This is topic UBI - Ultraviolet Blood Irradiation in forum Medical Questions at LymeNet Flash.


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Posted by dal123 (Member # 6313) on :
 
Have any of you done this? Plse PM me names / places that do this in Texas. Thanks!! [Wink]
 
Posted by seibertneurolyme (Member # 6416) on :
 
Hubby had 3 of these treatments done back in 2002/2003 when we were just getting started on his lyme journey.

In my opinion the treatment may help with viruses. It could possibly help with bartonella. But I do not think it will do anything for lyme or babesia.

To locate a doc go to the ACAM site and search by either state or procedure.

The price can vary greatly between different docs and it will not be covered by insurance.

http://www.acam.org

I would also suggest treating with lumbrokinase or something else for hypercoagulation for at least a couple of months before trying these treatments.

I remember that during one of the treatments hubby's blood kept clotting and they kept adding heparin and finally had to put the needle in his foot to be able to get the blood back into him. It was not fun and he felt really awful afterwards -- definitely had some sort of herx.

The doc did know enough to order a Hemex test after this incident, but it would have been better to have done that first and most likely the treatment would also have been more beneficial without the hypercoagulation issue.

Bea Seibert
 
Posted by MattH (Member # 30846) on :
 
I pmed UVB info.

Note not all UVB treatments are the same so the treatments can vary in benefit from doctor to doctor.

I have had 7 treatments and am taking a break to do a couple of things before I go back. The UVB treatments I have had takes 6 ounces of blood out, run that past a UV light and then drip it back into your arm. Takes about 45 minutes.

My LLMD doc has started me on rifampin to hit Bart so I am taking EDTA and Glutathione IVs because of all the ABX I am taking (liver support). Once I get the Bart knocked down and my heavy metals challenge comes back good I will probably resume the UVB. My hesitation is that I may start to treat with PE1 or like device and see how that works before resuming.

I can say that between the UVBs, the ABX, and NAC the cough from my CPN is gone (had the cough for more than 12 years and just thought it was allergies). Took about 6 months of treatment to get rid of it.

All the Best, MattH
 


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