So occassionally I get the opportunity to throw in some Lyme wording with the general public. Overall I am quiet about it, unless the opportunity comes up. I am dumbfounded by my success rate of questions imposed by those that responded that they have Lyme, their family members or they know of someone with Lyme, or someone that has been bitten by a tick.
A few days ago I was at a birthday party and started chatting with the Birthday girl's sister. She had mentioned that she was a teacher & that she tought children with Autism, ADD, and various disorders. I could not resist & so I interjected that there have been reports that some children with behavioral issues ended up having Lyme. I gave her the report that certain kids were treated and reverted back to their old self.
I was hoping that she might already know this (wishful thinking), but she did not respond with any indication of this knowledge or even any grand interest with this new found information. She did however point to her mother that was sitting on her right side, and stated my mom had Lyme and she knows about this.
She got her moms attention and so went about two minds eagerly discussing the experience and information reserved for only a chosen few.
She had confided in me that fact that she had been bit by a tick in 1994 and was deathly sick. She had developed symptom after symptom, in fact 40 of the 44 symptom list for Lyme as she put it. She had been to doctor after doctor with no significant favorable outcomes. She was even surrounded by 25-30 doctors in a NY hospital. Each one of the doctors attempting to decode her diagnosis, but they were all stumped.
She had 2 stroke episodes and it left her somewhat disabled. I could tell that she had developed a permanent speech problem as a result of this. She was at the hospital at one point and she was on her death bed. She had asked her husband to take her away from the hospital, since they did not know what they were doing.
At best, between all the doctors she had visited throughout her ordeal, she was diagnosed with MS. One night she received a message from God, as she confessed. He told her, "you don't have MS." With this information she went about researching and self diagnosed with Lyme.
She started IV treatment, but it did not resolve her symptoms after 4 months of being on them. She had then discovered Colloidal Silver (CS) and herxed on it. She stopped ABX and continued with CS. She had extreme neuro symptoms & trembling of her limbs and body while on CS.
It took her another 8 months to resolve her issues with CS & has reported to take it whenever she feels a little sick with something (Flu, cold.......etc) thereafter. In essence she has taken CS for 18 years on & off since getting sick & that is all she has ever taken. She never regressed or relapsed after the first 8 months.
Quite honestly CS wold have been my last choice. I would have been too worried about side effects. If all else failed, then I might be forced into trying. I have read reports from Tom Grier on his experiment with CS and various pathogens. CS supposedly had no effect on the bugs he had at his disposal for testing. He never did test it on BB though.
This teaches us to keep an open mind & to keep trying when all else fails. She had so many symptoms & I would have predicted someone in that state would be chronically sick. She reported that she felt them moving inside her and in various portions of her body, something that I can relate to.
I have also found out that she lives off the same main road that I am on. It was very noisy at the party and it was tough at times to make sense of what she was saying. She said she bought her CS at HomeCure (http://www.homecure.com/searchprods.asp) and did the 50ppm one. I did a search & see that it could be one of 2 products. She also said at times they have sales, 2 bottles for 25.
I just got her phone number today & I will be speaking to her again.
Posted by birdie67 (Member # 35994) on :
Thank you for sharing that story. It's very interesting and sure does help to hear success stories.
I have a friend who is in remission from lyme from doing 4 months of IV Doxy, combined with Colloidal Silver. She also did a lot of sauna, enemas and chlorella.
There is hope, even though at times it is very hard to see.
Posted by Lymedin2010 (Member # 34322) on :
Good to hear. It is very important for us to keep an open mind & share information.
How sick with Lyme was your friend? Did she have many symptoms or only a few?
Posted by In19944 (Member # 34272) on :
Awesome story. It stinks that even people with autistic children are not the least bit interested in the chronic infection/yeast connection.
And that's great that you talk about lyme. I think the old days of keeping it under your hat are over and definitely counterproductive for lyme awareness. These days, you'll almost always find someone who knows somebody affected by it.
Keep us updated on what else she says, especially about CS.
Posted by birdie67 (Member # 35994) on :
She was VERY sick! She actually was accepted to the Mayo Clinic for testing, before a Doctor here figured out it was Lyme.
Thank goodness she never went there, they would of been no help.
She had a port put in and did the IV doxy.
They had a fundraiser in our town for her she was so sick.
She works full time now, watches her diet and is running in a marathon next month.
Said she did the sauna everyday and lots of chlorella along with the colloidal silver.
Posted by jlf2012 (Member # 36002) on :
Thank you so much for sharing these stories. When my son was on doxy alone we were seeing improvement. Now with ketek and just 1/4 flagyl he is declining. (If it's a herx, it sure is a long one.) He's 25 and I can tell he's ready to give up.
This gives me hope that there are other ways to recover from this awful illness. I'm familiar with CS, but not so much with chlorella.
It's hard to know when to stop abx though because so many get well with them if they stick with it. I wish I knew...
Posted by CD57 (Member # 11749) on :
So this means that CS gets into the CNS to hit Lyme? That has been my one skeptical angle on it.....that it may kill, especially Bb, but can't get into the CNS and other places it needs to go.
I have used ACS200 spray per my docs recommendation. I never felt like it was doing much but wasn't scared of it or anything. I think it's a pretty good product. The handout that came with it has a testimonial that it cured a heart valve infection. Also the company has said that the believe it crosses the BBB although they can't prove it. It's 200 ppm.
This lady had neuro herxing on it, though, right?
Posted by CD57 (Member # 11749) on :
What bugs did Tom Grier test by the way?
The CS I have cured my cat's topical fungal and bacterial infection. I also sprayed it on her infected tooth and it seemed to cure that as well.
Posted by annxyzz (Member # 20404) on :
CS was used for sypphilis years ago before ABX . I tried it and it did not help, but I may have used a bad brand . I have had success with CS sinus rinse for sinus acute infections . For lyme , I felt zero improvement .
If I do have parasites , or if most of us do , the CS would have little effect on most of those I would guess , and that would explain lack of progress . CS might work on a few parasites , but I doubt it would kill all of them like tapeworms , flukes etc....
Posted by Lymedin2010 (Member # 34322) on :
Yes, she most definitely had major neuro symptoms exacerbate with CS. � Her whole arms shook as well as her body and she herxed big time. �When she used the term herx within the first 2min of our conversation, I knew she was one of us.
"I tested the CS products at Full Strength, and 1:10 and 1:100 dilutions. I tested against gram positive and gram negative bacteria, anaerobes and anaeorobic bacteria and against Candida albicans and trichophytan and mentagrophytes mold. (In each of the two experiments I used over 144 agar plates)
I tested against several forms of streptococcus, staphlococcus, and Klebsiella, pseudomonas, bacteroides, e-coli, haemophillus, clostridia difficile, C. perfringeens, and just about everything else that the lab had available in stock for common pathogens. I did not test Borrelia species as the lab was not equipped for this and did not stock BSK-II media.
I found across the board that at full strength no Colloidal Silver at any time ever had any significant inhibition of bacterial growth as compared to the control plates using antibiotic saturated paper disks.
Thinking that the nutrient agar might have soaked up the CS and inhibited the antisceptic effects of the CS; I transferred the cultures to nutrient broth and compared CS at full strength to normal tubes, and found no decrease in bacterial growth."
Posted by Lymedin2010 (Member # 34322) on :
I cannot argue with the results this person had and it serves as a platform for learning and acceptance. I am just as worried about CS as many who report concerns.
This is a random person I met locally and I am very fortunate to have been able to hear her story and to be able to share it with our community.
I wrote CS off very early on and vowed never to take it, but I was pleasantly surprised with this story. To the point where I am willing to weigh the risks and attempt it. After all, over a years worth of various ABX has only produced increased symptoms and progression.
All this coming from only a few symptoms that should have been easily fixed with my initial ABX usage.
Here is a study that contradicts Tom and was reported in the thread I linked above.
BYU University,tests silver against antibiotics.
According to Dr. Ron Leavitt of BYU University, as reported by Deseret News, Tuesday, May 16, 2000, a quality colloidal silver may serve as a suitable antibiotic alternative.
Lois Collins of Deseret News quotes Dr. Leavitt as writing "The data suggests that with the low toxicity associated with colloidal silver, in general, and the broad spectrum of antimicrobial activity of this colloidal silver preparation, this preparation may be effectively used as an alternative to antibiotics."
The original study tested ASAP colloidal silver against tetracyclines, fluorinated quinolones (Ofloxacin), the penicillins, the cephalosporins (Cefaperazone) and the macrolides (Erythromycin). Among the microbes tested were streptococcuses, pneumonia, E. coli, salmonella, and shigella.
BACTERIA TESTING
Microbiology Department Brigham Young University 775 WIDB P.O. Box 25253 Provo, Utah 84602-5253
May 13, 1999
American Silver's Antibacterial Product (ASAP Solution)Testing Results Summary
The following results suggest that American Silver's ASAP solution is a broad spectrum antimicrobial agent-it is able to effectively stop the growth of, and in fact kill, a variety of bacteria.
American Silver's ASAP Silver Supplement has been tested against the following organisms.
Staphylococcus aureus (Pneumonia, eye infections, skin infections (boils, impetigo, cellulitis, and post-operative wound infections), toxic shock syndrome, meningitis, food poisoning, osteomyelitis, and many others) inhibited @ 2.5 ppm and killed @ 5 ppm. 1/22/99 BYU Report.
Shigella boydii (Bacillary dysentery-characterized by severe cramping abdominal pain and bloody diarrhea) inhibited @ 1.25 ppm and killed @ 2.5 ppm. 1/22/99 BYU Report.
Salmonella typhimurium (Food poisoning and enteric fever) inhibited and killed at a concentration of 2.5 ppm. 6/7/99 BYU Report.
E. coli (Food poisoning, urinary tract infections, traveler's diarrhea, diarrhea in infants, respiratory tract infections, and wound infections) inhibited and killed @ 2.5 ppm. 1/22/99 BYU Report.
Haemophilus influenzae (Otitis media (ear infection), pneumonia, meningitis, throat and sinus infections (including epiglottitis in children and sinusitis), and suppurative arthritis in children) inhibited and killed @ 1.25 ppm. 1/22/99 BYU Report.
Enterobacter aerogenes ( wound infections, urinary tract infections, bacteremia, and meningitis) inhibited and killed at a concentration of 2.5 ppm. 6/7/99 BYU Report.
Enterobacter cloacae ( causes ilnesses similar to the E. aerogenes) inhibited and killed at a concentration of 5 ppm. 6/7/99 BYU Report.
Klebsiella pneumoniae (lower respiratory tract infections, nosocomial infections (infections spread in hospitals), urinary tract and wound infections, and bacteremia) inhibited and killed @ 2.5 ppm. 1/28/99 BYU Report.
Klebsiella oxytoca, (Similar to those infections caused by K. pneumoniae) inhibited and killed at a concentration of 2.5 ppm. 6/7/99 BYU Report.
Streptococcus mutans (A major cause dental plaque and tooth decay etc.) inhibited and killed @ 5 ppm. 2/3/99 BYU Report.
Streptococcus gordonii (Tooth decay, also implicated in infective endocarditis-an infection of the heart valves) inhibited and killed @ 5 ppm. BYU Report 2/12/99.
David A. Revelli
Microbiologist
Brigham Young University
Dr. Ron W. Leavitt, Ph.D.
Professor of Microbiology/Molecular Biology
Brigham Young University
Posted by Marnie (Member # 773) on :
I understand (!!!), but it still makes me nervous.
There is no way to ultimately eliminate silver that I know of.
I'd like to find a safer way.
Gallium?
Posted by CD57 (Member # 11749) on :
How interesting that these studies conflict. Was it the strength -- ie; ppm?
I have heard quite a few success stories with silver -- but only if the person had Lyme and that's it. One pathogen -- few problems. And from what I have read, if one was infected many years ago and not since then, chances of having just Lyme was much higher. It's the ticks and fleas in recent years that carry more.
Posted by Lymedin2010 (Member # 34322) on :
"I tested the CS products at Full Strength, and 1:10 and 1:100 dilutions."
Full strength would indicate nothing but the medium and the CS, the highest possible & something that cannot be achieved in vivo at that level.
I think it has to do with the product of CS. Not all CS is created equally.
I would much rather take one that has been proven to work by other Lymies, to remove some of the guess work for us. There are too many variables to play with already.
I have spoken to this woman tonight & I will post some of her responses by tomorrow. She had encourged others to take CS as well & I will mention those as well tomorrow.
Posted by riverspirit (Member # 19435) on :
There is a very sweet woman named "ocean" who posts here sometimes. She is basically in remission, and she attributes her recovery to colloidal silver and laser, if i'm correct.
My LLMD asked me to start on argentyn 23 a few years ago, but i was afraid of putting silver in my body, so had a bottle of it in my cupboard unused for a long time.
Then a few medical professionals tested me, and told me that this particular silver (which is actually a hydrosol) is right for my body. I started very slowly and carefully, and am now up to about three teaspoons a day (30 sprays, three times daily).
Yes, i've been herxing.
It's always helpful to hear healing success stories here.
Thank you to all who take the time to share your experiences ~
Posted by Lymedin2010 (Member # 34322) on :
Below you will find some of my questions that I posed to this woman. At the party it was difficult to hear her over the noise & her speech impairment made it that much more difficult. I know she had answered 8 months to my question at the party (since I repeated it to her), but perhaps she interpreted my question as one for what she took between one particular ABX and CS toward the end.
This time she clarified that she was on CS, from start to finish, for a total of 5 months & not 8. I provide more detail in the questioning below.
There is also, something else to clarify. When she states that she takes 50PPM, she meant that she now takes that. The version of CS at that time had 2PPM & the 50PPM did not exist.
1) How long was the tick attached to you? How long till after the tick bit did you get sick?
A: A Deer Tick was attached for a few hours in her eyebrow. She had discovered it when coming home, back from church. She must have gotten it from skimming the bushes that were around, but she did not go on the grass on that particular day at the church.
Note: This is the second person that I now know that has gotten bit at a church environment. The other person that I know of is my sister-in-law, who coincidentally was bitten a few weeks after I was trying to warn the whole family & whose front lawn produced a tick on my daughter within 10-12 seconds of setting foot on it.
It appears that ticks congregate where human do as well.
2) When did you start treatment after being sick, how long were you sick for before receiving treatment?
A: She was sick for 3 years before starting Antibiotics. Her first symptom was nausea while driving in the car. She developed headaches and sensitivity to the sun, sensitivity to fluorescent lighting, adverse reaction to alcohol as subsequent symptoms, along with many other symptoms as time went on.
She had 40 of the 44 Lyme symptoms listed as her disease progressed. She had a mild stroke at one point & a year later had a major stroke. The last stroke affected her speech. When she had the last stroke she was admitted to the hospital & they gave her steriods & she felt worst and sicker. She told her husband to get her out of there quickly & so left within 2-3 days.
After this she had the message from God & began searching for the true nature of her illness.
At one point all her teeth were getting loose & she had to pull them out. Her dentist gave her a course of antibiotics and she felt weird & had herxed. She explained this and was able to get more ABX.
One day she was talking to one of her friends and her friend mentioned that her son had Lyme and had a few overlapping symptoms and had herxes with ABX as well. This is when she learned what she had experienced with ABX were what was called herxing.
She researched and discovered that indeed it must be Lyme that she had. This friend had given her son Colloidal Silver (CS) & it resolved her son's symptoms.
She was on over a year of ABX & then added the CS without any hesitation. She got better on CS within 5 months. So she was on ABX at one point & CS & then dropped the ABX as she was getting better with CS.
3) What type of ABX were you on & for how long?
A: She was on over a year of ABX, at first prescribed & then she obtained animal ABX from pet stores. She had taken Amoxicillin, Biaxin, Cefodraton (???). She mentioned a few that I could not understand & was tired of asking her to repeat. She has a speech problem, as I mentioned before, and it is difficult to hear her at times.
4) Did you herx on the ABX?
A: She herxed on ABX & initially did not know what it was until she realized/learned it was Lyme. Ultimately ABX made her feel better as well.
5) Did you get any better on the ABX or only worst?
A: She herxed & then felt better & would get sickly when she stopped ABX. She never resolved all her symptoms or went into remission with ABX alone.
6) How did you find out about Colloidal Silver and were you nervous about taking it? Do you know about the dangers of taking it & that the body does not easily eliminate silver?
A: She found out through her friend & had no hesitation whatsoever. She took it knowing that the smaller the particle is, the more easily it passes through & that up to a certain PPM was doable.
I looked at the website after the conversation again & it looks like they have a 10PPM and not a 2PPM. Maybe they changed the dosage throughout the years & now it's 10PPM. After she got better with the 2PPM CS & years later she switched to the PRO version (50PPM) when it became available as a new product.
She takes the 50PPM everytime she feels sick with colds & flu symptoms or anytime she feels sick at all. She also takes it 3-4 days each month during the summer to make sure she never gets sick of Lyme or anything else. She takes it this way prophylactically.
She works in her garden often & pulls ticks off her dog often. She mentions that she is very sensitive and aware of ticks and can feel them crawling on her if one got on her. She once pulled 30 ticks off her dog, after the dog ran into the woods. They would always be deer ticks. No wonder so many people here are getting bit, just as I suspected, this place is loaded.
Personally, I don't see how she could have taken CS with such conviction and not worried about it. I would have at least questioned it and still be weary throughout the process, but that is just me.
7) What dose of CS did you take & did you skip any days? Did you take it straight without any breaks?
A: She took the 2PPM at the time and took 1 teaspoon 3x a day. She used an eye dropper and placed it under her tongue so that it can absorbed sublingual and then swallowed the rest. She did not skip any days for the few months she was on CS.
8) Did you start out by taking lower doses of CS?
A: No. She went full speed and did 1 teaspoon 3x a day on day one of the 2 PPM CS. She felt the herxes about 6-7 days into the treatment & it was severe.
9) Is it the SilvaSolution from HomeCure? Is it the Regular 24.95 or the PRO version for 29.95?
A: It was the regular version & they did not have the PRO version at that time. When they came out with the PRO version she switched over, but that was after she had already gotten better. CS tastes like dirty water to her and she never felt any adverse reaction or developed any symptoms as a result of taking it. She only resolved symptoms with it.
So after taking it for 18 years she still feels this way & is such an astute and firm believer.
10) Did you think it may not work & that you were only getting sicker? How did you know to stick with it?
A: She tried and monitored. So after getting worst (herxes) she kept on getting better & better, never regressed. She had also tried Salt C prior and in addition to CS, but did not feel Salt C was doing much for her. She ended up dropping Salt C, as she felt the CS was doing the job well for her. She proclaims that she would have taken rat poison had it helped with her symptoms and made her better. Amen to that! So would I even if there were risks involved and a favorable chance of coming out of this in remission.
11) Did you test positive for Lyme or any Coinfections (Babs, Bart...etc)?
A: When she susptected Lyme she had two tests done and they both came back negative. A third test also came back negative. When she started treatment, she got a fourth test and finally tested positive. I asked her about Bart & Babs and coinfections, but she did not know about them & did not recall any such test. Sounds like 20 years ago they did not know about coinfections.
12) Did you stop all ABX & then start CS? Did you take anything else with the colloidal silver? Any supplements or any probiotics?
A: Over a year of ABX, then overlapped ABX with CS for a very short time (for a month or so). She was on CS for 5 months until she was better, so this was a total of 1 � yr worth of continuous treatment in total. She took various supplements such as magnesium, Multi vitamin, Pollen...etc. She never took Vit D on its own & she never knew about needing to take Vit D.
13) Did you change your diet after getting sick? Did you eliminate or minimize carbs & sugars?
A: No. She was sickest as can be, but she never changed her diet. She did not know about this. She ate bread and pasta and even drank caffeinated coffee and expressos. She did not drink alcohol though, since while she was sickest it would make her worst. She did drop taking any large quantities of table sugar, but ate plenty of cakes, cookies, and pastries.
14) Did you have any of the following symptoms & I ask her these based upon my interest with the symptoms that I have experienced:
-Tremors in your thorso/chest (NO, but she did have shaky hands and arms. Her whole limbs and body trembled when on CS)
-Tremors in your head (NO, but she did have really bad headaches and neck pain. When she was on CS she could not even lift her head off the pillow)
-Feeling like something is scattering or moving in your head (NO, she had that feeling throughout her whole body, but not in her head)
-Burning of the feet (YES)
-Numb hands or feet (YES, many of these and many neuro symptoms)
-Pulsating nerves in your hands (NO)
-Numbness or loss of feeling in your hands (YES, many times over and over)
-Shortness of breath (NO)
-Heaviness on your chest & feeling like a weight is on there (NO, but she had chest pain only after the stroke).
-Crackling in neck when move neck left & right (NO, but she did have neck and head pain)
-Snapping of joints & pins and needles in joints at times (NO, but she developed arthritis AFTER she started treatment & now no longer has it after CS)
-Pins and needles pain in any part of the body. (YES, and as if something larger was moving and squirming in various parts of her body. She says she felt them all over and very invaded.)
-Lowered body temp (She never checked, but she felt cold a lot of times and felt her hands cold many times).
-Tinnitus, if so how bad was it? (YES, this resolved at one point but then came back after she took a product for another cause. She has tinnitus to this day & believes the damage had been done already & the product she took, which was unrelated to Lyme put her hearing over the edge. As a result it came back & stayed with her. It also activates in her when she has caffein.)
-Did you get tightness of the jaw & snapping of the jaw as your open & close your mouth (NO, but she did have burning around the mouth and burning of various muscles as well).
-Blurry vision on vision becoming less vivid? As if you are losing color & seing more greyscale? (NO, she did see floaters & it got resolved with CS. She also had bad vision after stroke, but that resolved to 20/30 after CS).
-Did you have muscle twitches on any part of your body? (YES)
-Did it feel like something larger was crawling around? (YES, she felt invaded and as if something was moving inside her).
-Did you have head & neck pressures? Did it feel like someone poured clorox in your head & neck? (She had severe headaches and neck pain/discomfort and brain fog. Her scans showed she had demyelination of neurons (MS) and that she had a bunch of mini strokes.
-Can you describe what it feels like to endure a stroke? (Feels like you are falling from the Empire State Building and you hit every single level on the way down, that is until you hit the ground and feel like you are dead. It lasted for 1 1/2 days her last and most severe stroke.
Hmmm, this is not what I expected as an answer. I had events that appeared as if they were a stroke or aneurysm. It would start from mild or �normal� head and neck pressures & then suddenly (within a few sec) the neck pressure would increase that it was tough to move my neck from left to right. That led to more head pressure, fogginess, and the feeling like something was blocking blood to the brain.
If it got worst then I may feel heart pressure, pain, and it radiating to my arms (pressure/pain) & I may get heart palps. Seems that the heart is detecting the lack of oxygen & compensating for it.
-Did you have pains under your ribs, on the side of your heart more toward splean? (She had chest pain only after her stroke).
-Any heart pains & palpitations? (NO, and she is happy never to have had this).
-Any chronic fatigue or always being tired (YES, she was always tired).
She had more symptoms, but I did not ask her the complete list. She mentions she did not feel as if she had circulation issues, but did have restless leg syndrome and her blood pressure was very low. They were hunting for a pulse in her, because it was so low.
15) After your course of CS, did you have any relapses? Did you ever get sick again? If so, how badly?
A: She never relapsed and was only sick in the normal way at times. Compared to the people around her, she got sick less often. She has 4 daughters & she was always in school and her kids would always get sick. She attributes that to taking CS prophylactically and whenever something remotely as getting sick came about her.
16) Did you have any lingering symptoms after long term CS, did anything not go away? Do you have any occassional twitches or headaches, anything?
A: The symptoms she has as a result of her stroke, like her speech impairment always remains. Tinnitus was resolved except when it came back with a product she had taken and gets worst with caffeine. She no longer had any twitches or the feelings of something larger moving inside anywhere in her body. She says she is symptom and 100% Lyme free and that she would know if she had any symptoms caused by Lyme. She is hypersensitive to this now.
She also mentions that she has low thyroid now & that her eyebrows have thinned out. I wonder if this is still Lyme in hiding. She is older now, so it could be age related as well. There are many with thyroid problems and no Lyme. Although, compared to what she was I would much rather have her symptoms now, rather than what she had gone through in the past.
17) Did the CS make you feel toxic or sickly at any one point? Did it give you any symptoms whatsoever?
A. Never. She only herxed at the beginning badly and then felt better with each passing time. Never any symptoms or issues with CS. She is a FIRM believer in it and is eager and excited to help me and tell me and others about it. She knows what it is like to be deathly sick and neglected by the medical community, so she is very open to help.
18) Do you know of anyone else personally who took CS & got better?
A. Yes. She recommended it to 3 of her other friends who started to develop Lyme symptoms early on, where they only had a few symptoms. All 3 took CS with her advice and resolved their symptoms and are symptom free today. She reminds me that they never got as sick as she did though.
Her eldest daughter was bit by a deer tick years after she was initially sick and started to develop symptoms, including skin outbreaks. She recommended CS and went back and forth with her daughter. Her daughter was worried and was in no rush to take CS. She was very reluctant, but eventually did and it resolved all her symptoms. I did see her at the party & she seemed perfectly fine, but then again so did I to everyone else. A visual of how healthy someone feels (or is) is nothing to me nowadays.
Her brother started to develop eye pain and joint pain. He took CS & it all went away. He then stopped and it came back.
As I mentioned I am fortunate to have accidentally met her acquaintance. As with many people on Lymenet, she did not have to share her story or attempt to help me at all. She did not have to take the time to do this, but she did!
We gather information and then way the risk of benefit to reward. I would much rather not have to contemplate taking CS, as I had decided in the past, but given the stage that I am in there is not much option. The reward is tantalizing.
I will continue ABX, still continue with Salt C & hold back when herxing is too much (in the form of head and neck pressures, and meningitis like feeling), and continue with antiparasitic meds if liver allows it. I will be adding in CS shortly & will provide feedback, be it good or bad.
[ 08-05-2012, 09:34 AM: Message edited by: Lymedin2010 ]
Posted by Lymedin2010 (Member # 34322) on :
So I started Colloidal Silver (CS) two days ago. The liquid in the bottle looks like clear water and does not taste like much to me.
I only took 1/2 a teaspoon. I placed it under my tongue for the sublingual absorption and then swallowed the rest. I was not expecting much, since this lady said it took her 6-7 days to get a herx.
Two hours later I felt a calmness surge over me. It was as if the occupation of something larger in me had diminished in size and alleviated pressures and pains within seconds. I was in bed and felt happy.
I thought to myself, maybe BB was encysting? Nonetheless, I was exhuberated at the thought of a good nights sleep. Within 2-3 minutes then came a weird feeling. Then tingling in my arms and hands, and as if something was coarsing my blood.
An increase in twitching and then head and neck pressures. I stood up to go to the bathroom and the pressures in my head further increased. It felt that I needed to put my head back down to relieve the pressure, so I rushed and then back in bed where the pressure lessened considerably.
This lasted for over 1-2 hours and gradually lessened over time. My second day of CS only produced head and neck pressures, which was not as severe as the first.
I find it odd that after being on and trying so many different meds recently that I got this reaction and this quickly.
I am on Biaxin, Doxy, & Penecillin VK. I had just tried Sida Acuta for a few days before CS. I was on Salt C, Artemisinin, Ivermectin, Kroeger Wormwood about two weeks ago.
Despite all this I get a herx. Maybe CS was penetrating tissues that the others were not getting to?
Posted by seibertneurolyme (Member # 6416) on :
Have not read all the responses here, but putting in my 2 cents.
I think colloidal silver might help for lyme and viruses. But do not think it will do much for bartonella and am almost certain it will do nothing for babesia.
This is based on hubby's experiences.
He started with oral colloidal silver and then over a month or two built up the dose and did it IV -- he had a PICC line back then. Can't remember but I am pretty sure we did 2 ounces IV 2 times daily for at least a couple of months.
This was in 2006 I think and as far as I remember he was not on any antibiotics at that time -- just tried the colloidal silver for about 4 months in total I think it was. Hubby had some herxes but his overall opinion was that the silver was not strong enough to kill his infections.
He used the Argentyn 23 brand.
Next we moved on to Buhner herbs and then went back on antibiotics as his illness continued to progress or at least there was very little improvement.
Bea Seibert
Posted by Jamers (Member # 28016) on :
Thank you kindly for all of this information. This is very hopeful to me as my remaining symptoms are whole body vibrating (the invaded, crawling feeling mentioned above) and pulsating veins.
I took CS when I was sick and undiagnosed for probably 6 months. I was most likely taking the minimum as I was afraid of turning blue! However, im going to try again and if it works I will keep you posted!
Posted by Lymedin2010 (Member # 34322) on :
Bea, good to know & I will keep that in mind. Funny that this lady had so many symptoms and was able to get well. One would think she must have had Babs and Bart?
Maybe Babs and Bart were not as virulent back then? I will keep my ABX and herbs for as long as I can, with hope that the liver does not decline.
Jamers, thanks for future update.
I am on my third day and I was going to take 1 tsp, but I had a mishap. Wife rinsed a car spill with Fabuloso and we drove for a few hours. We had all become sick of fumes and I felt so toxic and bad. Only took 3/4 tsp and no herx, only vibrations and twitching for a little while, then silence.
One other thing to mention is that the day I started CS my stools were solid. After 2 hrs of CS it was soft and watery, and explosive. As if I had become cleansed. The next day firmer and today back to normal?
Maybe I had a die off of the gut the first day?
Posted by dbpei (Member # 33574) on :
This is all interesting stuff. Please keep us posted Lymedin2010!
Posted by mbdq (Member # 26277) on :
I agree- I am very interested in following this post.
Please keep us updated! Thanks
Posted by kidsgotlyme (Member # 23691) on :
I am taking the Argentyn 23 along with a product called Bio-Zyme. My upper back pain is almost completely gone.
Posted by Lymedin2010 (Member # 34322) on :
I took 1 teaspoon (10 ppm) yesterday & only had slight and tolerable head and neck pressures. Eight hrs later I took slightly over 1 tsp and had the same results. Before bed I took over 1 tsp again. No head pressure, but I was lying down so it could have been positional as is sometimes the case with this symptom for me.
I did feel more vibrations and tremors, veins in leg and nerves pulsating at times during the night. I had limb and body part jerks. This morning joint snapping, from knees to shoulders & I never had the joint snap this bad before. Maybe a die off released particles blocking joints? Hard to tell.
I had a similar experience with only 1 pill of Amoxi, Ivermectin, and Kroeger Wormwood, where I would have a herx initially and then not much VERY shortly thereafter.
In the past when I ramped up with Salt C quickly I got major vibrations and tremors. I had Parkinson's arm movement for a few min, something that I never had before that. It was insane and I had to take a break from Salt C. CS has not produced that same order of tremors or twitching thus far, It was so bad with Salt C that I could not sleep from the motor going on in me.
It is still way too soon, but I hope I herx like hell and am brought to my knees. This way I know that I am killing what I feel so invaded with. My speculations already is that CS has caused a major die off of one of the many things I must be invaded with.
I speculate that Like Gael, I must be infested with parasites and that salt c and antiparasitics might ultimately be the way to go.
Another possibility is that the Doxy and Biaxin that I am on is causing BB to encyst, making CS less effective for me at this stage.
I will keep at CS and will update. If I don't get a stronger herx in a week I will change to the Pro 50 PPM version.
Posted by Lymedin2010 (Member # 34322) on :
Well, it has been a little over 2 weeks & I had been waiting for the "BIG" herx after the 1st week, but it never came.
Aside from the initial first day usage and the herx that ensued, I felt slight head and neck pressures thereafter. I also felt more tremors and twitches, but not nearly as much as when I was on salt C & Wormwood.
In an attempt to kill and herx further I added back the Salt C (SC) with Colloidal Silver (CS). Since adding the SC my tremors have doubled than with just Colloidal alone & then after 1 week they have subsided some. I also had 2-3 days of the encephalitis like feeling with head and neck pressures, that too went away.
I was able to ramp up the Salt C rather quickly & within a week have ramped up to over 20G a day.
I had 1 day to 1 week herxes on Ivermectin, Amoxi, & Wormwood in the past. I have short herxes with the meds mentioned above and no herxes with most the ABX that I have taken.
I will try the 50PPM within the next few days & do it for about 1-2 weeks. If still no further herx, then I will just stay on the 10ppm for 3 months or so (along with all the other crap I take (Doxy, Biaxin, Penecillin VK, GSE))
Posted by Lymedin2010 (Member # 34322) on :
Time for an update.
It has been over 2 months on Colloidal Silver now & I take it like I drink water,but this is true with most ABX for me. 10ppm at 1 tsp 3x a day & most days over a tspn. I take this amongst other ABX and Cryptolepis.
At one point I had switched over to the 50 ppm just for little over a week and felt bad and worst again, more so on the first day and progressively less effect on subsequent days. It felt like it was clearly doing something and hitting my head as well, but far less than when on 1/2 tsp of 10ppm CS for the very first time.
Overall my symptoms are still migratory and appear to be more dependent on which ABX or combo I take. Some days are better than others.
I have developed slight joint swelling in my right knee within the past few weeks. I never had any joint issues before starting treatment and wonder if it may be a good sign. Initially my biggest problems were circulation issues before getting sick.
Perhaps my immune system has recognized the foreign invaders after starting treatment and now they are forced into hiding, otherwise I can only explain it as progression of disease. Perhaps the concoction of things I take are forcing the hiding?
I can whole heartedly say that I was hitting something at the very beginning, but now wonder what exactly. Is Tom Grier right, are the people taking CS delusional?
I spoke to this lady again briefly and I asked her if she ever got bitten again. Turns out she has gotten bit again about 2 years ago on the back of her leg. Thinking back I should have asked how many total times she got bit.
She also mentioned to me that she takes Cymbalta for what she believes is permanent nerve damage and pain. After this discovery I am really beginning to wonder?
I will press forward and report again at one point. I would like to hear back from others taking CS, does anyone notice a change thus far?
Posted by WPinVA (Member # 33581) on :
Thank you for all this information, I too will continue to follow this post. The LLMD I took my daughter to last week for the first time recommended CS as well. But we were very leery of giving it to her.
My question is, with all the talk of heavy metal toxicity, what is the effect of putting silver into our bodies? Does it build up?
Posted by girl (Member # 18022) on :
Well if Marnie "understands", it makes me think CS would in fact work -on a physiological level, but if it makes her "nervous", it makes me think BE CAREFUL and don't overdo - and their might be a better way. Speaking from a Candida perspective though, looks like you may never be able to fully get rid of it. Just gotta find that balance, I suppose.
Posted by Lymedin2010 (Member # 34322) on :
Sharing and gathering info is what I am all about. Great things that can be learned, be it good or bad.
Toxicity is definitely an issue to consider. I would say this is about as dangerous as those with silver teeth fillings. A good research starting point might be there.
Some profess that it cannot be excreted by the body, while others say it is not a big deal. Mark from salt strategies believes that CS is a good adjunct when used with Salt C and this is based upon the many feedbacks he gets from Lymies like us.
This lady has taken CS for over about 20 years now, with no reported side effects or toxicity overload yet. She uses 50 ppm and I use the 10ppm mostly for now.
Regarding Candida, I know 2 ladies who had it badly. From bed ridden and sickly to confusion and suicidal. Both recovered from a strict diet. One of them was even bitten by a tick in the past and only has heart issues to this day and years later.
Posted by girl (Member # 18022) on :
Interesting enough, the side of my CS bottle says PERFECTLY SAFE: Safe for the whole family. According to the EPA (CASRN 7440-22-4) daily Oral Silver Reference Dose (RfD) applied to 10 ppm, one may ingest 178,850 servings safely over 70 years.
It also says: FOR BEST SHELF-LIFE, AVOID SOURCES OF MAGNETIC ENERGY AND EXTREMES OF LIGHT.
Also: ultra-small particle size results in greater surface area, making our low concentration of 10 ppm more effective than brands up to 500ppm.
Posted by jecati (Member # 26700) on :
I am considering taking some Soverign silver, colloidal 10 ppm and would love to hear more opinions and stories (neg or pos).
Also, can you take CS with lyme herbal tinctures or homeopathy? have any drug interactions?
Just trying to find another viable option since abx are a no go for me.
Posted by Kat1777 (Member # 39231) on :
Can I ask what the concerns are with colloidal silver? Because my doctor has that as an optional treatment for me (at a very low dose). The paper he gave me says that it is FDA approved. I'm not taking it at the moment.
Posted by Pam08 (Member # 19203) on :
The only side effects that I have ever heard of for colloidal silver was rarely someones skin would turn blue. BUT from everything that I have read those people were usually making their own colloidal silver and were not making it properly. Not only were they not making it properly but some were also drinking a whole glass or more daily which is obviously a very huge amount.
To me I would much rather take colloidal silver than some of these prescription drugs. Floroquinolones scare me WAY more than colloidal sliver.
I took Argentyn 23 colloidal silver for 3.5 years with no problem. I didn't notice much from it but that was probably because I was only taking 1/4 tsp a day. That was enough to make me herx at first but I never got around to increasing the dose after that with all the other meds etc my doc had me on.
I stopped taking it 8 or more months ago just because I ran out and was trying to save money. I never added it back in again BUT this thread has reminded me that I should start it up again and maybe try to increase my dose this time.
Posted by randibear (Member # 11290) on :
when i had shingles, my sister recommended a collodial silver ointment called "terrasol".
my doc said it was too late to do anything for me, so i bought this cream and put it on the blisters every night.
worked like a charm. the itching and burning stopped and since it was right on my spine and lower back, i had no spinal or nerve involvement.
must be something to it.
Posted by Jamers (Member # 28016) on :
I am off antibiotics now for several months and was just working on yeast. I just have bad symptoms around "that time of the month" and so this month I decided to take 1tsp of Colloidal Silver 3x day. I've only been on it about 2 days so far and Im noticing some herx symptoms like those listed above.
Especially the feeling of things crawling underneath my skin all over, trembling, and a pulsing in my veins sensation.
I feel this is parasites that I have left but it may be lyme also.
Posted by Lymedin2010 (Member # 34322) on :
I am long overdue for an update, so here it goes.
I started Colloidal Silver (CS) in mid Aug of 2012, so now it has been 6 months of non stop usage. I only stopped 2x times when I ran out & it was for about 2-3 days.
I had also taken more than 1 teaspoon at a time, getting really comfortable with it & simply chugging it from the bottle into my mouth.
Argynten23 has 23ppm, mine only has 10ppm, so I don't think a double dose would cause any additional harm, if there was any harm to be had at all.
I can clearly say that I have not developed any NEW symptoms as a result of side effect and I also cannot clearly say that I have eliminated or improved drastically.
That is not to discourage others from the possiblity of taking this & possibly getting better. Dr. H. also recommends the Argynten23 brand & their patients report the similar herx we experience with CS.
My herx did not last past the first week, but during that week & especially the first 1/4 teaspoon on the first day, I can CLEARLY say it killed something. What exactly that is is anyones guess, although Dr H's office believes it has an effect on yeast.
I have entered a stage now where things don't seem to be as life threatenig & partly mitigated. As if things are on hold for now. Far from better and what I used to be, but I am happy not to feel like I am dying from day to day. What nighmarish hell that was.
I am on a very diversified protocol which includes: Bactrim DS, Doxy, Plaquinil, Nystatin, Malarone, CS, Bacillin LA shots, Cryptolepis 1 teastpoon 3x day, Detox 2, Vit D, Vit B12, Mag at times too. I felt bad when taking the Crypto at first, but now I am past that point. I also felt horrible when taking the Detox the first time at 1/8 teaspoon, but within the third time I took more than 1 teaspoon & was OK overall (i.e. no major herxing).
What is interesting is that I get daily migratory symptoms & oddly enough I get them similarly to those who also have migratory symptoms and who are not in treatment. The latest person to get hit is my Mother-in-law. I warned her about the 3-4 symptoms she had 2 years ago & recently she went to the hospital with 15 symptoms or so. Needless to say, she was more attentative when I spoke about Lyme this time!
I have come across more people around me, locally who have either gotten bit or have Lyme and it is astonishing at how many people there are. Truly amazing! I came across these individuals accidentally & without having to search or hunt for them, they are simply all around. It is just that not everyone talks about it and not many at all are spreading the dangers.
On the last note, when I had last spoken to the lady who had endowed me with her inspiring story, I made an interesting discovery. She had stumbled upon a magical word, fibromyalgia. She now takes medication for Fibromyalgia. I thought to myself, this would have been good to know from the start! She also mentions that she does get easily tired and is tired often. She had so vehemently explained herself to be Lyme free in the past & now this. I quickly concluded to myself, she MUST still have Lyme, without mentioning anything to her and running the risk of insulting her. Even if she does, it has been 18++ yearst past, with no additional strokes or deathly episodes and no past Lyme symptoms that she experienced.
Shortly after I had spoken to Tom Grier again. To my amazement he too said that he gets tired easily as well & that is one thing that has stayed with him, as well as a heart condition as a result of his Lyme exposure. He did mention that it had been over 20 years since his treatment & that the old symptoms have not resurfaced.
I wonder if these individuals still have Lyme but with an immune system that is more allert and defensive? Perhaps the fragments of Lyme that the body cannot somehow get rid off are constantly circulated throughout the body & are never cleaned up by our WBC's?
Posted by Jamers (Member # 28016) on :
Lymed, I have been on it about a week now and feel very strange. Since I was off antibiotics I was not herxing anymore but still had some symptoms remaining that I chalked up to yeast.
The colloidal silver is definitely hitting something for me. I have numbness and tingling all over, Im tired and very foggy in thinking. Pressure in my veins and that trembly sensation. And finally, some blurry vision, my floaters have gotten worse and all of my joints ache...
Posted by Cold Feet (Member # 9882) on :
I didn't read this topic word-for-word, but one cautionary word of advice: y'all need to be careful of your liver health/detoxification.
My understanding is that small doses of selenium are important when taking CS orally. It helps remove silver from the liver/GB/GI tract. Iodine may help selenium uptake.
I have no supporting studies on this; haven't had time. Be careful, check it out.
Posted by Cold Feet (Member # 9882) on :
Can't vouch for this site; but this info excerpt is validating to me. _________
Summary
It appears that healthy adults may be able to take as much as 5 mg.(100ml of a 50mg preparation) of colloidal silver per day without overwhelming the body's elimination mechanisms. This is not a recommendation. Additional research needs to be done to test this hypothesis.
Individuals with kidney disease may be at increased risk for developing silver toxicity. This is a reasonable assumption since it appears that the kidneys are a major pathway in eliminating silver from the body.
Drinking extra water increases silver elimination and may reduce silver accumulation and risk of toxicity.
Liver disease may increase silver toxicity. Silver may interfere with certain metaloenzymes in the liver, especially if there is a deficiency of selenium or vitamin E.
Taking extra supplements of selenium and vitamin E may reduce an individual's susceptibility to silver toxicity. This is based on the finding that supplementation decreased liver toxicity in rats and that rats deficient in these nutrients were more susceptible to silver toxicity.
Some silver salts are no more more toxic than colloidal silver and silver compounds offer many additional variables.
Larger doses of silver and more concentrated forms of silver increase risk of toxicity and argyria since they may exceed the body's ability to eliminate the excess silver.
Risk of silver toxicity or argyria may be reduced by avoiding any silver consumption for a period of three to four months after the completion of a therapeutic regimen. Based on Dr. Altman's experiment, this would give the body time to eliminate much of the stored silver in the body before continuing treatment.
The risk of silver toxicity and argyria may be reduced if the total cumulative dosage is kept under one gram of silver, especially if large doses are being consumed or there is kidney or liver dysfunction present.
Sorry for not seeing the posts earlier. Yes, I have heard quite a few people say that herx from CS.
After stopping CS, I tried a teaspoon here & there just to see if it still had any affect. I did not feel anything like I felt the first time I took it.
Come to think of it, I have not tried it for a while & just might take a teaspoon today. So at the end I was hopeful, but nothing changed with CS.
I think my metal panel had a silver testing & I did not show anything significant if my Lyme brain serves me well? I do show above average signs for Mercury & Lead though.
Just like the lady who took this, I developed more severe symptoms of fibromyalgia. From my blood smears I can easily see that is the bacteria corkscrewing through cells. Your nerves are overactive because they are being drilled by spirochetes.
Posted by Lymedin2010 (Member # 34322) on :
Don't really want to bring this thread up, but I had to share Dr. Oz's show on silver.
Thanks Lymedin! What a great segment that was - not just for the info on colloidal silver!
Posted by Lymedin2010 (Member # 34322) on :
Yes, I was going to edit the last post & say you should really watch the entire thing. It provides a good perspective on western vs eastern medicine.
You will get a glimpse at a doc who thought it was quackery & then became a believer and reputable doctor. He is now a spokesperson for all natural medicine when possible.