So I feel like my breathing/sinus issues are the most annoying symptom of all of this now. I had chalked it up to air hunger, but I'm not so sure.
I am interested in testing for MARCoNS and am wondering if there is anything else I should test for?
I thought my breathing would maybe get better after the fire and moving into a brand new apt, but it hasn't. It's been ever-present for months now.
I had no breathing issues until I started treating lyme in Jan. Nothing seems to help. I went to an ENT and started a new allergy med and no difference.
I just want to be able to breathe normally!
Any advice or insight on this?
Posted by sickofsick (Member # 29258) on :
My daughter deals with this. It was really severe, then we saw some improvement (I thought buoloke helped)and it has picked up again the last couple of months. Just saw our doctor last week and she thinks there may be some pneumonia going on so will be starting heavy zithromax with doxy this week. Also have test orders for mycotoxin test through Real Time Labs (I think this is MARCoNS). It is a urine test. It is very expensive and I am going to check out insurance coverage etc. before I send it in.
I'm so sorry you are suffering with this. Do you yawn and sigh a lot too? Last year we had a blood gas test drawn that was crazy low and she failed the spirometry? test. But the pulmonologist smiled and told us "her lungs are fine."
I'm certain symptom is related to TBDs. Hope you find relief, sorry I can't be of more help but will report if we see changes.
Treating Lyme, Bartonella, Q Fever, FL1953
Posted by Larae30 (Member # 35220) on :
I was also worried about pneumonia. I have no idea what's going on.
Posted by Razzle (Member # 30398) on :
Could be fungal sinus infection... Maybe talk to your doctor and ask if there is some kind of sinus rinse that kills fungus...
Also make sure you are on an anti-Candida program...including probiotics, no sugar/simple carbs, antifungal meds and/or herbs, and (if needed) an anti-fungal diet (no fungal/fermented foods - no cheese, alcohol, mushrooms, vinegar, canned/bottled fruits/juices, etc.)...
Posted by Judie (Member # 38323) on :
"I thought my breathing would maybe get better after the fire and moving into a brand new apt"
Did the apartment you moved into have new carpet, paint and/or new construction?
Posted by Suzy50 (Member # 30466) on :
I have chronic sinus problems that antibiotics no longer work on, but sinus nebulizer treatments work for me. I did find a lot of relief from a sinus rinse recipe that I found on this forum. I use the bottle from the "Sinu Rinse Kit" which is 8 oz. in size. I warm up 16 oz. of water and add 1 tsp. salt, 1 tsp. baking soda and 2 tsp. Xylitol. It actually opens up my sinuses so they drain. I was using 1 tsp of salt (sea salt, no iodine) and a pinch of baking soda. The new formula makes a huge difference. I read in one of Dr. Mercola's emails that the xylitol eliminates the water that pathogens need to thrive. I thought I would pass this on to who ever might be interested.
Posted by lymenotlite (Member # 33166) on :
I went to the chiropractor yesterday and can breathe a lot better today. Many with lyme have tense necks and shoulders and I think this inhibits breathing.
You didn't say whether you think you have an infection or congestion.
Posted by Keebler (Member # 12673) on :
- For anyone with any breathing troubles, be sure to avoid acetaminophen as it can damage lung tissue due to its blockage of glutathione.
See the asthma-acetaminiophen detail here - in the 4th post, 1/3 of the way down.
LIVER SUPPORT & and several HERXHEIMER support links, too. -
Posted by Larae30 (Member # 35220) on :
I don't take any Acetaminophen.
I have no idea what could be causing it? I feel like it is either a staph thing, mold, yeast...I don't know what else it could be?
My nose has been pretty plugged. I do not have much drainage and my coughs are unproductive. When I do have nasal drainage, it is clear.
I just want to be able to breathe!!!
Posted by Keebler (Member # 12673) on :
- It's very dry across much of the nation right now. I've not checked the weather map for NE but I know my area has been so dry that it's affecting my breathing.
Just a thought.
You are likely off cow's milk but that is one thing that always clogs my nasal passages. Even yogurt (sigh).
OLE (only Seagate brand) usually works to open my sinuse within an hour.
ALLICIN, too. I like the Hepapro brand. It's amazing.
But even, taking a clove of raw garlic in the middle of a meal may give you some relief (if your stomach can tolerate it).
Hope you feel better soon.
BTW, I really LIKED your radio interview from your other post. You sound so strong in all the ways that truly matter. -
Posted by Carol in PA (Member # 5338) on :
I know of three things that may help.
Serrapeptase is a systemic enzyme that will reduce fibrin, biofilm, inflammation. If you have sinus problems, this is the thing to try.
When the fibrin in the bloodstream is reduced, the mucous is thinner and the sinuses will drain and clear out.
A salt pipe/inhaler can duplicate the effects of breathing in a salt cave. The salt ions are breathed deep into the lungs, reducing inflammation and killing bacteria, viruses, mold.
This reduces asthma problems, and people here who have used a salt inhaler have said they did not need their inhalers as often.
I inhale through my nose with the salt pipe, which I found stopped bleeding. I used to get blood tinged mucous when I blew my nose, and that STOPPED when I began using the salt pipe.
LED light therapy at the 880 wavelength will reduce inflammation and open up clogged sinuses. I found this out when I used the SOTA LightWorks on my face to heal pimples. Suddenly I could feel the sinus in the bones underneath the skin open. Interesting sensation.
Serrapeptase: You can google for articles and check iHerb.com for reviews.
Salt pipe/inhaler: You can google for articles about salt cave therapy and salt inhalers. There are vendors at Amazon.com.
If you are already using Serrapeptase or another systemic enzyme, try increasing the daily dose. I didn't notice much at the lowest dose they suggest.
Posted by Judie (Member # 38323) on :
See and environmental illness doc and get evaluated. A lot of sinus problems are caused by VOCs.
If you do a search, you can read my old posts on it or let me know if you need more info.
" Volatile organic compounds, or VOCs, are organic compounds that can be detrimental to the health of people and the environment. VOCs usually contain carbon and hydrogen, and have high enough vapor pressure to evaporate into the air under normal conditions. They are released into the air from synthetic and composite materials such as paints, paint thinners, floor sealants, cars, carpets, aerosol sprays, household cleaners, office equipment, dry cleaning solvents, petroleum fuels, plastics, glues, and pesticides. Formaldehyde is one of the most common volatile organic compounds. It is used in the manufacturing of many household products, and is also used as a preservative in mortuaries and medical labs.
Many VOCs are toxic and cancer causing. Exposure to certain VOCs has been known to cause dizziness, headaches, nausea, drowsiness, eye irritation, rashes, respiratory problems, sinus problems, nose and throat irritation, and loss of co-ordination. Volatile organic compounds can also contribute to 'sick building syndrome'."
Posted by katiebobatie (Member # 28753) on :
my lyme started out mimicing asthma and sinus infections.
i had "asthma attacks" and "sinus infections" every single day for YEARS!
after a few months on anti-biotics, i stopped having both problems, and i havent had them in 2 years!
so it might be from lyme and co infections...
some symptoms can go away quickly with treatment, but i think we all know that most symptoms dont and it takes a really long time
if you think it might be something else though you are smart to keep searching!
i hope you find some relief soon..
Posted by Catgirl (Member # 31149) on :
It could be lungworm. Dr. Kaplow found them in up to 75% of CFIDS patients. I just did a round of anti parasitics and am amazed how much better I breathe now. My sinuses started draining after the first pill.
Posted by Larae30 (Member # 35220) on :
I've done a ton of different herbal anti-parasitics and also done some abx anti-parasitics and have no had improvement in breathing?
I found out yesterday I tested + for MARCoNS
Posted by lymenotlite (Member # 33166) on :
![[Frown]](frown.gif)