I am still on the fence about installing a shunt. While waiting for the holidays to be over, I returned to my Flagyl/Ketek routine. The Amoxycillin/Biaxin had been worthless so when my doctor saw me, my trembling and stammering, he decided to order the daily IV's. That was in early December.
I am somewhat better, speech greatly improved, but am herxing a lot and am very worn out. My son points out that I am making progress, albeit slow, with the Flagyl....and enduring significant side effects. He prefers me to continue the slow, oral meds. He is concerned that the IV's may cause intolerable herxing and may not be worth the considerable effort to do it.
My husband said that it may be worse for awhile, but then I may see significant progress. And, of course, I can always stop the IV's.
It is expensive and difficult, although he thinks he has found a way to do it at home for much less money. But he, too, is ill and it may be too much of a burden on him to handle that along with his work and caring for me. My son thinks I can qualify for home health care so we are looking into that.
What would you do and why????
Posted by bigstan (Member # 11699) on :
If your going to do Rocephin you should be doing Flagyl as well. Rocephin is one of the drugs that is good for active LD but it will quickly reform to cystic LD. That's where the Flagyl comes in to kill the cysts.
Posted by lyme-o (Member # 35115) on :
My husband is on Claforan at home. He does it himself. But they started him on low dosage to prevent herx. Then worked up to the regular dosage. And then sees a visiting nurse right now once a week. Hes had a problem with elevating liver enzymes. So now his dose is 3 days off, 4 days on IV. We order all of his drugs through Infuserve in Florida.
Posted by farraday (Member # 21494) on :
How do you get the Hickman catheter installed? Who monitors...the nurse? I was told that I need a surgeon with hospital privileges to install the catheter. How do I find someone who knows what lyme treatment is all about? And then who can monitor me as my LLMD is too far away? And last but not least, how do I pay for this?
I have Medicare and can sign up for Medical but I was told they won't pay for at home infusions. We live too far away to make daily trips. Someone suggested I apply for home nursing. Too much for my muddled mind!!!