Can someone explain this to me? Is this related in any way to Lyme? A friend had some blood tests ran and this was a possible diagnosis. C-reactive protein was @ 2.56. SM/RNP Antibody was 3.4. Some of her symptoms are joint swelling and pain. Thanks for any input.
Posted by Lymetoo (Member # 743) on :
Which disease?? No name for it??
Posted by ItsMyTurn (Member # 31469) on :
I'm not sure. They called it connective tissue disease. No name. That was it.
Posted by ktkdommer (Member # 29020) on :
CTD is a catch all disease, in my opinion. It is often given out when it seems to be auotimmune but not all requirements for lupus or RA fit.
Is this on top of Lyme? Caused by Lyme?
Posted by lpkayak (Member # 5230) on :
sounds like multi joint disease-the name they give that is a little fancier but means the same thing which is nothing
it is true that Bb(lyme) like connective tissue much more than blood and muscle and bone
probably lyme-but i know i'm not supposed to say that
were they tested at igenex?
Posted by ItsMyTurn (Member # 31469) on :
They haven't mentioned Lyme. They are looking elsewhere. Did have ELISA test. Came back >9.1 but said Lyme was negative
Posted by Razzle (Member # 30398) on :
Point them to Roadback Foundation (roadback.org).
A false-positive ELISA Lyme test is really, really rare...false negative ELISA and Western Blot Lyme tests are very, very common.
I too have been told I had "Undifferentiated Connective Tissue Disorder" and then upgraded to "Secondary Lupus-Like Syndrome" before getting diagnosed with Lyme.
My Lyme doctor says I have Lupus that is secondary to Lyme, and the Lupus may or may not go away once the Lyme is under control.
It is a strange Lupus though - it does not affect my organs, only my joints, mucus membranes, and skin.
I've seen some improvements in both the mucus membranes & joints since starting Lyme treatment.
I never got any help from steroids or plaquenil for the Lupus symptoms.
Posted by canefan17 (Member # 22149) on :