to rise again (but not a lot yet).
So, have you had nausea from IV doxy? Or anyone you know? If so, tell me more. I only have three more doses to go, tonight through Saturday. Then, I'm not sure what after that.
I have a month's worth of rocephin in my freezer that I'd like to use before it goes bad, but I'm hesitant, due to the extreme gallbladder problems I got from it after a while.
I'm just trying to make sense of all the symptoms, and then trying to figure out where to go from here. I just finished a grueling bunch of GI tests, as the symptoms were so bad, and have gone on since November.
My LLMD moved across the country, and I am just getting started with someone new, who is not quite as LL, so that throws a monkey wrench in, too.
Posted by Razzle (Member # 30398) on :
IV Doxy stopped my colon cold. Couldn't pass any stool, had to get really aggressive with colonics, electrostimulation, magnesium, and 100% liquid diet, and get off the Doxy to get my colon to function again.
But since you've got nausea when not on Doxy (just worse when on the Doxy, if I read your post right), and you have weight loss, elevated Lipase, and a history of gallbladder sludging & elevated liver enzymes, I'd suspect pancratitis. Probably low-level inflammation of the pancreas that no regular duck would diagnose as pancratitis... So go easy on the foods (keep to a simple, even a liquid, diet). Try some peppermint tea, or maybe some castor oil packs over the pancreas (center of abdomen between belly button and sternum).
Can also carefully try ginger tea - it can aggravate the gallbladder, but if your liver enzymes are normal & no more sludging you should be ok.
But check with your doctor to make sure something else isn't being missed either... There are lots of causes of nausea, and it can be difficult tracking it down...
Posted by Rumigirl (Member # 15091) on :
Wow, Razzle, sounds bad! Thank you for chiming in. And strangely enough, my colon hasn't been working much either lately. I've had to do enemas to detox. But I was attributing it to having to take Percocet, due to horrible GI pain and back pain. But maybe it has also been from the IV doxy?!
The GI pain is past now, thank goodness. And the nausea was better for a few days, but now is back.
I went to a top GI dr, head of the dept at one of the best hospitals, and he is a world-reknowned "star" in terms of procedures, etc. The downside of that is that you can't talk to him on the phone, only the PA, he doesn't have a lot of time even in a visit, and I have to fight for everything there. They're completely unconcerned with my suffering.
I've had ultrasounds, blood tests, endoscopy (EGD/EUS, which is just short of an ERCP), and finally an MRCP. Other than the high lipase and liver enzymes, which finally came down, and the sludge, which I got rid of finally, nothing else has shown up. So they think I'm fine.
But in addition to the nausea coming back again, which may be from the IV doxy, I have continued to have horrific back pain. And all the usual things that help, 4 osteopathic sessions with trigger point shots and prolotherapy, 2 chiropractic sessions, and 10 Deep-Tissue treatments---and the back pain is almost as bad as from the start!! And lots of me working on my back and stretching.
Groan. I hope that at this point it's just nausea from the doxy and musculoskeletal back pain. But I've never before had back pain so resistant to everything I've done. I know that it started from the gallbladder/liver/pancreas stuff.
According to the endoscopy and the MRCP, my pancreas, gallbladder, and liver, etc. look fine. Could it still be chronic pancreatitits in spite of all this?? Don't know.
I'm definitely not doing rocephin soon! I guess time to take a break from IV abx for a while again. What a bumpy road!
Posted by Razzle (Member # 30398) on :
Yes, I think it is still possible to have pancreas issues that do not show up on any scan or test. Regular MD's don't know how to find subclinical issues. This is where alternative medicine can shine sometimes...they tend to "hear" or recognize the more subtle aspects of certain conditions, and encourage people to listen to what their bodies are telling them instead of assuming the doctor knows it all.
Yes, percocet can slow down the colon, too. Burdock root may help offset this (check with a pharmacist first to make sure it is safe with your other meds), it is a gentle laxative with mucilaginous properties (soothing to the lining of the bowel).
Maybe you should switch to some kind of herbal maint. protocol, such as samento & banderol or something like that? Just to give your body a break from the abx for a while... Does your LLMD do integrative stuff or is s/he only do medications?
Take care,
Posted by Rumigirl (Member # 15091) on :
Well, I got my blood test results from Thurs. and my lipase and amylase (pancreatic enzymes) have climbed higher yet again. And the nausea, malaise, severe back pain, and fatigue are really bad.
The lipase had been high almost from when I started the IV abx, and climbed higher the longer I was on them. It went down finally after I was off abx for 6 weeks. But climbed again back on. And it was high last summer even before IV abx, after I started IVIG.
So, I clearly need to go off IV abx again, maybe for a long time. I'm really concerned about Chronic Pancreatitis, although the GI dr thinks I"m fine, now that I got rid of the gallbladder sludge (according to the ultrasound). His tests showed nothing else.
My new neuro/LLMD I don't think does integrative stuff. But I basically know the integrative stuff myself (rife, herbs, nutrition, Ondamed, etc. I have all of it). I guess it's back to the natural route again---which didn't work for me before for Lyme, but may help more now.
The new LLMD wanted me to do oral amoxicillin only now, as he thinks I'm through with Lyme, which I definitely am not. And he wanted me off IV, due to pancreatic concerns. Boy was he right about that part. I was thinking I could finish up the abx I had bought out of pocket, since the lipase was only a little high and the abx would expire soon. Wrong! Enough already!