kinda bummed, as it was 65. not enough over the magic # of 60 to make me happy. quit abx 3 wks ago, feeling good. supposed to call the doctor monday to talk about immune support. any thoughts?
Posted by kitts (Member # 20542) on :
My cd 57 is 65 and I feel good. But I still go up and down with terrible fatigue. I am taking CoQ 10, WHey protein powder, Brocoli sprouts, and more to address immune support. Also B12 injections or sublingual tablets, vitaminC in large amounts. What is a good CD 57 number--I am curious what to shoot for.
Posted by Marcie (Member # 10070) on :
my llmd says over 150.... Does anyone know how accurate this # is? Is it a true indicator of active lyme?
Posted by MichaelTampa (Member # 24868) on :
I've stopped abx around that score a couple times. It went up for a month or so after, then plummeted down the next month or so. It's not enough, you have more work to do, more than just an herb or two for immune support.
Posted by lost11 (Member # 34607) on :
Mines normal plus 200. Apparently still have Lyme and company.
Posted by thehause (Member # 21237) on :
I just got mine back, after doing 3 months of Rocephin and being on orals for 2 years. It was 47.
I don't know if I still have Lyme or if all the meds I've been on have just cleared out my immune system.
Apparently many immune cells are produced in the gut... so killing your gut w/ abx could reduce your CD57 (in my head this makes sense)???
Posted by tickssuck (Member # 15388) on :
2.5 years of orals and then 11 months of IV.
My CD57 was 9 (AFTER all of above stated tx)
It's not the end-all/be-all test. But I still feel very sick so I do think it's reflective of how ill I am.....what to do.....TS
Posted by RZR (Member # 20953) on :
Also 2-1/2 years orals.
CD57 was 2 last month.
I am still very sick also.
Posted by Catgirl (Member # 31149) on :
Kitts, have you read Burrascano's protocol(16th edition) for babs (google it, and it's on this website)? I don't know if you are on mepron or malarone for babs, but Burrascano warns against using CO-Q10.
Posted by Beth22 (Member # 30232) on :
thanks to all of you. i know it is true that you can't rely on the test to know if you're in remission, but I think they are pretty sure that it makes you more likely to relapse if it's low. it makes me sad, i really thought i was done.
Posted by Beth22 (Member # 30232) on :
thanks to all of you. i know it is true that you can't rely on the test to know if you're in remission, but I think they are pretty sure that it makes you more likely to relapse if it's low. it makes me sad, i really thought i was done.
Posted by BuffyFan (Member # 34679) on :
wait, how do you know what value just the cd57 is? because there was a lot tested with mine. just curious for example
CD57+ 2 CD57+ /CD3+ 2 CD57+ /CD3+ CD8 + 1
would really like someone to explain this to me...there were more results listed I just didn't feel like typing them all out but I can if you need it.
Posted by nonna05 (Member # 33557) on :
Is there a chart of some kind.....It's got to have a key of some kind. Sixgoofykids "not that bad" I have to have not understood that or I've been playing with the not as bad as it gets' for several years on my own with abx's and pain meds and immune support. Then last year either it took a turn for worse or steroids shots just sent everything over the roof. But so many are so worse off. I just pray. The answers will be found
Posted by lost11 (Member # 34607) on :
If most of you are saying that a normal CD57 means you can stop treatment.. Then why do I need treatment if mine is normal? It perfect normal too. This makes me very confused?
Posted by lost11 (Member # 34607) on :
If most of you are saying that a normal CD57 means you can stop treatment.. Then why do I need treatment if mine is normal? It perfect normal too. This makes me very confused?
Posted by Tracy9 (Member # 7521) on :
Original was 32. I felt better after a lot of treatment, it was 120. I felt crappy again, it was 49, back on treatment.
That's my experience.
Posted by Karensky (Member # 21350) on :
I am not an expert... far from it ... but what I have read is that the
CD 57 is not definitive... surprise, surprise ... what is with this
disease ?! So you cannot go with test results alone... BUT ... I
also have been told that good LLMD's will not suggest stopping
treatment until after 2 or 3 months symptom free and not in
![[Frown]](frown.gif)
(AFTER all of above stated tx)![[rant]](graemlins/rant.gif)