LymeNet Flash: feel disconnected, isolated

This is topic feel disconnected, isolated in forum Medical Questions at LymeNet Flash.

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Posted by EWT1638 (Member # 11315) on :

I feel so alone. I'm not allowed to drive due to unpredicble seizures and other neuro issues. I feel disconnected from friends/family, my husband is overloaded due to my inability to hardly help at all, and doesn't deal well with emotion although he helps with injections ect.

Most people just want to hear, "I'm fine.". I kinda get it, people generally want to be around positive people and it gets old, even to me. So I try not to talk about it.

Sometimes I just smile, because I don't know what to say anymore. Most of my extended family ignores the situation. I've dealt with this for years, in and out of remission. Depression doesn't help obviously. I sound like I'm whining, but I just want my life back, before there is nothing left to go back to.

Posted by daphnesmom1 (Member # 39433) on :

I completely and totally understand how you feel. I don't know what else to say. It's been over 5 years for me. I feel similarly...I can't even remember my life before I got sick. Tired of being a burden, and smiling through the symptoms. No one can possibly know what it's like to have your life stolen away, one day at a time.

I hope there is hope. I have to believe there is...but lately I just don't know.

Guesses, guesses, guesses.

Posted by Robin123 (Member # 9197) on :

Do you have any local support groups you could connect with? Also, every state has an online Lyme discussion group. Yours would be http://health.groups.yahoo.com/group/virginialyme.

I think it's a very good idea to be able to connect with people who know what you're going through! And if you can establish some friendships via these options, so much the better.

Posted by lyme in Putnam (Member # 11561) on :

I know and understand completely. You just want it over, it's not fair. Sometimes I wish I lived with Lyme people cause when u see others on the outside you feel like your dead anyway. Nobody could understand any unless u live it. God bless.

Posted by lax mom (Member # 38743) on :

[group hug]

Posted by norcal (Member # 29829) on :

I like what Robin123 suggested,find others that are experiencing this disease complex and all its nonsense.
Help from others stories was so valuable for me in the thick of it

Posted by EWT1638 (Member # 11315) on :

Thanks all for the encouragement, I will get through this.

Robin123, that page does not exist or group had disbanded. I know some people who have it or who are in remission, but it would be nice to talk with people who after my 6 years of treatment aren't tired of hearing about it.