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Posted by lyme-o (Member # 35115) on :
Hubby given a symbicort inhaler today to see if it helps his breathing. Anyone use it? Made his arms shaky for a while. Just wondering about it.
Posted by lyme-o (Member # 35115) on :
Seriously? Nobody has been put on Symbicort?
Posted by nonna05 (Member # 33557) on :
ask pharmacy if it's a steroid

sometimes the inhalers can jazz you up for a while..

I'm not sure what my script was for cause
i didn't use it,so not sure about name
I just figure the breating is babs or smoke from all the fires around
Posted by Keebler (Member # 12673) on :
Does your husband have lyme? If so, does he have a LLMD?

If he has lyme and if that is a steroid spray, his LLMD should be consulted. If a steroid, unless life threatening, steroids are to be avoided.

If it makes his arms shaky, that sees to be far too stimulating to his whole body, regardless of what's in it.

Has he tried CORDYCEPS?
Posted by lyme-o (Member # 35115) on :
His LLMD actually gave him the sample to try. We've figured it out. Instead of 2 puffs at the same time, 1 puff 4x a day is working great and no shakes.
Thanks all
Posted by Keebler (Member # 12673) on :
Good to hear on both counts.

There is also something called a "spacer" - tube a bit bigger than a bathroom tissue cardboard roll - that goes between the inhaler and the mouth. Insurance may not cover it, though.

Inhaler SPACER

. . . Only use your spacer with a pressurized inhaler, not with a dry-powder inhaler. . . .
Posted by Keebler (Member # 12673) on :
Curious, just a basic Wiki search has a bit more detail. For those, wondering, it is a corticosteroid which are often not advised - however -

if a LLMD suggests it, that is best for then you know that all the bases are covered with infection protection. And, each patient has different requirements. When necessary, it's necessary.

Still, just be sure to read up on the possible side effects, just in case:


Symbicort / Vannair

Budesonide/formoterol is a combination formulation containing budesonide and formoterol used in the management of asthma and chronic obstructive pulmonary disease (COPD) in the EU.

Budesonide acts by reducing and preventing respiratory tract inflammation, while formoterol dilates respiratory tract.

Budesonide is an inhaled corticosteroid and thus functions as an anti-inflammatory agent. Formoterol works as a long acting beta 2 agonist resulting in bronchodilation. . . .

[Side-effects are mentioned. Trembling is one of those.]


As this may be a temporary help, you may also want to search:

Himalayan Salt Pipe (not a pipe at all but a method of inhaling air OVER a little bed of salt in a tube of sorts).

CORDYCEPS also helps my lungs as do STINGING NETTLE capsules, ALLICIN or OLIVE LEAF EXTRACT (Seagate brand only).


Hope he's been advised to avoid even a tiny bit of acetaminophen.

December 2011

Studies Suggest an Acetaminophen-Asthma Link


. . . Even a single dose of acetaminophen can reduce the bodys levels of glutathione, a peptide that helps repair oxidative damage that can drive inflammation in the airways, researchers have found. . . .


MAGNESIUM is also vital to help the lungs. It has many wonderful properties, including helping to reduce inflammation.

PubMed Search of Medical Literature

Magnesium, Lungs - 1022 abstracts

Cordyceps, Lungs - 37 abstracts

Stinging Nettle, lungs - 6 abstracts

The Importance of Magnesium to Human Nutrition

The Role of Magnesium & Calcium in the Lungs
Posted by Keebler (Member # 12673) on :
I know your husband's LLMD has already okayed this, still for others wondering about steroids, it's important to have this information, just in case.

Topic: what do STEROIDS actually do to us?
Posted by lyme-o (Member # 35115) on :
Keebler, you've got me so scared now. I'm sending down an email to address this with his LLMD. Why would she give him this? She wanted him to get advair last month. I told her that since it was $300 we just couldn't. Thats when she pulled out the samples. She read over all of the directions and then gave him 3 samples, one of one dosage, 2 of another. But now I'm nervous. And of course, it helped him alot.
Posted by lyme-o (Member # 35115) on :
Ok this was the reply I got to my email.

Dr. " " says that the asthma sprays with inhaled steroids are fine for Lyme patients. It is the high dose oral steroids that are a problem for some patients. Have a wonderful weekend!
Posted by OtterJ (Member # 30701) on :
Lyme-o, I am on advair and it does not behave like a true steroid. It goes to the site of inflammation, the muscles surrounding the bronchial tubes and then chemically falls apart in the body. It is NOT like taking oral steroids. Go to GlaxoSmithKline website and sign up for Bridges to Access, a program that helps you by supplying meds (Advair). They will need to see a copy of your taxes and look at finances, but if you are hurting this way, it will help. As an asthmatic with lyme, I need steroids. I encourage you to continue with meds if you need them. Inflammation in the lungs causes scarring and over a lifetime will give you COPD. I should know.
Posted by lyme-o (Member # 35115) on :
Thanks so much OtterJ. We've already applied for the Bridges to Access and don't qualify unfortunately. This is for hubby btw, not for me. Thanks so much for such an awesome explanation. All of this is so confusing.
Posted by Maryland Mom (Member # 2043) on :
Hopefully your mind has been put at ease about hubby using the Symbicort now.

Yes, the budesonide in it is a corticosteroid, but its effects are locally acting within the respiratory tract, very different from systemic corticosteroids.

As for the original question, which was about your husband's arms being shaky after using the inhaler: this is a side effect of the formoterol in Symbicort.

Formoterol is an adrenergic that helps to open spasming airways, and because of the way this medicine works, it can cause side effects like the shaky hands, and also nervousness, dry mouth, increased heart rate, and the like. These side effects are considered normal, but if they become severe or troublesome, talk to your husband's doctor about it.
Posted by Marnie (Member # 773) on :
The bottom line is this...we HAVE to reduce inflammation AND hit Bb.

Ongoing inflammation is a *very* dangerous situation. Ongoing inflammation = cancer.

But...steroids PRIOR to abx. = disaster for lyme.

Years ago, Romanian docs gave IV MgCl to raise the very deficient levels AND IV abx. to cure lyme.

MgCl is wonderful and works in many ways...stopping a histamine response, inhibiting HMG CoA REDUCTASE (keeping HMG CoA up), and is anti-inflammatory. Getting it back into the cells is a problem primarily because Bb reduces the amt. of ATP that the infected cells make and Mg is attached to ATP as Mg-ATP.

Raising ATP levels esp. in the infected cells is/was the basis for DNP used in Italy, Proton therapy and the "medicinal food" called Axona for AD (which contains caprylic acid + other nutrients). Ultimately caprylic acid -> liver -> ketone called BHB -> crosses the blood brain barrier -> enters the cells citric acid cycle -> more ATP. Caprylic acid is in virgin coconut oil (which you can warm over a tea candle and apply the warm oil to your skin).

Inhibiting HMG CoA reductase blocks the cholesterol pathway which is a pathway Bb uses to build his cell walls.

Which is why (side effect producing) statin drugs help, don't cure, but help.

Along comes berberine chloride which works in many many many ways.

I REALLY believe it can work.

But if you add too many other things to the equation, you may actually prevent it from working.

Example...garlic has many things in it which normally makes garlic a really good thing, but

It induces STAT 1

Berberine works by reducing STAT 1 and STAT 4 (cell signals), etc.

So taking berberine and garlic -

makes berberine less effective.

The more things you add, the likely one will interfere with the other...

which will lead you back to the starting over gate.

Berberine chloride is anti spirochetal! And it is anti-inflammatory and it inhibits HMG CoA reductase and....

The list of "positives" goes on and on.

If you ever chose to try that approach to healing, I strongly recommend you stop ALL other Rxs and supplements during the trial.

[ 06-30-2012, 01:57 PM: Message edited by: Marnie ]
Posted by Al (Member # 9420) on :
Thanks Keebler and Marnie , I found some helpful
info from both of you.

As for Symbicort, I've been on it for 4 years . It's an inhaled steroid for the lungs. I can't breathe very well without it. I had a lung collapse and was in a coma for a long time. I have severe lung damage.
This drug is very dangerous, it has already caused severe bruising,eye problems, chronic thrush, heart abnormalities and much more

I also have severe chronic lyme disease and have consulted a few of the well known LL doctors .
I have probably hundreds of research papers and articles on lyme .

Back to your question ! If you have Asthma or COPD I could see a trial of this drug; I don't think it would help much otherwise.

Have you had Alpha-1 antitrypsin deficiency test done ?
You should have a lung function test also

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