This is topic UPDATE! YOU DID IT- Survey- New Total in forum Medical Questions at LymeNet Flash.


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Posted by Tincup (Member # 5829) on :
 
Can we get 200 more responders for the ALL important Lyme survey? At least 5,000 people?

Let's try!

Surely you know someone with Lyme who hasn't filled out the survey yet. Have them check this post, please.

http://www.lymedisease.org/news/lymepolicywonk/831.html

Let's start off the new year right!!!

[Big Grin]

[ 01-04-2012, 10:40 AM: Message edited by: Tincup ]
 
Posted by Robin123 (Member # 9197) on :
 
Ok - I'll facebook it -
 
Posted by MurphyNC (Member # 15275) on :
 
done!
 
Posted by outerspace1226 (Member # 34274) on :
 
1 more!
 
Posted by nefferdun (Member # 20157) on :
 
One more here too and I became a member.
 
Posted by Hoops123 (Member # 18333) on :
 
1 more !
 
Posted by Robin123 (Member # 9197) on :
 
Looks good - other Lyme sites sending emails to do the survey!
 
Posted by lpkayak (Member # 5230) on :
 
i did it..but really have no idea if i did it b4-i'm glad they check-cant trust my brain
 
Posted by stork (Member # 24167) on :
 
Great survey, pointed questions. Thanks.
 
Posted by 17hens (Member # 23747) on :
 
TC, I forwarded this to a large flock of chickens two days ago...any news on the responder count now?
 
Posted by Tincup (Member # 5829) on :
 
HAPPY NEW YEAR!!!!

Yes! I got an email saying they got 5,000 responses!

[Big Grin]

Amazing! I actually didn't think it could be done, but you all did it!!!

THANK YOU!!!

This compiled data will help others know what WE need to make the Lyme situation better. And after all, it is suppose to be about US, isn't it?

Thanks for making this project- a very important one- a success!

As I've always said...

You all are the best!

[Big Grin]
 
Posted by fflutterby (Member # 28081) on :
 
Nice !
 
Posted by hanginginthere (Member # 11685) on :
 
Did it! Thanks for the notification. Great survey. Hopefully some changes will result! Happy New Year everyone.
 
Posted by everythinghurts (Member # 27692) on :
 
Completed!
 
Posted by Tincup (Member # 5829) on :
 
Great! You all made this survey a success in many ways. Thank you!

Here is the official update.

``````````````````````````````````````````

LYMEPOLICYWONK: And, the Number Is?

5,200 Responses!

IDSA Guidelines and Patient Preference Survey

Let me thank everyone who responded to the Patient Preferences Survey!

We have drawn over 5,200 responses, which is just simply fabulous. We will now start the process of reviewing the responses with an eye toward publication of the results.

Our last survey was published in Health Policy, a widely respected peer reviewed journal. Those results now help inform the base of knowledge of the access to care problems that Lyme patients face.

Our goal with these surveys is to open the space for conversations in the public health arena about what is really going on with Lyme patients from their perspective.

We are trying to give voice to the patient community, which is all to often completely ignored in conversations about Lyme disease.

Your willingness to participate in these surveys allows us to do that. So hats off to you for being so vocal and letting us know your views.
 


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