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Originally posted by KeyLymePye:
ELISA says my titer is 2.7. Is this high? Low? Average?

Dr called and said I dont have lymes because even though the ELISA is positive, the western blot is negative.

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HIGH... as chuck said.

A positive ELISA is somewhat rare... so you can believe that one. A negative western blot with a lousy lab doesn't mean much. The inferior labs don't even test for all possible bands.

So .. get a test thru Igenex to make SURE!!!

www.igenex.com Test #188 and 189

PS.. and if he called it Lymes, then you KNOW he knows nothing about it.
 

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Posted by Keebler (Member # 12673) on :
 
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To echo others' replies: a positive ELISA is a rare event and, likely points to lyme, if you are also ill, etc.

That doctor is mired in the CDC & IDSA approach, one that can spell doom for lyme patients.

Ditto to LymeToo's point about the "s"

And, if your doctor actually used the term "lymes" with an "s" you KNOW he has not been educated about lyme disease because all the profession literature speaks to "lyme"

- other than maybe having a southern drawl or adding an "s" to other words, when a DOCTOR adds the "s" often that is a red flag.

Remember lyme is to be a clinical diagnosis. While IGENEX offers the far better tests, there is no test that can rule out lyme and really, your ELISA speaks volumes.

I don't think you need another lyme test. I would save your money - and maybe ask for testing of the other tick-borne infections. First, you need a clinical assessment with a LLMD.

I hope you can find one soon. Good luck.

==========================

http://www.canlyme.com/seronegreasons.html

Over 2 dozens reasons for a negative test for someone who has lyme

==========================

www.ilads.org

ILADS
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Posted by Lymetoo (Member # 743) on :
 
Keebler said, "First, you need a clinical assessment with a LLMD."

Amen. Without delay!
 

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Posted by ChuckG (Member # 19093) on :
 
I didn't say "high". What I said was "> or = 1.10 Positive"

I have no idea what the highest possible reading is. Probably could figure it out from the Trinity math involved in the determination of the result.
 

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Posted by Lymetoo (Member # 743) on :
 
Sorry!!

2.7 is more than double 1.10 ..jus' sayin'
 

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Posted by ChuckG (Member # 19093) on :
 

I try very hard to not express an opinion about the meaning of test results, clinical symptoms or treatment. Not qualified. Never will be.

Tis the science I am interested in.
 

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Posted by KeyLymePye (Member # 34466) on :
 
Thank you. I drive 3 hours tomorrow to go to the specialist. Praying I get some help. I've lost 8 lbs because I can't swallow more than applesauce or yogurt. Having nerve paralysis sucks!

Is it possible that the titer level is elevated because I simply have built up enough antibodies?
 

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Posted by lymegal23 (Member # 28573) on :
 
^ Honestly......you have lyme. thats the honest to god truth. Positive elisas are RARE! you wouldnt have tons of antibodies to a disease that you dont even have. i mean come on lets be real here. people dont just make tons of antibodies to something that isnt attacking their body

also the fact that you are so ill pretty much says it

We are all here for you. The fact that you are going to a specialist means you are on the right track! Lyme is a clinical diagnosis.

good luck! we have ALL been through this! I was in your boat last year at this time.
 

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Posted by Annie C (Member # 14) on :
 
My ELISA test was 1 of many to follow. Although it too came back Poss. Here is what The Dr said. I know it was rehearsted in his head. The word Poss. Was typed for all to see.

It's s false poss he proclaimed it simply meant I once had been exposed to Lyme prior to the current tic bite. And Duh here's my favorite.He patted me on top of my head and he would prescribe something to help me sleep and to go home and go to bed...

I slowly stood up on my feet and this is what I said. That's All I Do Is Sleep From the Fatigue..,He wrote it and left the room. This was the 1st Dr of way to many.
 

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