Hi. I'm wondering how this can be: My son has not had one positive band but did test positive for Bartonella. He was clinically dxd by Dr. J and is the sickest in my family. My daughter tested IGeneX positive: IGM 31+, 41 IND, 83-93+ IGG 39 IND, 41++, 58+ but no coinfections I (mom) tested IND IGM 31, 41, 83-93 IGG 41+++, 58+
Is the same IGM for me and my daughter meaningful in any way? Would it at least suggest that we were infected by the same species? Or is it just a coincidence? The crazier part is my poor son doesn't test positive and he's moving to IV based on brain spect and clinical diagnosis. Thanks, Jen
Posted by lou (Member # 81) on :
It might have more to do with the antibody response of the individuals. Just my guess.
Posted by erikjh1972 (Member # 20964) on :
that actually sounds logical @lou.
Posted by TerryK (Member # 8552) on :
I've read many times that the sickest often don't test positive because their immune systems cannot respond appropriately.
I'm not a doctor and can't say for sure about the significance of you and your daughter having the same IgM results but I tend to think it's not that significant. WB test results may (and likely will) be different if you were to get another test. This is a good question to ask your LLMD.
Terry
Posted by ktkdommer (Member # 29020) on :
Do your children have congenital Lyme?
The three of us are different in illness and symptoms but all have babs and bart with Lyme.
My sickest has the lowest CD-57 level of us 3. I am the only one CDC positive IgM and I am functioning OK but probably a 30 year illness.
My doc treats the symptoms as everyone knows how whacky labs can be. He may come out IgeneX positive down the road.
My son is 10 months IV rocephin for cognitive/neuro issues.
Do you and your daughter have clinical diagnosis of any coinfections? I'm guessing you all have at least 2.
Will your husband be tested?
I'm sorry you are dealing with this with so many family members. It is difficult to keep everyone's needs met and keep the medicines straight. You will find a way to get organized and stay strong.
I wish you and your family the best. I know the heartache that you must be feeling right now.
Posted by JenInMa (Member # 31544) on :
Kari, I don't know if they have congenital Lyme but I had a very sickly childhood and grew up in Ct. Dr. feels that they would have had more significant symptoms at a younger age if it was congenital. From what I've read though, I think back then it was just Lyme and perhaps a reinfection has caused the co-infection? Only my 11 year old son tested positive for Bartonella and there was no clinical dxd for co-infections with me or my daughter. Hubby has not taken the test yet but he doesn't have any symptoms.
Thanks for your responses, Jen
Thanks for your responses, Jen
Posted by jackie51 (Member # 14233) on :
From what I've read, congenital lyme can hit the surface at 4, 8 and 12 or onset of puberty. Why these ages, not a clue, but it probably has to do with growth.
My kids had symptoms at birth but nothing that pointed to lyme. I didn't know I had it either, so I was not familiar with what to look for. One of my kids was born with a heart murmur, had very bad croup with every virus that came around (until age 8) and had bad ezcema around age 4. She also had cradle cap and weird facial acne at 3 months. None of these symptoms by themselves are out of line with normal healthy children. This one came down with full blown lyme symptoms last year at age 11. At 12 and is nearing the end of her treatment.
Yet, my 2nd child had noise, light and touch sensitivity along with reflux. She cried and screamed the first year of her life. She tests positive IGG's, positive Babs, mycoplasma IGGs and elevated strep titers. She is now 8 yrs old, has had a myriad of symptoms since last fall, mostly psychological, though she now has a heart murmur.
IF I listened to medical mainstream, my kids would be sickly and never finish school. They have/are being treated and are doing just fine.
Good luck.
Posted by IckyTicky (Member # 21466) on :
My children are congenital (at least the younger two are for sure).
All have Lyme, but one wasn't CDC + for it. One tested positive for mycoplasma. One tested positive for Ehrlichia. One was neg. for all co-infections. Although even with repeated testing our LLMD thinks they all have Bartonella.
My whole family of 5 have LD and various issues. My middle child who wasn't CDC + has severe neuro issues and muscle twitches as well.
![[Frown]](frown.gif)