my eyes are really bothering me. they are very dry, feel like i have sand in them, have stabbing eye pain, throbbing around the eyes, etc., etc.,
this morning i woke up to bloodshot eyes and got so scared i just lost it. the temple pain is bad.
i started shaking and crying. called my opthamologist. no appt untill april 4 but they want to see me on monday for a workin appointment.
then my dang primary called and wanted me to go see a neurologist at 8 in the morning which conflicts with the eye doctor.
i don't know what to do. i'm afraid they will want to give me steroids.
i'm sick to my stomach with worry over going blind.
i feel like throwing up and am so nervous and shaky.
this is making me physically ill, really.
Posted by Lymetoo (Member # 743) on :
Steroids in the eyes may be necessary. Keep the apptm with the neurologist. He will be able to tell if it's TA.
Sounds more like Sjogren's to me.
Posted by randibear (Member # 11290) on :
can lyme patients get steroids in the eyes? thought it was a big no-no...
Posted by Lymetoo (Member # 743) on :
It's not the best, but if you have to you have to. Same with if it's TA, you have to.
I'm not saying it's Sjogren's, but what you posted today sounds like it.. along with the watery eye.
But just saying that I do have it and have not had to use steroid drops yet. I have used an abx/steroid ointment for a brief period of time though. No trouble.
Posted by randibear (Member # 11290) on :
hey tu, do you think this can all be just stress?? i mean honestly???
Posted by 0ldman (Member # 22101) on :
When I have a rough herx my eyes burn, I'll get a sty on my eyelids.
I've found flushing my eyes with water a couple of times a day really helps get through this. If I don't, they get all dry and scratchy, multiple sties, downright uncomfortable. Flush them as soon as they start bothering me and they'll start watering properly.
Some toxin is making its way out through the tears, oil in my skin, etc. Rinsing it off helps, aloe vera helps with the skin irritation and seems to keep the oil production down so my skin doesn't get as irritated.
Posted by manybites (Member # 33750) on :
Your bartonella infection is so activated that is maiking lyme as well activated.I had this symtoms exactly 9 years ago.Please go into treatment strongly for bartonella and lyme.
I also hope you do not have ehrlichia or ricketsia in your system.If you go in Mino , azithr and rifamphin with Flagyl you will cover them all .
Posted by randibear (Member # 11290) on :
i have my appt with a great doc on april 4th. am just treading water until then.
my fear is making everything much worse.
the neurologist that my primary wants me to see rates a 1-2 from patients, so i ain't happy about that. but i do like my eye doctor very much. he knows about lyme also.
they're going to "work me in" monday around 10, but can't promise anything.
i am not going to let them put steroid drops in my eyes and that might po them off but at this point i'm like "well you jerks should have listed to me back in december when i was starting all these problems."
and the headache is just killing me.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by randibear:
hey tu, do you think this can all be just stress?? i mean honestly???
- I don't know. Stress can do a lot. You listen to your doctor on the steroid drops. If it will save your vision... then....
Posted by randibear (Member # 11290) on :
willl a neurologist know when to prescribe steroid eye drops or would it be my eye doc on monday? i've been going to him for over 15 years and like i said, he's familiar with lyme and has another patient with it also.
Posted by Lymetoo (Member # 743) on :
Prob the eye doc .. but the neuro can tell you about the TA..
Can you see both on Monday?
Posted by randibear (Member # 11290) on :
i see the neuro tomorrow at 8 and the eye doc at 10 on monday.
should be interesting. if my nerves hold out!!!
Posted by Brussels (Member # 13480) on :
Sjogren's syndrome, it looks a bit like that. How are other fluids in your body, saliva for example?
Posted by randibear (Member # 11290) on :
oh I'm fine with all that. But have dry skin tho
Posted by Lymetoo (Member # 743) on :
Good, randi! Do ask about Sjogren's. You can get his feedback, then have your LLMD test you for it.