Hello, I am sort of new to the idea of parasites possibly keeping us ill, although def not new to lyme. I did a search on here I just don't have the time or the brain to go thru all the posts to find what am looking for. Such as testing, symptoms and treatments. I cannot believe my llmd never brought this up to me in all the years I have been going to him, maybe it is why I am still sick! Thanks
Posted by robbiem (Member # 32092) on :
Most LLMDs haven't truly caught up to the reality of the role that parasites actually play in the scheme of things, which is sad and unfortunate as many of us suffer the consequences because of it.
There seems to be this odd reaction overall not only with the doctors but with those that are sick as well- many run the other way when they hear the word or consider the implications.
If you go to the humaworm website, they list many of the symptoms on there. Also at curezone.com website -- go to the parasite forum and you can get alot of info there as well.
Posted by willbeatthis (Member # 31111) on :
What is the best parasite cleanse? Is humaworm the best if you do not want to use pharmaceuticals? Thanks...
Posted by glm1111 (Member # 16556) on :
I prefer Parastroy to Humaworm, however Humaworm is a good first initiative to start with. I also like the added benefit of Super Digestaway by Soloray, extra cloves and HCL along with salt/c. Ramp up slowly with any antiparasitic. Chlorella as a binder, coconut oil for yeast and kefir are all beneficial.
I also find the salt/c protocol to be very powerful. One mos of antiparasitics is NEVER enough.
Tx has to be ongoing until symptom free and then maintenance. You can alternate different protocols and even the pharma meds.
Gael
Posted by Tammy N. (Member # 26835) on :
BBinme - it's smart of you to pursue this path.
I have been dealing with this illness for about 20 years....have been to countless docs and did just about every protocol. Long story short, I finally started treating for parasites 7 months ago and I am doing great! For the first 6 months I passed parasites every single day. All of my neuropathy is gone (which was my major complaing), as is my fatigue and neck pain.
Without a doubt treating parasites was my game-changer. I strongly encourage you to pursue this path. I've come to believe that parasites are perhaps the PRIMARY reason we are ill and unable to recover from Lyme and cos.
Read all you can on Dr. K and his protocols (GiGi has faithfully posted all of his wonderful teachings). He is famous for a reason. He gets sick people well. He basically treats parasites first (and often heavy metals), and deals with Lyme and cos later.
I would start with Humaworm or Parastroy. But in order for herbal treatments to truly be effective, you really need to add salt/c, imo. You just start with 1/4 tsp of each and work up from there. Review all of this with your doc so he/she knows what you are doing (and he/she can hopefully learn something along the way that will help their other patients.)
For me, I found it necessary to do coffee enemas every day. This helped keep the parasites expelling and helped my body detox so I didn't become overwhelmed during the killing process.
Best to you.
Posted by lax mom (Member # 38743) on :
BBinme:
I was one of those who said:
"we don't have parasites over here...that's something that happens in other countries due to poor sanitation"
I was wrong. I have liver flukes that I saw after 2 days of Biltricide. DISGUSTING!
It makes no since that we wouldn't have parasites today. Our parents' and grandparents' generations religiously gave their children anti-parasitics every 6 mos.
So, when did America magically become parasite free? We didn't. We just jumped into denial.
Some may say "we don't have parasites because of all the antibiotics our society uses". Wrong. Antibiotics don't kill parasites.
Parasite treatment may not heal me 100% by itself, but I know that I will NEVER heal without including anti-parasitics.
Many LLMD's are now realizing the importance of treating parasites. Dr. K practitioners have known about it for quite some time.
Posted by BBinme (Member # 34131) on :
Tammy, have you only gone the herbal route? Or have you tried antiparasitics also. And is treating parasites a long term, or life long issue? Can I treat parasites and Lyme at the same time? I am not sure if this is my issue or not, but at this point I have been treating for 9 years with antibiotics alternating with herbs with some breaks and I am still ill. Most of my symptoms are fatigue, stiffness in neck and back, some aches and pains, tingling and numbness in feet, headaches, dizziness and brain fog at times, as well as a few more. I am just sick and tired of being sick and tired! I also want to look into other things like genetics too and Bart treatment and more ways to detox. Also does it make sense to try antiparisitic and see if I see any and if I feel better? When did you notice that you were feeling better? Did you treat Lyme at the same time? How long are you going to treat? Thank you again, I am just so frustrated. I recently did iv vancomycin for 11 weeks and felt great, now less than 2 weeks later I feel horrible again. That always happens to me when I stop antibiotics. I was wondering to I mean if we all have parasites in us anyway why do we have to treat? It probably a dumm question, but just curious. Thanx
Posted by glm1111 (Member # 16556) on :
Breaking Up For Easier Reading
quote:Originally posted by BBinme: Tammy,
have you only gone the herbal route? Or have you tried antiparasitics also. And is treating parasites a long term, or life long issue? Can I treat parasites and Lyme at the same time?
I am not sure if this is my issue or not, but at this point I have been treating for 9 years with antibiotics alternating with herbs with some breaks and I am still ill.
Most of my symptoms are fatigue, stiffness in neck and back, some aches and pains, tingling and numbness in feet, headaches, dizziness and brain fog at times, as well as a few more.
I am just sick and tired of being sick and tired! I also want to look into other things like genetics too and Bart treatment and more ways to detox.
Also does it make sense to try antiparisitic and see if I see any and if I feel better? When did you notice that you were feeling better? Did you treat Lyme at the same time? How long are you going to treat?
Thank you again, I am just so frustrated. I recently did iv vancomycin for 11 weeks and felt great, now less than 2 weeks later I feel horrible again. That always happens to me when I stop antibiotics.
I was wondering to I mean if we all have parasites in us anyway why do we have to treat? It probably a dumm question, but just curious. Thanx
I would take Tammy's advice and tx parasites. That's what saved my life and put me on the road to recovery. Google parasite symptoms
Gael
Posted by WPinVA (Member # 33581) on :
"Our parents' and grandparents' generations religiously gave their children anti-parasitics every 6 mos."
Really?! That's absolutely fascinating. What did they give their kids?
Posted by lax mom (Member # 38743) on :
Really WPiVA. Dewitts worm candy and caster oil.
Posted by Tammy N. (Member # 26835) on :
BBinme - Yes, I would definitely suggest try treating and see what happens. I feel (strongly) that you will likely see significant improvements. Most people I know who are dedicated and diligent about treating parasites are seeing improvements. This requires a long-term commitment.
I first did several rounds of pharmaceuticals for parasites (Biltricide, Ivermectin, Pyrantel, Albenza and Alinia). But as a side-effect I noticed my hair was thinning. So I switched to herbals and salt/c after about 3 months. And surprise surprise, I found that I had just as good results with the herbals as I had been having with the pharmaceuticals.
How long do I plan to treat? Long term (years, if necessary). Then I will do maintenance forever. It sounds like a big commitment, but it's really quick and easy to swallow some salt and C and take a few capsules.
How long before I started to feel better? Right away, actually. I know this is not the case for everyone. But I felt an instant improvement initially. Then I had some bumpy ups and downs, which is expected. And now I feel really good (actually great a lot of the time now:).
Also, I believe I was able to tolerate all of the die off because I was religious about doing coffee enemas daily. I think this was key to my success.
I also have MTHFR (and I'm sure more of the methylation defects like CBS mutation which causes sulphur sensitivity). I recently started some supps for these genetic issues and am doing really well.
Because of all of your years of antibiotics, you really need to work on your gut. And treating parasites is an essential part of that. Remember, about 80% of our immune system resides in our gut.
So bottom line -- I cannot overstate it -- without a doubt I would strongly suggest treating for parasites.
Wishing you all the best.
Posted by glm1111 (Member # 16556) on :
Well said Tammy!! Bringing this back up for others to read. There are many on here that are still chronically ill after yrs of abx who need to see this info and hopefully they will take heed.
Gael
Posted by BBinme (Member # 34131) on :
Thank you so much Tammy! I will be bringing this up at my next Llmd apt.
Just a couple other questions, did you treat Lyme and/or co infections at the same time? Or did you put that on hold while treating parasites?
If you put Lyme tx on hold during parasite tx, did you resume Lyme/co treatment after that?
Also is salt/c safe? Did you have any side effects from it?
Thank you again, I am trying to learn more about genetic issues as well, Dee
Posted by glm1111 (Member # 16556) on :
For more info on salt/c visit lymestrategies. This is the group doing salt/c as well as other protocols. You can pose your questions about this protocol there.
Gael
Posted by glm1111 (Member # 16556) on :
Just wanted to add that salt/c kills bb and the cyst form. I have only used salt/c and antiparasitic herbs and they seemed to alleviate the other infections as well.
I am 95% better after being misdiagnosed for thirty yrs and tested positive for bb, erlichia, bart and babs.
Not an overnight cure as it takes persistence. Also other adjuncts such as coconut oil, extra cloves digestive plant enzymes and kefir all helped.
Posted by BBinme (Member # 34131) on :
Tammy if you don't mind could you be specific about the protocol you are doing for parasites?
Are you on hummaworn, parastroy and salt/c all at the same time? I haven't read up on Dr K protocols yet.
Do you also have to detox for heavy metals as well? Sorry for all the questions, just trying to sort it all out. Dee
Posted by BBinme (Member # 34131) on :
Thank you Gael, I was not aware that it also kills Lyme and cysts, do you know the mechanisms of action salt/c has against Lyme and cysts?
Also how long have you been doing salt/c and herbs for parasites? What is the specific protocol you take. Also have you also used other treatments for Lyme and co's?
Sorry for all the questions, thanks dee
Posted by glm1111 (Member # 16556) on :
For questions on salt/c killing cysts and bb, please visit lymestrategies and ask the owner of the website Mark Fett for answers. He is much more knowledgeable about the mechanisims than I am.
I have been doing antiparasitic herbs and salt/c since 2006 and am 95% better after being misdiagnosed for 30 yrs. There are many posts on here under parasites with lots of info on aniparasitics and salt/c.
Parastroy, Humaworm, Hanna Kroeger Wormwood, extra cloves, digestive plant enzymes by Soloray, HCL, coconut oil, Kefir are the protocols I have used.
Gael
Posted by Tammy N. (Member # 26835) on :
Hi Dee - It doesn't look like I need to treat for Lyme or coinfections right now (I will stay in touch with my doc on this). All treatments were pretty fruitless for me, or very short-lived. So when I started treating parasites, that became my main focus. Every time my doc tried to add other things to treat Lyme, it just didn't agree with me. My body doesn't like to take too much. So we just kept the focus on parasites. Now it seems that the other infections are like a non-issue. My symptoms are just about gone. I will still stay in contact with my doctor so nothing sneaks up on me, but I feel really good. In fact, I had an appt this past Thursday that I cancelled because I am feeling so good. I'm going to start spacing my appts out now, rather than going so frequently.
What I'm currently doing: Taking 1/2tsp salt and powdered C before breakfast and before dinner on an empty stomach. (I was at 1/4tsp for a long time, but just decided to increase recently. I have no side effects.) And I'm taking Parastroy. For the last 4 months I was taking Para A tincture but I ran out so now I'm using Parastroy. This is taken with meals.
I wish I understood the importance of treating parasites years ago. It would have changed the course of my life. I am grateful that I at least found my way now.
Best to you.
Posted by WPinVA (Member # 33581) on :
Tammy - Thank you for posting your protocol. How do you manage to swallow a 1/2 tsp of salt? Is it in a tablet or straight salt?
I take thermatabs (for dysautonomia) and it has wreaked havoc on my stomach, so I'm wondering how straight salt would do. That also makes me wonder if the thermatabs are having any effect on parasites or does it have to be a particular kind of salt?
Would you be so kind as to recommend the type of salt that you're using?
thanks!
Posted by MannaMe (Member # 33330) on :
What about someone with high blood pressure? Can they do salt/c?
Posted by Tammy N. (Member # 26835) on :
WPin VA - I drink the salt and c in a full glass of water. It's regular sea salt. Not sure about thermatabs, etc.
MannaMe - I'm not sure about this. From what I understand sea salt is not suppose to affect blood pressure. I thought it was just iodized salt that was an issue. But, again, I'm not sure.
Posted by Catgirl (Member # 31149) on :
I think it's raising my bp. The last few times I've been to my doc's office, my bp has climbed a little each time (it's still okay though--not very high).
Posted by glm1111 (Member # 16556) on :
Best to pose the b/p issue at the lymestrategies site.(the group that does salt/c) They are familiar with these issues and can give you some insight.
Gael
Posted by Maya12 (Member # 36392) on :
Just wondering can parasites cause all the same symptoms as Lyme an other cos?
Posted by glm1111 (Member # 16556) on :
YES ABSOLUTELY!! Check the symptom list by googling parasite symptoms.
Gael
Posted by Maya12 (Member # 36392) on :
hey guys, i took only 2 doses of humaworm and already got rid of one worm, ugg i know
this is making me think though that we are full of these
it is interesting that both tammy and gael treated only for parasites, of course after many years of lyme and other co treatment but now their symptoms of lyme and other cos are gone
maybe getting the bigger crap critters out is the answer to getting rid of the smaller ones
my aunts llnd told her the same thing, she has had 30 years of lyme and co and has only treated for parasites and heavy metals for the last 2 years and is soooo much better
she was in horrible shape before treatment both mentally , physically and neurologically
Tammy, before ever treating for parasites did you find that you reacted to a lot of the abx , and either couldn't handle them or had to stay on them constantly to get even some releif, or did they just do nothing for you ?
Posted by lax mom (Member # 38743) on :
Maya: I kept getting sicker and sicker the more antibiotics the Dr would add.
When I did 2 days of Biltricide, I passed liver flukes. No wonder I've been so sick.
Thank goodness you now know what you are dealing with!
Posted by derk diggler (Member # 31903) on :
maya, im glad your doin okay, let us no if treating parasites helps your neuro symptoms, d/p d/r thanx good luck
Posted by Maya12 (Member # 36392) on :
i agree lax mom, that is interesting that you also get sicker and sicker on abx
i took 2 pills of humaworm 2 days ago, passed a worm yesterday, woke up feeling like crap today and took another dose of humaworm this morning and actually i am feeling better than i have now in weeks, more normal thinking and mood
could just be a coincidence but i am gonna take it slowly and build up and yes i was also just getting sicker and sicker on abx
i also think i passed liver flukes a few weeks ago, what did yours look like?
and yes i do believe i know at least a major part of what i am dealing with
i think i am literally full of worms , have been around horses and dogs and cats most of my life and my husband and i have 5 dogs and 4 cats ( live in the country , no we are not animal hoarders , just rescue them, lol) but have NEVER DEWORMED MYSELF BEFORE
stands to reason that i would be full of worms and parasites
Posted by Maya12 (Member # 36392) on :
are you having any relief of symptoms yet from parasite clensing lax mom?
Posted by Maya12 (Member # 36392) on :
I will for sure let you know derek ,
And Gael and Tammy I am so glad you are so adimant on talking about this and reporting your progress with this co infection
Posted by BBinme (Member # 34131) on :
Tammy, so the antiparisitic meds didn't really do much for you? Is that right? But when you did herbs and salt/c you had huge improvement? Just wondering if I should go herbal or meds. I will have to read more about it and then decide.
My issue is that I seem to be getting more and more sensitive to antibiotics and herx to hard and cannot tolerate some of them. I cannot seem to tolerate Bart meds at all. Some meds I can take and after initial herxing I begin to feel better but when the med is stopped I feel horrible again.
Do any of you have this issue?
Posted by lax mom (Member # 38743) on :
Maya: just like you I felt great after a few days on parasite treatment. I am in between rounds (I'm going the prescription route with my NP) and now all of my symptoms are back.
Thankfully, I am set to start another round of anti-parasitics in a week.
I grew up on a farm and played with the animals like pets as a child...and I had never de-wormed myself before, either.
Posted by lax mom (Member # 38743) on :
BB: I feel the same way. If I'm on too many things, I feel horrible. If I'm on nothing, I feel horrible.
So, I need to find balance. I know I have to treat parasites, heavy metals, viruses and mold. I also need to treat the bacteria in a way that doesn't wreck my immune system in the process.
Posted by Maya12 (Member # 36392) on :
Hi bab and lax mom , just wanted to say that I feel te exact same way on lyme and babs meds as lax mom described , ok on a small dose for a day or 2 then horrid, and trying to do combos is way too much
I also seem to be unable to tolerate any script meds more and more, herbals hit me hard too so I have to do small doses and not push it and do lots of detox or else I am just a total nut job
I do feel better on baby doses than off anything , it is a very fine balance
I think there are likely many who are like this though
I seem to be handling the humaworm much better than Mepron and zith and have also started muscle testing
Tried thi with the Mepron yesterday and it was a no way
Also passed another worm today
But actually had some energy and mental clarity
And lax mom I hope you will feel better once on anti parasitics again
Posted by Maya12 (Member # 36392) on :
Hey guys does anyone get more tremor and feel like you nervous system is agitated when treating parasites?
I just feel like my body is agitated today and have a nervous energy
Posted by glm1111 (Member # 16556) on :
I have had lots of internal vibrations treating parasites. Parasites invade the CNS, brain, tissues and organs and can produce some uncomfortable symptoms when going after them.
Gael
Posted by Maya12 (Member # 36392) on :
thanks Geal, you always know how to help me, can they produce some anxiety when attacking them?
also does anyone know if any of the ingredients in humaworm can go after lyme, babs or bart at all too?
i am still def better today than i was before i started the humaworm, just wondering if i am going through a bit of a herx today
how long on the antiparasitics till you can start herxing?
Posted by Maya12 (Member # 36392) on :
And can the die off cause a bit of a body zap or jolt?
Posted by Maya12 (Member # 36392) on :
And bb and lax mom how are you feeling today?
Are you on any anti parasitics bb?
And when do you strt back on them lax mom?
Posted by lax mom (Member # 38743) on :
Hi Maya!
I start back on the 13th. Feels like a lifetime from now. So, I'm a bit wiped out.
I'm going to ask my NP why I have to take breaks in between each round of anti-parasitics tomorrow during my Skype appt.
Posted by Maya12 (Member # 36392) on :
good idea lax mom, i do take a day break every few days to let me body detox, i just don't seem to push myself too hard with anything
but i know it has been a bit longer than that for you since on the parasite meds
did you herx on the parasite meds at all lax mom? and id so what symptoms flared?
i do remember you posting something a few weeks ago about feeling like you were going through stages of grief from the meds, how long were you on them?
also grose i know but what did the liver flukes look like that you passed? i think i passed some too but not sure for sure, and did you get other wierd looking stuff?
hope you feel better once you start back on them again
Posted by glm1111 (Member # 16556) on :
I always checked the www.lymephotos.com site to see if I recognized any of the parasites. I had them all! So Maya, it's a good guideline to use. Also, you can google liver fluke images. Anxiety is also a main symptom of parasites.
Gael
Posted by Maya12 (Member # 36392) on :
Can that include OCD type anxiety like obsessive reoccurring thoughts?
Posted by Maya12 (Member # 36392) on :
hey Gael i got something out that looked like a little slug, round at one end and pointed at the other with the pointed head like thing being darker
it was basically the shape of a pumpkin seed but smaller, with the dark head
any idea at all what this could be, i looked on lyme photos but didn't see anything like it
Posted by glm1111 (Member # 16556) on :
Yes Maya, it can def cause OCD and any neuro symptoms you are having. It would help if you checked the symptom list at Humaworm so you can see all of the symptoms related to parasites.
I know this is scary and uncomfortable and I hope you feel better and better as you get rid of these critters that have invaded your body.
Hang in there,
Gael
Posted by glm1111 (Member # 16556) on :
There are over 1,000 different parasites and it's difficult to identify them all. I had othere that were not on the lymephotos site.
Gael
Posted by lax mom (Member # 38743) on :
I didn't know what I passed until I googled liver flukes...and that's when I knew I had them.
I have looked at the humaworm website at all the symptoms and seem to have them all but have many other symptoms than what is on the list and just wondering if they could be from parasites as well
I am assuming that parasites can cause many more symptoms than what is listed at humaworm just don't know quite what other ones
With so many types of parasites and so many diff areas of the body they can invade I guess they could cause pretty well any symptoms mentally or physically
Wish we had a good list on lymenet here
Just like we have good lists for Lyme and the other cos
Just seems like less is known about parasites and their symptoms
My neuro sx have calmed down a bit though on the huma worm and my mind is slightly clearer and mood a bit better and perceptions a bit better which is interesting
Posted by Maya12 (Member # 36392) on :
Hey Gael how long did it take you to feel any improvement on anti parasitics and know for sure that you were on the right track with the right infection?
I feel I am on the right track by what I have seen but just hope for major improvements
So sick of this disease but aren't we all
Posted by glm1111 (Member # 16556) on :
It was gradual for me because I had quite a hyperinfection that was misdiagnosed for over 30 yrs. Everyone is different and it depends on how long you were infected.
I had a mass exodus of parasites after 6 mos of lots of antiparasitic herbs, but it was the salt/c that broke the back of the infection.
Gael
Posted by BBinme (Member # 34131) on :
Hi Maya, pretty name BTW, same as my daughters, except spelled May. To answer your question, no I am not on any parasite treatments yet, but going to bring it up to ,y llmd at my next apt. And to answer your other question, I am feeling like crap currently unfortunately. Glad to hear that you are feeling some improvement on hummaworm.
Question for lax mom, Gael and Tammy, what all have you taken for parasites and what worked the best. It sounds like some of you do a combination.
Posted by Tammy N. (Member # 26835) on :
BB - You asked if I thought that the anti-parasitic meds didn't do much for me. They did A LOT for me. I started passing parasites on day 2, and every day after that continuously. But after about 3 months of doing them back to back my hair started to thin terribly. So I switched to herbal and salt/c and seemed to be getting the same results as the meds (meaning I continued to pass parasites daily.) So I have stayed on this herbal path now for about 4 months.
I slacked on my treatment for the month of December but just restarted (and, yes, I am seeing results...passed an 8" worm yesterday. This is crazy!! It still amazes me!). So even though I feel great, I still have a major parasite infection. I will stay on this treatment path for as long as it takes. Then I will do maintenance for life. I am grateful to have my life back.
I'm currently taking Para A tincture and salt/c twice per day.
Maya - Good for you! Keep at it!!
Posted by BBinme (Member # 34131) on :
sorry Maya that was auto corrected, my daughters name is spelled Mya:-)
Posted by Maya12 (Member # 36392) on :
Hey Tammy did you herx too on the parasite meds?
How long did it take you to notice major improvements?
Posted by Tammy N. (Member # 26835) on :
No I did not herx. Just felt better. I noticed improvements right away. Then had some ups and downs, which is normal. Then I just kept getting better and better.
Posted by Maya12 (Member # 36392) on :
I have had a few minor improvements so far but just have so many ups and downs
Posted by Catgirl (Member # 31149) on :
Tammy, I can't believe after all you've done you just passed an 8 inch worm!
Did you take doxy too while on the anti parasite meds?
Posted by Maya12 (Member # 36392) on :
anyone ever get itchey all over when treating parasites?
Posted by Tammy N. (Member # 26835) on :
Catgirl - I know!! This is nuts! So happy to be getting rid of these bugs that have been way too comfortable for way too long inside of me. No, I did not take doxy. I have not been on abx for years. I really want to rebuild my gut, and abx are contrary to that. I think so much of our health comes from our gut.
Maya - I don't recall feeling all-over itchyness. But it certainly sounds like it could be a normal reaction to parasite die-off.
Posted by Maya12 (Member # 36392) on :
also i am passing worms that look like threads and they can be pulled apart into further threads or fibers , they look like the juvanile nematomorphs on the lymephoto webcite what are these?
Posted by Maya12 (Member # 36392) on :
they are kind of dark brown or red in color
what kinds of nematomorphs are there and which ones infect humans?
Posted by Maya12 (Member # 36392) on :
And can they be seen by the naked eye?
Posted by Maya12 (Member # 36392) on :
how do you post a pic on here?
Posted by lax mom (Member # 38743) on :
Tammy: Oh my gosh! If you are still passing worms then how on Earth do we irradicate these suckers?
I remember RZR still sees parasites after doing coffee enemas for a long time.
Are these guys going to be permanent inhabitants regardless of the treatment?????
Posted by glm1111 (Member # 16556) on :
My experience has been after I eradicated the larger ones (took mos and mos..maybe even longer, can't remember) then the smaller ones come out of hiding from the tissues.
As described on lymephotos, it can take 3-5 yrs to get rid of this infection, depending on how long you have been infected.
The importance of doing maintenance can't be overstated because if even one egg is left, the cycle will start all over again. The good news is as the infection is eradicated you should be feeling better and better.
I have been infected for over 30yrs, so it has taken me approx 6 yrs. I am 10,000 x better than I was..
Posted by BBinme (Member # 34131) on :
Tammy, thank you for the clarification. I may ask to try antiparasitics first to see if it helps and to see if I pass as anything. Was it difficult to see them?
Did you do coffee enemas daily from the beginning. Also what about heavy metals while killing the parasites? I seem to remember reading somewhere about the parasites releasing heavy metals when they die? Is that true?
And what will you be doing for maintenance against parasites? Than again, dee
Posted by Lala (Member # 29864) on :
Most of the pictures on lymephotos are microscopic, so how can we compare them to what we see in the toilet? Also there is no scale, so we do not know how big these things are really. Cercaria is as big as nematomorphs on their picture, however in reality cercaria is about 1 mm and nematomorphs can be few meters.
Posted by glm1111 (Member # 16556) on :
I gaurantee you they are NOT microscopic. They are as big as they appear in the pictures. Even the red, blue, green and black fiber looking ones can be seen very clearly when they exit.
I have seen these myself and have measured some of the larger appearing ones as big as 8 inches. Nothing better than first hand experience!
Gael
[ 01-09-2013, 12:18 PM: Message edited by: glm1111 ]
Posted by Catgirl (Member # 31149) on :
I've only seen a few worms. I'm pretty sure they are hanging on due to all the metals in my body (working on this).
BBinme, Do a search on the babushka principle (Gigi's post). It makes total sense.
Posted by Maya12 (Member # 36392) on :
Omg , I have been on humaworm for 5 days now and just passed a 5 inch long worm, uggg
Posted by Maya12 (Member # 36392) on :
And I searched the babushka principle but can't find the like , can anyone direct me to it, I would like to read it?
Posted by Tammy N. (Member # 26835) on :
Lala - mine are far from microscopic. Mine are large, mature worms. Disgusting. Some people may examine their bowel movements and think they maybe see something. Mine are unmistakably parasites, no maybe about it. It makes me wonder how many more tiny microscopic ones I have that I cannot see. Ugh. Freaky to realize I was so infested.
Maya - welcome to the club! You are on your way to getting better. Stick with it.
Catgirl - you are right to remember metals throughout all of this. Thank God for all of Gigi's posts on this. It reminds me I need to stay more on top of binders.
Posted by Maya12 (Member # 36392) on :
Hey Tammy thanks and yes I have def joined the worm club
Just talked to my llmd about this too and I am being put on A full parasite protocol in a few months incd allinia and ivermectin and going after biofilms and metals and yeast too.
I am to stay on humaworm till then
So now I am really going to join the club and hit these horrible critters hard
My llmd is now saying that parasites are likely my worst and most prominent problem now and they and the fry bug are what are making me so sick right now, not the Lyme or other cos
She was shocked by what I have passed in only 5 days on humaworm
Llmd doesn't even want me to treat the other infections till I tackle the parasites for at least 6 months and then maintenance after that.
So glad Gael and now others kept talking about this or I never would have known
Posted by Tammy N. (Member # 26835) on :
Maya - This is all great news! I am so happy to hear your LLMD is on board!!
From all I have learned in my 20 year ordeal, I believe parasites are the primary reason why most of us are ill and cannot get well.
If you are not taking salt/c, I would strongly consider adding this to your protocol.
You are on your way!!!
Posted by glm1111 (Member # 16556) on :
Another worm bites the dust. Totally agree with Tammy. Hopefully, more and more people will start treating for parasites.
Adding salt/c will really add to getting these critters on the run. Really encourage everyone who is having success with this to keep posting about it, because it truly can make the difference in someone getting well or not.
Gael
Posted by Maya12 (Member # 36392) on :
And I am now officially part of he club, I def feel like I am on the right track now and am even backed by my llmd and llnd, you guys were soooooo, right
And thanks for the support Tammy , I am just taking it slowly but will def add the salt c when I can tolerate it
My llmd wants me to go slow as she says treating parasites can be very difficult and I want to at least not totally loose my marbles lol
But will def add the salt c when I can tolerate iT
Posted by Catgirl (Member # 31149) on :
Right on Maya! I am really happy your doc listened and is treating you. Just a heads up on the salt C. There is another post where another member went too fast with it and ended up in a wheel chair. It's on the board right now (salt C). Just go slowly with it.
Thanks Tammy. Posted by Maya12 (Member # 36392) on :
You should have see the dam thing in the toilet there guys, well I know you already have lol
But I just about fell over and then thought to myself screw you worm glad you are dead and out
Posted by Maya12 (Member # 36392) on :
And yes my llmd is totally on board , had apparently been doing research on it lately after it was named the number one co infection
Posted by Maya12 (Member # 36392) on :
Thanks so much for the help and encouragement guys I really appreciate it
Posted by Maya12 (Member # 36392) on :
And thanks so much to Gael , I didnt see your post before
Posted by Maya12 (Member # 36392) on :
Hey guys who here has taken allinia ?
What is it like to take it, are there a lot of side effects? Is it hard to tolerate?
Posted by Catgirl (Member # 31149) on :
It seemed to work as well as ivermectin did on me. It wasn't hard to tolerate at all (easy). I didn't have any side effect other than yeast.
Posted by BBinme (Member # 34131) on :
So I will ask again, do you have treat heavy metals at the same time as treating for parasites?
Posted by Maya12 (Member # 36392) on :
Yes bb I think you do , or at least should try, the worms carry heavy metals and these metal , I think can be released when killing the worms , so it is good to do both
The best thing to do is get an llnd( naturopath) who can help guide you through the heavy metal treatment.
Posted by Lala (Member # 29864) on :
I have been on diatomaceous earth every day for two years now and I have seen myself some of those nasty macroscopic creatures, so I do not doubt they are there. I only pointed out that microscopic and macroscopic parasites look like they are the same size on lymephotos, which obviously is not realistic. Btw: DE is good for traping HM too.
Posted by Lala (Member # 29864) on :
Is there anybody who tried DE? If so, what is your experience?
Posted by Maya12 (Member # 36392) on :
Can anyone tell me what they experienced with parasite die off, I just have so much body pain today and feel so incoordinated and for some reason I keep having fearful thoughts that my body is totally shutting down on me , that I won't be able to walk or talk anymore.
This is crazy I know but is there any way I am sort of emotionally and physically experiencing what the worms are going through? Can this happen? Is this nutts?
Thought dr k talked about this but I can't remember where.
Also can parasite die off cause brain and body zaps?
Posted by glm1111 (Member # 16556) on :
It's not nuts Maya to think that. I remember Dr. K. talking about how these parasites control emotions.
They have evolved over milenia, and are Masters of survival. When a female worm dies it empties out all of it's eggs to hatch a new generation.
That's why i keep emphasizing the extra cloves. I had emotional sobbing for a long time with dieoff and also fearful thoughts. I do believe we can experience what the worms are going through.
I even at some points had empathy for them as I felt them dying. I quickly got hold of myself, because I clearly understood, it's them or me. This is a battle for sure, but one we can win against these invaders.
If you are herxing too hard, you might want to slow down on your tx until the severe herxing stops and then resume. I am sorry you are going through this, but the good news is that you now know the enemy!!
Just know you are on the road to recovery, War is not easy, but you are the General and the Capatain of your ship.
Gael
[ 01-10-2013, 07:00 PM: Message edited by: glm1111 ]
Posted by glm1111 (Member # 16556) on :
P. S.
Parasites can cause a lot of pain, brain and body zaps. Coconut oil helped me with pain and also was instrumental with killing yeast.
Posted by Maya12 (Member # 36392) on :
Hey Gael thanks so much for all your help and encouraging words above, you always know how to help me.
Can they also cause dizzy spells?
And Gael did you ever experience weakness or in coordination as if your body parts were just not working like you wanted them too or did they feel jellowey and heavy and slow?
Also have a lot of chest pain and muscle tightness today
I have taken a break from the humaworm today
Wonder if I am also hitting babs a bit with the humaworm
Posted by Maya12 (Member # 36392) on :
Interesting about the brain and body zaps too and Gael how could you feel them dying?
Posted by Tammy N. (Member # 26835) on :
Well said Gael! So true. I also experienced a range of emotions. And like Gael said, sometimes even empathy for the dying creatures. I love life and respect all life forms, but I quickly had to change my thinking because it was clear to me I was in the battle for my life.
Maya - as best you can, try to walk every day. I think it is very important to keep things moving (especially the lymphatic system). I find it helps the body deal with it all. Also, try to get on board with daily coffee enemas. I can't emphasize this enough. They made treatment completely tolerable for me....almost a breeze.
BB - my advice is to NOT try to tackle metals at this time. Only take binders to capture metals that are released from the dying parasites. If you try to treat metals further....such as chelation, etc., it will cause them to mobilize and circulate throughout your system and can push you over the edge. Binders are necessary. Mobilizing is not at this stage, I would proceed with caution. And, when the time comes, be sure to be with an experienced practitioner who can guide you through.
Posted by Dove7 (Member # 39546) on :
Okay, Y'All, After being placated by my neuro (& many expensive tests), not getting a lot better on abx these last three months, I began to consider parasites. My LLMD agrees.
BTW, thanks to lax mom and Gael, I have been looking at my stools, and I'm pretty sure I passed small liver flukes and some other little white worm-things. How gross...and fascinating at the same time.
Monday I see a local naturopath (in my llmd's office) who will do tons of muscle testing, which I still hold a bit of skepticism regarding, and who will discuss parasites with me.
How did any of you get medical tests/stool cultures done? I realize it's a truly crappy topic, pun intended, but my LLMD said there is one test that insurance will cover and one that is around $170-200 and is more accurate. What did you do, anyone?
Thanks to all of you. Toes days when I begin to once again think I'm just crazy, I get on here and feel I'm not the only experiencing the rollercoasters of these confections (that word was autocorrect's answer to co-infections!).
Posted by glm1111 (Member # 16556) on :
Save your money! I was tested over the years and the tests were all negative. I, however was LOADED with parasites.
Treating parasites after 4 yrs of abx were not getting me well saved my life. See what the muscle testing comes up with.
Gael
Posted by LAXlover (Member # 25518) on :
Dove7,
If you do want to do a stool test, try:
Institute of Parasitic Diseases 1-602-955-4211
I had my daughter with "Crohn's Colitis" do this last year. They found Charcot-Leyden Crystals in her sample but no parasites themselves. I've learned that these crystals almost always are a by-product of parasites in the GI system.
I also emailed back and forth with the owner of www.badbugs.org and they have only connected these crystals with ENTAMOEBA HISTOLYTICA. Muscle testing a couple years ago said this and I didn't believe them! Ugh.
After antibiotics, lots of flagyl and herbs and SCDiet, she has no clinical GI symptoms of Crohn's Colitis!
I highly recommend this lab!
Posted by pme (Member # 31621) on :
I am so happy about how well everyone is doing on parasite treatment.
I started salt/c about 8 days ago. I am not sure what I am seeing. Could just be undigested food.....I have no idea.
But Gael I have a question about coconut oil. How much did you take to help you with yeast?
I recently added cipro again and am very yeasty for sure.
Also I would like to know how long until you see things in your stool? I know some of these parasites are microscopic but it seems as though many who successfully treated parasites saw some indication that it was working in the first couple of days (or at least the first week)
Also, I feel very constipated......I am drinking lots of water, but this is never an issue for me. What do you do for this and is it a common side effect (I assume the salt is dehydrating).
Thanks!!!!
Posted by jjourneys (Member # 39813) on :
Thank you to all of you! What wonderful information you have shared!
I was just getting ready to ask what anitparasites you were using and what you thought. I'm researching these before my next appt so we can start working on this possible issue. The more I research, I'm thinking parasites could be an issue for me.
Posted by Catgirl (Member # 31149) on :
Dove, I agree with Gael, save your money on the tests. I did one by metametrix. You only select a tiny portion of your bm to put in the vile. The odds of that tiny portion of poop having any signs of parasites are small. Plus, there's a preservative in the vile that messes with the results (saw this on recent ILADS conference).
Tammy inspired me a few months ago (thank you Tammy!). Gael too. Tammy used skewer sticks to examine for parasites. That's when I found proof and told my doc. I did this after taking something to drive them out though (salt c & herbs).
So of course, once I had evidence, my doc started treating. I think they need evidence for insurance purposes and or medical boards.
Pme, I started seeing stuff after a few days of salt c and herbs. I think constipation is common with parasites. I get more constipated the more I treat. Sometimes I have to back off a little. But you can always do coffee enemas or extra mag citrate to relieve this. More leafy greens helps too.
The coffee enemas are great. But I have a gallbladder issue, so I have to back off of them right now.
Maybe the constipation is due to a bunch of worms that are fighting to live. Maybe they've collected in an area where they like to hide, or have just pooled together for protection. I'm not really sure, but the clock is ticking for them.
Posted by BBinme (Member # 34131) on :
Tammy, what do you take to bind metals?
Posted by Tammy N. (Member # 26835) on :
Catgirl - you're welcome:) I'm so happy to have played a role in helping you take the plunge.
BB - my binder of choice would be Chlorella (per Dr. K.) but I have issues with sulphur and I'm not able to handle it right now. I currenty take microsilica. Occassionally I add in Apple Pectin. Also sometimes EDTA suppositories (when my doc ART tests me for it.)
Posted by pme (Member # 31621) on :
Catgirl Thanks
I wonder if the salt itself may cause constipation
For some reason coffee enemas send me over the edge.....just can't do them I feel awful afterwards. I wish i could use them since so many people say that they benefit from them.
Just am not sure what to look for...unless it is very obvious as in Maya's case!
Posted by glm1111 (Member # 16556) on :
The sea salt should act as a stimulant. Higher dose Vitamin C will also flush out the colon in higher doses up to 10,000 mg.
How much salt and C are you taking? You might benefit from one of the herbal cleanses such as Parastroy. As far as coconut oil, I started with 1 tsp and increased it according to how I felt.
P. S. Parasites themselves can cause constipation. You don't have to do coffee enemas to get results. Warm water enemas are just fine.
The pressure of the water usually will stimulate and flush out any parasites sitting in the lower colon.
Gael
Posted by CD57 (Member # 11749) on :
Maya I have had a lot of symptoms like yours and haven't gotten much progress on abx with BB and co's, and am about to start the Dr K med protocol (keep putting off, chicken!). I have had vibrations, anxiety, weird mood stuff, cognitive, depersonalization, tremors, pain, etc. I have gone through phases of feeling pretty good on something and lose ground/progress. I have seen "the best" LLMDs and they would always shake their head and say something else was going on, but they couldn't say what.
I have blown off parasites as a possibility b/c of the denial stuff that is posted here. But now I think it's a real possibility as I grew up riding horses and with cats, dogs, and birds.
What is interesting to me is that for Tammy and Gael, etc...they tested and treated for Lyme and co's but apparently their symptoms were actually from parasites....or perhaps their symptoms were Lyme and cos but parasites blocked successful treatment?
Anyway, I have hope for both of us. All of us! You remind me a bit of myself in the early days when my CNS was on high-alert and my adrenals were over-firing. It will get better!
Posted by Maya12 (Member # 36392) on :
hey guys , what do tapeworm eggs look like and how big are they?
can they be big enough to be visable by the eye?
Posted by Maya12 (Member # 36392) on :
And thank you cd57 , I didn't know you had many of the same symptoms as me, I hope parasite treatment helps you
Can parasite die off cause a lot of numbness and tingling in the hands and feet/ skin?
Posted by CD57 (Member # 11749) on :
Maya, also please post more about your aunt's success with this....30 years of treating Lyme bart babs ehrlichia?
Posted by Maya12 (Member # 36392) on :
Hey cd 57 , yes all I do is herx and either not get better or just get worse on Lyme and co meds
Also my aunt has likely had Lyme and co for 30 years but was only diagnosed 2 years ago, she has only treated for parasites and heavy metals so far over the last 2 years and is doing so much better now
She has not even treated Lyme and the other cos yet
Posted by RZR (Member # 20953) on :
Same story here.....constantly herx on abx and not get any better.
Why would we continue to herx if major problem is parasites, which I definitely know I have.
Posted by CD57 (Member # 11749) on :
RZR I don't know....I hope someone will come along and answer that. I wonder if it means that the treatment is somehow blocked from being successful but enough to produce an immune response, which are the symptoms/herxing? It could also be toxins not clearing out which some say are the same as actual disease symptoms.
Posted by Maya12 (Member # 36392) on :
My llmd told me that parasites hold the bacteria in them so even though you are killing what is in the blood with abx you are not killing the bacteria in the parasites
They also encourage yeast growth and hold heavy metals and apparently even the yeast hold bacteria that you just can't get at with the abx
I don't know if this is why we constantly herx though but I hope by getting rid of some of the parasites and yeast this will take some of the bacteria with them
Posted by CD57 (Member # 11749) on :
Maya, I thought you were starting to improve on Mepron/zith for babesia?
Posted by Maya12 (Member # 36392) on :
well at first i was doing ok on the mepron and zith combo and then got much worse and have never gotten back to feeling the way i did in oct, so this is why my llmd and i are looking at diff treatment options
i wish it had helped more, at least i am having some sort of better times on the humaworm
Posted by lax mom (Member # 38743) on :
I'm set to start my second round of Pyrantel today...thank goodness!
I felt like I barely made it to this point.
Parasite warriors, please pray that I make some major gains!
Posted by glm1111 (Member # 16556) on :
lax mom
Did you ask your doc why he had you take such a long break from the parasite meds?
Gael
Posted by lax mom (Member # 38743) on :
I was in such a fog, I forgot to ask. I did ask what my entire parasite treatment would look like, she said she didn't know at this point.
I'm so glad to see that we have a whole parasite thread going now!!!!
Posted by glm1111 (Member # 16556) on :
I agree about having a parasite thread. We should keep it going for support and options. It's really important so those that are still chronically ill can see the progress made with antiparasitics when nothing else works. Good luck with your tx. Keep us informed.
Gael
Posted by Maya12 (Member # 36392) on :
i am really glad about the parasite thread too since this is what i am concentrating on right now.
good luck lax mom with the paryntel, i really hope it helps again
i would love to hear some feedback on how you do on this since for the next 2 months i am on the humaworm and then switch to albendazole and ivermectin
and Gael thanks again for all the help you have given me
lets keep this thread going, i also think it is really important too
Posted by Catgirl (Member # 31149) on :
I am really happy we have a thread now. Lets keep it going!
Maya, it sounds like you have a great doc (good for you!). :)
I really like your doc's explanation about yeast, bacteria (quote below). How does your doc propose getting rid of the bacteria? I'm not on abx.
"so even though you are killing what is in the blood with abx you are not killing the bacteria in the parasites"
Thanks for mentioning the warm water enemas Gael (I forgot about them).
Lax, hang in there!
Posted by daynise (Member # 39609) on :
I am waiting on humaworm. The company says it's backordered or something. But I am upping my Salt/C as of yesterday.
Got a little scared with the severe diarrhea from the first doses of Salt/C (was doing only a 1/2 tsp of salt and 1000mg of C!) and so I decided to wait to up the dose.
Today(after doubling the dose yesterday) I woke up with more clarity and so much less pain.
Yesterday I was suicidal. Today I am hopeful.
How slowly do you take this? Is it still effective if I wait a couple weeks to increase each dose?
Did you guys who've been through Salt/C go up and down as you go through this or did you just feel better and better?
Posted by Maya12 (Member # 36392) on :
yes i really love my llmd, she always seems to be on top of the newest research and very open to trying new treatments or changing protocols when something doesn't work
i was wondering the same thing cat girl, but while on the albendazole and ivermectin i am to be on bactrim Ds and then Doxy , so i guess this will help to cover the bacteria problem
once this is done i then follow with alinia
also i am to stay on a low dose of iver pulse for a long time, indefinatly apparently
i will also be treating yeast at the same time and working on chelation of heavy metals with my llnd
hope this answers some questions
Posted by Maya12 (Member # 36392) on :
hey daynise , please hang in there, i have been there many times myself but somehow i have mnaged to have 2 somewhat okay days in a row recently which i have not had since sept , oct
don't want to jinx myself but i do have some hope today
also noticed my eyes are less blood shot today than they have been in years and the pinples on my back are strting to clear and my brain is slightly clearer and my mood slightly better
i actually feel sort of like i am in reality today and not on an lsd trip with obsessions and anxiety like usual
Posted by daynise (Member # 39609) on :
Thank you Maya. I'm so glad to hear you are feeling better and clearer. It makes me feel hopeful too to see other people on here feeling better!
Posted by glm1111 (Member # 16556) on :
daynise,
Having diarrhea after only 1/2 tsp salt/c is from dieoff and is a very good sign that you are killing stuff. Coconut water is also excellent for everyone because it is antifungal, and antiparasitic and high in potassium to balance out electrolytes.
Adding EXTRA cloves (Hanna Kroeger clove caps) is a good idea also to kill eggs and larva. (2 at each meal.) It is also antibacterial and good for pain. BTW,Sea salt kills bb and the cyst form.
RAMP UP SLOWLY WITH SALT/C!! Wait until the herx calms down and then only increase 1/4tsp each day as tolerated.
Ordering the e-book on salt/c is the best thing to do as it is a very helpful guidline. Sorry, I don't have a copy.
Good Luck everyone!!
Gael
Posted by daynise (Member # 39609) on :
Thanks Gael!
Increasing 1/4tsp as symptoms allow sounds like a very good and tolerable plan.
Also will add some cloves to my diet- Is coconut milk also high in potassium? (I have some of that in the fridge already)
Posted by Maya12 (Member # 36392) on :
hey guys, this may sound wierd but does anyone, while killing parasites ever get feeling introspective?
when i say this i just mean about examining life, like why do we think the way we think or why do we choose to do what we do
it is almost like assessing life more phylisophically and thinking about what makes a person a person and how do we really know who we are or what makes us who we are
it is almost like when healthy i just knew who i was and took that for granted but now after this illness question who i am or why.
it's like my brain gets caught in loops of questioning things that i can't necessarily find answers for, is this just part of the ocd thinking and anxiety from killing these critters
i also get flashbacks of memories when i think this way
i know it has to be part of a herx because on the days that i don't take the humaworm , i don't think this way.
just wonder if anyone else has anything like this?
perhaps it is my brain coming to life and thinking again but it kind of scares me so i don't know
Posted by Maya12 (Member # 36392) on :
i have never liked to think phylisophically and liked to live in the moment and focus on simple things when i was healthy
it always scared me to think of the bigger picture, so i wonder if this is just my brain misfiring and my ocd flaring from killing the parasites
it is funny though because on the days off meds i can just be more in the moment
Posted by Maya12 (Member # 36392) on :
I know this sounds crazy but sometimes it makes me think that the bugs that I am harming try to twist my thinking and scare me into stopping the humaworm
I say this because when I back off the humaworm this pattern of thinking goes away so it is like the more they throw at me to make me feel like crap, I in turn get scared and then want to back off the killers to make the thoughts and feelings go away.
Is this nutts? Can the bugs flare and cause more strange symptoms when trying to kill them to get you to back off the killers ( humaworm)
Can parasites really influence your moods and thinking this much?
Posted by glm1111 (Member # 16556) on :
I have had similar thoughts about the bugs contolling our thoughts. The owner of lymestrategies (salt/c) said not to worry about the dark thoughts because it's the bugs causing the mental changes.
I don't know the intricate mechanism of what occurs in the brain, but I have felt that the bugs cause thoughts to make us back off meds etc. If more than one person thinks the same thing, there probably is some truth to it.
I have had wild visions when thinking of opening a can of soup that the can was vicously slicing my hands and causing them to bleed. The parasites have caused me to have REAL cuts in my knuckles. Interesting.
Maya,
I think you are very intuitive to be aware of these possibilities.
Gael
Posted by Maya12 (Member # 36392) on :
Hey Gael what do you mean , did you envision cutting yourself and then accidentally did , or had cuts on the knuckles for a totally different reason?
Also thanks for replying to this and thanks for calling me intuitive , lol
I also get those types of visions and my aunt who had Lyme and co had the same thing, visions and that sort of thing
Do you now feel it is you fully doing the thinking and no longer the bugs? Do you have these types of thoughts or visions anymore or are they now gone?
Posted by glm1111 (Member # 16556) on :
Your welcome Maya. The cuts and bleeding knuckles were seperate and early on in tx.that actually occurred. The visions came when I was taking antiparasitics and were absolutely violent and came only when I thought about opening a can.
It was like the sharp lid was the parasite cutting my hand. I never though about cutting myself. Thinking back on it, I am sure it was the parasite fighting back and trying to hurt me,
I am a pretty rationale person, and have given this lots of thought. These parasites are fighting for there lives, just as we are fighting for ours.
Make NO mistake, this is WAR!. I often felt that I was trying to slay dragons. I am a strategist, so I put lots of thought into the tools I can use to get rid of the invaders.
Example: Drinking milk (they love milk)to keep these critters in the gut and then attacking them with salt/c and herbs. This is not just my strategy,
I have read GiGi posting the same thing about the milk esp during a full moon. There are some docs that give sugar along with abx to make the bacteria eat the sugar which they love and then eat the poison of the abx.
Gael
Posted by lax mom (Member # 38743) on :
Ok, guys...I'm going to be honest...I'm scared to take the Pyrantel tonight.
I know it's silly because I already went through one 14 day round.
I feel so crappy and weak...and I know the pyrantel zaps my energy...so I've just gotten apathetic and don't want to do anything that will make me feel worse.
Posted by sillia (Member # 23994) on :
Lax mom, you might consider waiting until you are feeling more up to it...? I take breaks between my parasite meds because even at low doses they do tire me out. I want to get rid of the bugs, but I also don't want to spiral down into exhaustion.
Maybe you've already written somewhere about your dose but if what you were taking really drains you, maybe take a smaller dose?
My hope is that every little bit I do is reducing the overall "load" of parasites. Gradually the load will get smaller and smaller and the herxes and fatigue symptoms will be less troublesome.
Posted by Maya12 (Member # 36392) on :
That is so crazy that you have felt the same way about the bugs controlling our thoughts and even creating visions
It sounds nutts but I sometimes feel like I am , with my rational mind , battling against the thoughts the bugs create , almost like having 2 minds , my own and the thoughts I battle against that I KNOW are not my own or not what I would normally think or feel or act
The thoughts that are not my own are the stupid deep dark thoughts but my rational mind realizes they are wrong
I know this sounds crazy but I am not crazy
I recognize that when I fight them more it is like they fight back more but I also know that to regain my body they need to be gone
This is just very interesting that others have experienced this, is it the bugs controlling our thoughts that causes the depersonalization
And I have been finding that the more I fight to kill over time I feel like I am starting to return to more me doing the thinking , not the bugs
Hope I don't sound too crazy
Also lax mom I know it is scarry but how will we ever get back to being ourselves otherwise
I get really scared too but think of what dr. K said we fight against what we need the most , so in theory your fear is telling you this is what you need the most
And Gael are you now in control of your own mind? Do you feel you are yourself again? Are the dark thoughts and visions gone now?
Posted by glm1111 (Member # 16556) on :
lax mom,
Wondering if you might do better on the herbs and salt/c. Both nourish the body, fight infections and support the adrenals. The pharma meds are hard on the liver and are just used to kill.
TammyN said that the herbs and salt/c work as good as the pharmas. I know this is what your doctor wants you to do, but this is something for you to consider. Sometimes we have to take charge and drive our own ship. Up to you of course.
Gael
Posted by glm1111 (Member # 16556) on :
maya,
The dark visions are 99% gone!!I am much stronger now and aware of what's going on.
Gael
Posted by lax mom (Member # 38743) on :
sillia: when I took 1 pyrantel at night, I was fine...then when I went up to the prescribed 2 pills/night, it wiped me out...so maybe I will start off on 1 pill/night again. (It would be really more bearable if the whole 14 days were just 1 pill/night).
Does anyone know if 1 pyrantel, 500mg, would be effective enough? or would that does be too low?
Maya: yes...I do need parasite treatment the most. Dr K is right about us fighting what we need the most.
Also, I read soem of your previous posts, you sound a lot like me...I have lots and lots of anxiety and neuro symptoms. I hope the parasite treatment gets both of us where we have some peace of mind.
Posted by lax mom (Member # 38743) on :
Gael: the herbs made me feel weird. I need to look into Salt/C, but haven't had the brain energy to do so.
Posted by lax mom (Member # 38743) on :
Do you have to order the book to do Salt/C correctly?
Posted by Maya12 (Member # 36392) on :
Hey lax mom that is interesting that we have many of the same symptoms , we will have to keep in touch on how we do on treatment
What symptoms have you had
Sounds like our experiences with meds have been similar too
Please keep going
Posted by lax mom (Member # 38743) on :
Maya: Goodness gracious...before my Lyme diagnosis, I was diagnosed with every anxiety disorder under the sun. My twitching and sensitivity to light and sound were called PTSD.
I had derealization which made me feel like I truly was going crazy.
My total exhaustion was called "hypersedation" and I was told I was depressed even though I kept telling the Dr's I wasn't depressed, just exhausted.
Had I not started having fevers last year, I would have kept on accepting that I must be depressed and anxious.
I now know that my teeth grinding is also a parasite symptom.
For me it seems like the bacteria, parasites, and everything else like to go to my brain and nervous system.
Posted by daynise (Member # 39609) on :
hi guys, is skin itching a normal die off symptom?
Posted by nitsuj1225 (Member # 39866) on :
Hello. I am so glad I found this parasite thread as I feel this could be the key to getting better.
My story short...bitten by tick as a teenager, experienced joint problems and parecarditis (sp) symptoms regularly for years. 2 years ago started neuro symptoms (anxiety, migraines, tinnitus, visual snow, tingling in feet and head pressure). Had ct scan and MRI of the brain that showed nothing so I went to an llmd where I was dxed with bartonella, Bio film, protozoa, mycoplasma. Lyme was inconclusive but my doc was fairly certain I had that too. Started treatment Oct 2011...have been on minocycline, plaquenil, tindamax and biaxin at various points for at least 6 months at a time as well as dozens of supplements. My initial herx was rough as I was bed ridden for 2 weeks but I was under the impression this is a good sign so I was hopeful we were on the right track.
Fast forward to today and 2 weeks ago I had a migraine and parecarditis symptoms within a day of each other which I haven't had since I began treatment. For the past 2 weeks I feel like I did during my initial herx when I first began treatment. My mildly blurry vision has turned to moderately blurry vision as it seems like the visual snow is a lot worse since this last herx. My blurry vision/floaters are 24/7 for the last 2 years and I feel if I can get rid of that then I would feel semi normal. My blurry vision has never improved while on treatment and neither has the tinnitus so I was wondering if anyone that has treated parasites has had a reversal of the visual symptoms (blurry vision, light sensitivity, floaters, etc)? It was so disheartening recently to have my vision get worse as I thought I was on the right track which brought back a ton of anxiety as I'm sure everyone here is familiar with.
I'm seriously considering starting salt/c protocol to see if this can be the treatment to get me over that plateau. Also read these posts about enema/suppositories being effective. My question is what should I start at when I begin the salt/c? I don't want to herx too bad so I would like to work up slowly. Also, I'm leaning more towards suppositories as its more convenient so I was wondering if that is a waste of time and just go with the enema or if that helps alone? And which suppositories are the best and where can I buy them?
Thank you for reading and providing me with any information you can.
Posted by Tammy N. (Member # 26835) on :
lax mom - you may be surprised and find you have a totally different experience this time around. Our thoughts can often affect our outcomes. Try not to expect to not feel well. Think of those of us who did great on these meds and actually started to feel better.
And if you get tired, rest. You are on the right track!
Friendly reminder - (daily) coffee enemas can greatly help you along the way.
God bless.
Posted by lax mom (Member # 38743) on :
Thanks for your encouragement Tammy!
Posted by dogmom2 (Member # 23822) on :
what would be the gentlest way to start treating?the paranix tried years ago gave me IC symptoms, and I didn't even tolerate very small doses of even buffered c, for the salt c, too much gi burning.
Even though my stool test was neg.,I know I have them as i saw what i now know were liver flukes(looked like curled up pieces of tomato skin) when i did the prep for a barium test
Posted by glm1111 (Member # 16556) on :
daynise,
Itching can def be a dieoff symptom. There are parasites that are hiding under the skin. Always check the parasite symptom list because the dieoff symptoms are often the same as the symptoms you had before tx.
Also, while coconut milk is very beneficial, the coconut water has different benefits. Google it.
Gael
Posted by glm1111 (Member # 16556) on :
[QUOTE]Originally posted by nitsuj1225:
Breaking Up For Easier Reading
WELCOME TO LYMENET
Hello. I am so glad I found this parasite thread as I feel this could be the key to getting better.
My story short...bitten by tick as a teenager, experienced joint problems and parecarditis (sp) symptoms regularly for years.
2 years ago started neuro symptoms (anxiety, migraines, tinnitus, visual snow, tingling in feet and head pressure).
Had ct scan and MRI of the brain that showed nothing so I went to an llmd where I was dxed with bartonella, Bio film, protozoa, mycoplasma.
Lyme was inconclusive but my doc was fairly certain I had that too. Started treatment Oct 2011...have been on minocycline, plaquenil, tindamax and biaxin at various points for at least 6 months at a time as well as dozens of supplements.
My initial herx was rough as I was bed ridden for 2 weeks but I was under the impression this is a good sign so I was hopeful we were on the right track.
Fast forward to today and 2 weeks ago I had a migraine and parecarditis symptoms within a day of each other which I haven't had since I began treatment.
For the past 2 weeks I feel like I did during my initial herx when I first began treatment. My mildly blurry vision has turned to moderately blurry vision as it seems like the visual snow is a lot worse since this last herx.
My blurry vision/floaters are 24/7 for the last 2 years and I feel if I can get rid of that then I would feel semi normal.
My blurry vision has never improved while on treatment and neither has the tinnitus so I was wondering if anyone that has treated parasites has had a reversal of the visual symptoms (blurry vision, light sensitivity, floaters, etc)?
It was so disheartening recently to have my vision get worse as I thought I was on the right track which brought back a ton of anxiety as I'm sure everyone here is familiar with.
I'm seriously considering starting salt/c protocol to see if this can be the treatment to get me over that plateau. Also read these posts about enema/suppositories being effective.
My question is what should I start at when I begin the salt/c? I don't want to herx too bad so I would like to work up slowly.
Also, I'm leaning more towards suppositories as its more convenient so I was wondering if that is a waste of time and just go with the enema or if that helps alone? And which suppositories are the best and where can I buy them?
Thank you for reading and providing me with any information you can. [/QUOTE
Easier for us with neuro Lyme to read so we can help you.
Posted by glm1111 (Member # 16556) on :
If you want to do salt/c (it saved my life along with antiparasitic herbs) start slow with 1/4tsp sea salt and 1/4tsp Ester C powder with bioflavinoids by American Health. in a large glass of water per day.
You can increase 1/4tsp at a time according to how you herx. Best to order the e-book from lymestrategies for expert guidance and more informative answers.
My visual disturbances cleared as I got rid of parasites. Warm water enemas are important to get rid of dead and dying toxins and parasites.
I would also suggest staring some antiparasitic herbs such as Parastroy. You can buy herbs, sea salt and vit c at vitacost. Hope this helps for starters.
Gael
Posted by MannaMe (Member # 33330) on :
My husband wants to try rifing parasites. He's hesitant to try salt /c with his high blood pressure diagnosis.
Wasn't sure how much his gut can tolerate of the parasite cleanses. His digestive system is so sensitive.
He tried coffee enemas, but say they make him feel bad afterward.
Just read somewhere that Grapefruit seed extract will go after babesia? Does it get parasites too?
Posted by CD57 (Member # 11749) on :
Why don't we name this thread PARASITE WARRIORS and keep it sticky at the top or something?
Daynise, Maya, Gael...Amazing about the weird thoughts and the visions when opening a can! I have had similar horrible thoughts. Thanks for being honest. These symptoms for me are way worse than anything physical. HOW WEIRD. They don't freak me out completely like they used to (I would freak out about freaking out) but I still notice them showing up and they have a bit of emotional charge stiff.
The bugs can control our thoughts? I guess we would have to put babesia in this category too because it's a parasite.
Posted by glm1111 (Member # 16556) on :
Dr, K, has talked about how they control our thoughts and emotions. They are in the brain. I read that before our ancestors spoke any language they communicated telepathically and with visions.
I think it's possible that's the way the parasites are communicating. I doubt if the mods will let us do a sticky, but we have to ask the original poster who started this thread to retitle it.
Gael
Posted by glm1111 (Member # 16556) on :
MannaMe,
Your husbands digestive system is probably sensitive because of the parasites hibernating there,
He can start with one of the cleanses at half the dose or open the caps and mix with applesauce and do an even lower dose.
Take it with meals and also some digestive enzymes like Super Digestaway by Soloray. You have to start somewhere or these suckers will take over if they haven't already.
Gael
Posted by lax mom (Member # 38743) on :
quote:Originally posted by CD57: Why don't we name this thread PARASITE WARRIORS and keep it sticky at the top or something?
I'm with CD57!
It's nice that we can all just post here instead of having 50 different threads with questions.
Posted by lax mom (Member # 38743) on :
Hey guys,
I took the pyrantel last night. I think it went to my nervous system. I woke up in the biggest panic in the middle of the night.
I also had a little bit of pain in my lung and slight wheezing that has since subsided. My LLNP said it hits lungworms too. (Which I think Dr K said are very common?).
Posted by LAXlover (Member # 25518) on :
I'm gonna love this thread! So very helpful. Thanks for doing this!
Well, I'm on day 12 of my parasite cleanse! I'm still only doing 1/4 salt/c.
I'm not sure that my cleanse is strong enough and I might go to Humaworm or Parastroy after this one.
Questions:
1. How many times a day for the salt/c should I try to work up to? I've only been able to do it once so far.
2. Coffee enemas: Could someone mind posting a page "Coffee Enemas for Dummies"????!!!!!!! I think it would be really helpful. I wouldn't know where to start! Maybe attach links to where to buy supplies too?
3. I haven't been taking probiotics since beginning the cleanse since I need to take 2 pills at bedtime. When are you taking probitics?
Thanks so much!
-LAXlover 75% of family with Lyme & critters Posted by Winni (Member # 36772) on :
LAX lover, I too have been asking the same question about coffee enamas and supplies. If anyone could share what has worked best for them and where to purchase that would be wonderful. Having a limited budget, I would like to purchase the correct supplies instead of spending money to trial different things. Thanks for this thread it is very helpful.
Posted by Winni (Member # 36772) on :
LAX lover, I too have been asking the same question about coffee enamas and supplies. If anyone could share what has worked best for them and where to purchase that would be wonderful. Having a limited budget, I would like to purchase the correct supplies instead of spending money to trial different things. Thanks for this thread it is very helpful.
Posted by lax mom (Member # 38743) on :
I bought the disposable enemas from Amazon, like Tammy recommended. This is the link:
![[Smile]](smile.gif)
![[woohoo]](graemlins/woohoo.gif)
Another worm bites the dust. Totally agree with Tammy. Hopefully, more and more people will start treating for parasites. ![[Cool]](cool.gif)
![[group hug]](graemlins/grouphug.gif)
![[dizzy]](graemlins/dizzy.gif)