read on here thanx
Posted by BoxerMom (Member # 25251) on :
All I can say is I got worse and worse when I was undiagnosed and treating everything except Lyme and co-infections.
I actually felt great on my first few months of meds. I herxed, but I had energy and clarity I had not had in decades.
It felt like a miracle.
I was also scared to take so many antibiotics. It took me a few months to work up to pediatric doses of three meds. I had plenty of crappy days, but I had good ones, too.
Now, I'm in year five and feeling good most of the time. I tolerate crazy amounts of antibiotics. I still have to take good care of myself, eat well and detox, but the really bad days are long gone.
Yes, it is totally worth treating this disease.
Posted by derk diggler (Member # 31903) on :
thanx manybites, and boxermom, appreciate it, just one of those nights i guess, thanx again
Posted by glm1111 (Member # 16556) on :
You could have a parasitic infection. Symptoms are similar to Lyme. Google parasite symptoms and check the symptom list for parasites at Humaworm. You can start with half the dose of humaworm or Parastroy.
Whether you have Lyme or not, antiparasitics and salt/c is what worked for me after 4 yrs of abx did not,
Try and get out of the fear and take one step at a time. You have to start somewhwere to get your life back.
Posted by In19944 (Member # 34272) on :
you already know what you gotta do. if i could start over i'd do salt c plus. it can get worse when u think it can't.
treatment doesn't always suck. some people feel better. you need a co infection panel done as u know u have lyme at least. mms doesn't work. salt c is cheap and doable and can cover all infections and parasites....works for some
Posted by lyme in Putnam (Member # 11561) on :
I contribute to the horror stories, but I was "lucid" in February and some of march. It wasn't that long ago, it can happen, keep goin. Take what you have to to get through the day. You can do it. It's hard and sux, but when we're in the middle of it, do we have a choice?
Posted by tickled1 (Member # 14257) on :
I agree you need treatment and it sounds like you've already consulted with a LLMD? I am much better than I was. Treating was hell but got me to a much better place. I'm not in remission yet but I'm better.
My advice to you though is to not let people on here diagnose you. There are some that try to give very specific diagnoses and my worry with that is that we are in such a vulnerable state that we take something and run with it.
I've done it myself many times. Someone on here will tell you "Oh, with your symptoms you DEFINITELY have this or that and you HAVE to do this or that". That can be very dangerous advice to a vulnerable, sick person.
I know everyone's intentions are good but we are not doctors and we cannot dianose. Yes, we all probably have a lot more knowledge and experience with this disease than the majority of doctors out there but please don't take recommendations on here and self treat. Do you have a LLMD?
Posted by atheana58 (Member # 33429) on :
Hang in there, try and stay strong. This too shall pass.