I have heard some have taken it daily for weeks / months, while others pulse it a few days a week / month.
I was just curious how long people have taken it continuously on a daily basis?
Given the new research from Eva Sapi, I'd like to take it for a longer stretch.
Posted by baileypup (Member # 22824) on :
I've taken Tindamax for a year and a half straight. Just the last few months my LLMD has me skipping one week a month.
Posted by Abxnomore (Member # 18936) on :
Tinidazole for two years.
Posted by bcb1200 (Member # 25745) on :
quote:Originally posted by Abxnomore: Tinidazole for two years.
Every day?
Posted by Wonko (Member # 18318) on :
I've been on tindamax twice, first in winter '09 and then again recently. I felt very sick while on it and never lasted for more than a couple of weeks.
Posted by scorpiogirl (Member # 31907) on :
Tinidazole everyday for 15 months. I stopped in July and will pulse Flagyl IV one week per month starting this month.
Posted by TF (Member # 14183) on :
Flagyl 3 times per day for 2 months.
Posted by Jason21 (Member # 16393) on :
Flagyl for 6 months. Tindamax and cipro for 6 months. There is info out there that cipro helps to shuttle tindamax into the cells where it can attack all forms of LD.
Also, Dr. B mentions that taking a PPI with an abx like levaquin may make the abx be more effective in treating the infection.
Posted by Abxnomore (Member # 18936) on :
Yes, 3x a day.
[ 08-17-2011, 12:12 PM: Message edited by: Abxnomore ]
Posted by sbh93 (Member # 30429) on :
Man, all this long-term tindamax use without people being in remission is not a good selling point for it, despite Sapi's research...
Posted by joysie (Member # 11063) on :
Tindamax, 9 months, twice a day.
Posted by mr al (Member # 18191) on :
twice a day for a long time.
Can you explain why you are asking? Is it bad. I can't understand all the med talk like most of you can. Posted by ktkdommer (Member # 29020) on :
All 3 of us take tindamax two days a week, two a day. It has been a year at least.
Posted by Rumigirl (Member # 15091) on :
In spite of on and off treatment for years (off only due to treatment issues and dr changes), I have yet to have a dr rx a cyst buster, other than GSE!!! I've certainly asked. Frustrating.
One of my drs, who is well known, said he only gives it at the end of treatment!! And he is usually considered aggressive!
But right now I've been off all tx, due to gallbladder/liver/pancreas problems, so . . . This is not an answer to your question, only a comment of frustration.
Posted by CD57 (Member # 11749) on :
I was curious about this too. Does Flagyl or Tindamax hit other infections like bart?
Posted by thehause (Member # 21237) on :
Where do you all get Tindamax from?
Posted by Abxnomore (Member # 18936) on :
With a script from the pharmacy. Tinidazole has to be gotten from a compounding pharmacy with a script.
Or you can get it from a foreign country, most often without a script. That would most likely be Tinidazole, as it it manufactured by Pfizer as fasigyn but never marketed in the U.S. If you are on the west coast Mexico would be your closest bet.
Posted by Jamers (Member # 28016) on :
So which one's more effective, Flagyl or Tindamax? Taking it that long seems crazy!! That doesn't make any sense to me unless you started with it at the very beginning, but still seems like too long.
Posted by jkmom (Member # 14004) on :
I take Flagyl every day. I started in January with a few days a week and worked up to daily.
Last summer, I took Tindamax for a month every day. My LLMD switched me to Mepron to go after babesia when I tested positive.
I felt like I was herxing more on the Tindamax and am going to ask to switch back to that at my next appointment.
Posted by DolphinLady (Member # 6275) on :
I took Flagyl for 9 months, no ramping up or pulsing.
Posted by AnnaOD20 (Member # 29942) on :
I took Flagyl for 5 months...every day...pretty high dose. Believe it was the culprit behind me developing yeast issues.
Posted by Kramberry (Member # 34032) on :
Whats the basis of when you should stop it aside from having side effects.
Posted by Razzle (Member # 30398) on :
I've been on Flagyl daily for a while now (about 2 months) and still haven't reached the target dose...every dose increase hits me hard with herxing, so I know it is still doing something...
I think the reason people aren't better from taking Tindamax/Flagyl is coinfections that aren't susceptible to this type of antibiotic.
Just my $.02...
Posted by blinkie (Member # 14470) on :
I got tinidazole from my pharmacy no problem. Why do you say it has to come from a compounding pharmacy?
![[Frown]](frown.gif)