I feel the need to post about this today. I was initially thrilled w/ the results of my IV chelation. My mercury level went from a 32 to a 5.2 after 6 IV chelations (also did sauna a couple of days a week).
After my 6th IV I noticed my hands were itchy. I didn't make the connection that it could be related.
I had scheduled 3 more IV's and had one more done (cancelled the other two appts) and soon after the 7th IV DMPS I broke out into an itchy rash (face, ears, chest). My LLNP told me to take Benadryl which helped.
A couple of days later I had a headache (rarely ever get headaches) and felt tired the last couple of days.
I assumed it was lyme symptoms reappearing because I went off abx a month or so ago, but did some reading last night and I am now believing it has to do more w/ the side effects of DMPS. My CD57 went way down too and again tough to know for sure if it is lyme or DMPS related, but some of the symptoms I have had recently I did not have w/ lyme.
SOOOO....if I were to do it all over again I would definitely recommend the oral route. My impatience led me to do the IV chelations but I rarely ever react to drugs (one of the few on here who really did not have herx's on the abx i was on), but I did have a definite reaction to DMPS that I think would have gotten worse had I continued.
Just felt obligated to share my experience especially after I had posted such rave reviews just prior to this reaction.
Posted by Abxnomore (Member # 18936) on :
There is much debate over what method of chelation to use, always has been. I have always felt IV EDTA was much better and less risky that IV DMPS. Everyone one has a different experience but I think IV EDTA is used more often.
Many use EDTA suppositories, as well. Oral DMSA works best for mercury but not for all metals.
One needs to use binders as well, plus NAC, ALS, garlic, cilantro, vitamin C and other nutrients for maximum effect and be sure that kidney clearance is monitored and that both Phase I and Phase II of liver detox is working properly to clear the mobilized metals from the system.
Posted by AnnaOD20 (Member # 29942) on :
Thanks. I just emailed my LLNP. I want to see if there is a way for me to be tested to see if I am now deficient in the minerals I need and how to best supplement them.
I want to do this before assuming it is lyme symptoms and going back on abx. Just wish there were some magic tests that could pinpoint exactly what is causing what symptoms!!
Posted by momlyme (Member # 27775) on :
Anna - unfortunately, you live in New York.
New York has laws against testing which prevents you from finding out if you are mineral deficient.
Then when we were doing KPU, my son's LLMD wanted to monitor his copper levels with a red blood cell mineral test... also not allowed in NY
There are many, many tests that we as Newyorkers are banned from doing. I called the NYS Department of Health --in total frustration-- NY only allows testing on whole blood and urine because these are the only "reliable" tests. Also, NYS decides what labs are able to be used so some tests that are on whole blood and urine can still not be done! (supposedly this is to protect us citizens of NY)
If you or your LLNP find a way around this, let me know!
We had to order a hair test kit (Doctor's Data) through Direct Labs. I ordered it from home... my son's LLMD could not order it. You have to call because their online system will not send to NY.
PM me if you want more details... I may be able to find a coupon code for you too.
When you are detoxing metals... those metals held onto other toxins! Whether you release bacteria, virus or fungi... you will feel discomfort when detoxing metals! This does not mean that you should not detox the metals.
Personally, I would not choose IV chelation. My son and I have done HPU/KPU protocol plus we added in some oral chelation with DMSA and ALA round the clock as A.C. describes in his book "Amalgam Ilness"
Posted by James1979 (Member # 31926) on :
Why in the world would NY care what tests we do??!! Is there a clear reason for this?
I'm sure there's corruption involved, but I can't imagine how such a law can get passed. Are they the only state like that?
Posted by momlyme (Member # 27775) on :
The NYS Department of Health was as clear as mud.
On an autism forum, I was told that the reason NYS does not allow mineral testing (either by hair or red blood cells) is because there was a group of parents in NY who found out their children all got lead poisoning from the school. They brought a law suit against the school... and hair testing was made illegal in NYS - so the evidence was thrown out and so was the law suit.
I asked Dr. L (an LLMD) in a Q & A at a lecture he did in Saratoga - he said he doesn't like it but he has to play by the rules. There are tests he would like to have access to but has to find a way around it.
I asked our previous LLMD and she said she doesn't understand it either. There are certain tests that she can go to jail for having a copy in the files! She tries to order tests and gets told she cannot.
We have left the state for our treatment and we are finally getting better.
Posted by James1979 (Member # 31926) on :
Momlyme, thanks for the answer. It's sad that things are so corrupt.